tag:blogger.com,1999:blog-90546410357990662652024-03-13T04:12:11.505-07:00Life LAM & Lovely Lungs"always smiling and always will"...a moto of mine that has stuck with me for years. Loving life since my transplant! Taking on various challenges from the Bupa Great South Run; UK, European & World Transplant Games in various sports; travelling the globe & sailing in the Clipper 11-12 Race. This year competing with Team GB in the World Transplant Games, South AfricaJustine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.comBlogger73125tag:blogger.com,1999:blog-9054641035799066265.post-85269044069213244242015-06-25T02:52:00.001-07:002015-06-25T02:52:53.411-07:00Australia!!<div class="separator" style="clear: both; text-align: center;">
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Hello and Happy New Year 2015!!! I was meant to publish this journal before the year ended in 2014 from my Australian Transplant Games trip. However, life took over and time flew by and here I am now updating last bits ready to post to you all now. Apologies and happy reading in the meantime.</div>
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Back in the UK, after what now seems like some crazy dream after a long time waiting for this special trip. So full of great memories, many highs and new experiences, making new friends, and feeling very blessed and humbled being alive.</div>
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The build up to my departure was a mixed one full of emotions of OMG I'm going to the other side of the world!!! Excitement seeing existing friends and competing in the Australian Transplant Games as an international guest. I was also anxious for the flight being two long haul flights, but, I took it all in my stride as the morning of my flight I was like no backing out now.</div>
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Prior to departure I was dealing with chest infections and adapting to taking nebulisers morning and night to which I feel ok doing now long term. Packing and working out all my other daily medications, the reality was now upon me. I also had a dodgy stomach too - probably nerves or the usual side effects of one of my immuno suppressants. </div>
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Farewells done, on the plane......Wooooooo take off and first stop being Hong Kong! </div>
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I arrived in Hong Kong feeling dazed, tired, and somewhat buzzing just being this far! I would love to have time exploring the far east (on my to do still ;). So, fast forward and now I have arrived at Melbourne to which Kevin kindly collected me and I finally met up with Sandra where we staying for a few days. Then afterwards, sharing with other girls in an apartment. </div>
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I stayed up taking until the early hours - still jet lagged, but finally thought I must sleep! When I look back, I probably didn't sleep properly until about 7-10 days - jet lagged and just too excited to do all and everything and see many sites in-between competitions.</div>
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The following day I explored Melbourne walking aimlessly until I hit a brick wall - welcome to the feeling of jet lag! Oh my, it felt like I couldn't walk another step and I needed to sit down, gather myself before I knew I had to head back and try crash out for a short while.</div>
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The following days were that of registering for the events I was taking part in and a walk through Federation Square to meet with the rest of the competitors, supporters and donor families. We all had orange T-shirts saying the word, Thank you. Being thanks to our donors, it was quite humbling parading as a mass of orange and for people to stop, look, ask what was happening. The media were there too - covering this remarkable event.</div>
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Then the following day, it was the opening ceremony of all the hospitals in Australia and other countries to walk into the stadium for the beginning of the transplant games. It was a very humbling experience and always is, whenever the start of any transplant games back home or abroad. A time to be proud and stand tall and let people around witness the get together by lives saves from passed loved ones.</div>
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I have never seen before - something representing donors who has lost loved ones by a ceremony letting go of butterflies. A group formed in a circle and some lovely words said, then each person released a butterfly into the air. So beautiful to watch and many many tears flowed. This really got to me and seeing a young boy cry doing this...made me wonder who he lost in his family.</div>
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The same day also was that of a donor fun/walk. I got confused and thought it was the 3k fast walk that I was doing. It was such a hot day almost a struggle in the heat walking round. I did wonder why people running too and was told it doesn't matter what you do. Just have fun :)</div>
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I found out a few days later, that I had actually got bronze the in the 3k fun run event, happy days. And the 3k fast walk was on the last day I was competing in - the athletics day.</div>
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So after an amazing few days getting in to the Aussie way of life, it was time for me to crash and wake up ready Monday morning for my first competition. Monday morning was for lawn bowls singles. A great sunny day and plenty of competition. It is also nice to be able to do a sport and not get breathless. Technique is involved and a lot of patience and tactic to win against opposing players. I first played this at the World Transplant Games in South Africa (2013) whereby with no experience won bronze. And to my delight I won Gold here!! Wow! </div>
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I met many lovely people whilst competing in the singles and team (pair) games. On my days off I would either watch other competitors and/or utilize my free time to explore the sights.</div>
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<u>Wednesday Melbourne Zoo</u></div>
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A much needed trip to the local zoo and very enjoyable. I like animals and wanted to make sure I saw some koala bears!</div>
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<u>Thursday Aquarium</u></div>
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The aquarium was a fun trip and I tried to capture photos that summed up the experience for me. I probably had around 2,000 photos (when returning home), so finding just a few for my blog was not easy ;)</div>
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I love seahorses and it was great to see so many of them here at the aquarium.</div>
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<u>Friday athletics</u></div>
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Here I am with the lovely Oz girls all ready before our competitions today. A big day ahead for me;- shot put, discus, 3k fast walk and 100m sprint, phew!</div>
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Bu I also ended up doing the 4 x 100m relay race too. It seemed so fast, one event after the other. So, no sooner had I sat down (if that) had a quick drink - change of shoes for whatever event competing in...time to go again. Phew! The day went by very quick as you can imagine and the heat was over whelming too!</div>
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<tr><td class="tr-caption" style="text-align: center;">more sprint girls :)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">A moment I was able to sit and smile for the camera ;)</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-bt3aXnue_vw/VEaQG6JKTOI/AAAAAAAADAM/dbfff9Qi9OY/s1600/20141003_165430.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://4.bp.blogspot.com/-bt3aXnue_vw/VEaQG6JKTOI/AAAAAAAADAM/dbfff9Qi9OY/s1600/20141003_165430.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">relay sprint team</td></tr>
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<a href="http://2.bp.blogspot.com/-HMOAz8A3HiQ/VEaQE_xKz_I/AAAAAAAAC_w/pwmRxTGqmN8/s1600/20141003_115303.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://2.bp.blogspot.com/-HMOAz8A3HiQ/VEaQE_xKz_I/AAAAAAAAC_w/pwmRxTGqmN8/s1600/20141003_115303.jpg" width="240" /></a></div>
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<tr><td class="tr-caption" style="text-align: center;">And here's a shot put I made earlier ;)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Check that out.....</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Getting ready at the 100m sprint line</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">On your marks, get set, GO!!!!!! And I'm off</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Whoop I got bronze in the 100m! :)</td></tr>
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My results for the day are as below</div>
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shot put - bronze 5.11 metres</div>
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3k fast walk - gold</div>
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100m sprint - bronze 17.62 seconds</div>
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discus - silver 15.03 metres</div>
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100 4 x relay - nothing - but we are winners still as alive :)</div>
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The evening as a pub dinner and drinks - then bed. Exhausted and very much needed to sleep.</div>
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<u>Saturday gala night</u></div>
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Yay party night! Time to glam up and the final night at the transplant games. It has gone by so quick and a shame now almost over. I met and made some wonderful new friends, and caught up with existing friends.</div>
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<tr><td class="tr-caption" style="text-align: center;">With the other UK Newcastle team</td></tr>
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<a href="http://1.bp.blogspot.com/-EkmSCN9Lm9c/VEaQbxWMeiI/AAAAAAAADEI/_Fz8cebzG5o/s1600/IMG_150702258944293.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="213" src="http://1.bp.blogspot.com/-EkmSCN9Lm9c/VEaQbxWMeiI/AAAAAAAADEI/_Fz8cebzG5o/s1600/IMG_150702258944293.jpeg" width="320" /></a></div>
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<tr><td class="tr-caption" style="text-align: center;">With Scott</td></tr>
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I am very saddened to say that Scott has since passed away. I met Scott for the first time in Sweden in 2011 at my first World Transplant Games. I was so excited to see him again in Australia, such a genuine and lovely, funny friend. Every day IS a bonus for us, and his presence will sorely be missed in the transplant community. My heart felt condolences to all who knew him and family/friends. May Scott breathe and fly freely now xx</div>
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<tr><td class="tr-caption" style="text-align: center;">Oops here I am dancing and caught in action!!!</td></tr>
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<u>Sunday - My day with Irene</u></div>
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I met Irene at the South African World transplant Games, and great to still be in contact after all these years :) We visited Arthur Seat Mountain and ate at the top of the mountain - with the most amazing views too.</div>
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<a href="http://1.bp.blogspot.com/-XTLwsTQAwMo/VEaQIbk_EeI/AAAAAAAADAo/8bOnEuS-eLI/s1600/20141006_123550_Richtone(HDR).jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://1.bp.blogspot.com/-XTLwsTQAwMo/VEaQIbk_EeI/AAAAAAAADAo/8bOnEuS-eLI/s1600/20141006_123550_Richtone(HDR).jpg" width="240" /></a></div>
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Monday/Tuesday </div>
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I spent my with a hop on/off shuttle bus, and planned where I wanted to visit - obviously shops and more shops were part of the equation!! Fab markets and I even found a market stall called, Queen Justine Vintage - how funny - eh!! I had to explain to the lady of the stall - that Justine also my name and I NEED a photo!! hahahaha</div>
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The wheel at Harbour Town - and lots more shops - oh .....what a day ;)</div>
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Wednesday</div>
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This was a fun packed action adventure day and saw me conquer height fears and zip wire angst. I have done something similar in the UK, but no way as high as here in Australia and ended up doing it on my own. Irene did start with me - but, I finished as much as I could at the Glen Harrow tree top doing 3 levels. I really wanted to try and do another 2 as the next hardest levels, but ran out of time. A couple of times it was frightening - well, actually more than that. Also, I needed to be rescued at one point - but still continued on. The zip wires were so exhilarating - even though scary at the time. But, it as case of just go and have faith!! Phew - and relax :)</div>
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The evening was with Irene's parents and sons and I was told often, "Eat..eat...eat" by Irene's mother. Those who know me well, realise I have a good appetite and do eat lots. Yet, I actually found myself unable to eat ..eat much more. A lovely traditional dinner was made - I just wish I could have taken it back home.</div>
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Thursday</div>
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My last day was with Jennifer (as part of Team USA) and Irene again. Love this photo of us all - great memories.</div>
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And in the evening - reunited with Nathan again from the Oz games. OMG, the food was just so good here, such a good restaurant and good times for my final night in Melbourne, The following morning I would by flying to Sydney.</div>
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Friday - fly to Sydney </div>
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Whoop! Whoop! I have arrived in Sydney, and it was a case of - dump my bags and go explore. I was staying with a lovely friend called, Pip - who actually was going to be away for the first few days. So, time for me to run riot in a new city :) I actually was meeting up with a couple of friends here too - amazing to finally meet up with a dancing pal when we were both in London. </div>
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Saturday</div>
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Today was the day I met up with Kim, my old dancing buddy. We both also worked at a dance studio in London and I was doing at least 5 x street dance classes a week here too! We had a great catch up, like the good old days - and tucked into some gorgeous foods :)</div>
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I also had time - to yes - go shopping!!! Before and after meeting up with Kim and ended up visiting two very different types of markets (Paddington and Glebe market) and getting some bargains too. I came back to the apartment staying in - with 5 dresses for 32 dollars, which is very cheap.</div>
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Sunday</div>
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Manly beach </div>
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Rocks market - more shopping</div>
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Vicki - lunch and ice cream, shopping</div>
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Monday - hop on/off ferry to Taronga Zoo</div>
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I must admit - that this blog has taken me a very time to actually publish, finish as my life has just taken over - so instead of trying to finish more of my travel/fun days after the Transplant Games. I will just show photos and a brief description, as I am leaving in a few days to go to Ecuador for a new venture.</div>
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Sydney Opera House</div>
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Botanical Gardens</div>
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healhty dinner with Pip</div>
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Tuesday Lisa Blair</div>
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CYCA Piers Dudin</div>
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Today I met up with a sailing girl from the days of the Clipper 11-12 Round the World Yacht Race. Fab catching up, and also with my skipper, Piers now living in Australia too.</div>
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Wednesday</div>
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Shopping centre</div>
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Bondi beach - walk front to Watsons Bay</div>
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This was such a beautiful walk from the beach to Watsons Bay, all along the coast and lovely views too, it felt very calming :)</div>
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Thursday - Sydney Harbour Bridge climb</div>
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PM - dinner with Pip's friends - most amazing meal!</div>
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<tr><td class="tr-caption" style="text-align: center;">with Pip and her friends enjoying a fab meal</td></tr>
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Okay, this is a bit back to front - as the bridge climb was during the day and the meal in the evening..but hey ho...lol<br />
Here are some photos from my experience as below. It felt incredible to do this and so many steps up. I felt very emotional once we had all as a group reached the top, a few happy tears. Thanks to my donor, an amazing and humbling feeling. You can see that I am very happy too!<br />
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<tr><td class="tr-caption" style="text-align: center;">halfway up</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">what a view of the Opera House</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Yay, at the top!!</td></tr>
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I loved this so much and the memories certainly so unique! Sydney is such an incredible place and I would love to re - visit again. It is a busy city and with lots going on and fun fun fun!!!<br />
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My last morning with Pip - aka Pipster<br />
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Coffee and sunglasses and red tops :)<br />
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<tr><td class="tr-caption" style="text-align: center;">Planking as you do early morning...hahaha</td></tr>
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I will miss again all the new friends made and existing friends - good times. Thanks so much for Irene and Pip letting me stay with them and helping make my stay in Australia one I will never forget.<br />
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So there we have it - finally sharing my Oz venture, returning home a champion with unexpected medals. And, memories that will stay with me forever. I am so grateful for this experience and it feels very surreal now being back home as was the other side of the world. None of which would have been possible without the consent of my donor agreeing to Organ Donation and allowing me the privilege of making use of his lungs again.<br />
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<tr><td class="tr-caption" style="text-align: center;">my medals :)</td></tr>
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Lots of exciting things are already in the pipeline for this year..so as usual watch this space. Thanks as always for all the love and support from those around me. I wish my friends/family continuous good health and get well vibes to those who need it and more transplants giving life again - like mine.<br />
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So, that's a wrap and now I leave for Ecuador tomorrow morning for another challenge climbing mountains and an active volcano with a team of other heart/lung transplantees. I am not sure if I will do another blog and it seems harder to do...but updates via my social networking sites will still happen. And, perhaps give me more time to continue focus on my autobiography. I just need to be able to sit still as my book will be never ending ;)<br />
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Big love and good health to each of you xx<br />
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<!-- Blogger automated replacement: "https://images-blogger-opensocial.googleusercontent.com/gadgets/proxy?url=http%3A%2F%2F1.bp.blogspot.com%2F-OP6_PZtpusI%2FVEaQCivfvrI%2FAAAAAAAAC_E%2FiJrKSdWtmNA%2Fs1600%2F20140929_163955.jpg&container=blogger&gadget=a&rewriteMime=image%2F*" with "https://1.bp.blogspot.com/-OP6_PZtpusI/VEaQCivfvrI/AAAAAAAAC_E/iJrKSdWtmNA/s1600/20140929_163955.jpg" -->Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-34596663084171651842014-09-21T14:13:00.005-07:002014-09-21T14:21:52.359-07:003 months & Australia awaitsWell hello everyone!!!<br />
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My life has rushed past and it's been like a roller coaster. I'm updating over the last few months since my last journal on Rat Race (May) + Brentwood half marathon (March). To which I wrote a combined and lengthy blog. I always have the intention to do short journals - but somehow the words keep flowing and this one is probably worthy of a cuppa and a few dunking biscuits or a glass of something nice ;)<br />
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My life has been consumed with working, voluntary work, radio slots on BBC Essex as a newspaper reviewer, training, hospital visits and much more. A change in medications since two infections were found in the bronchioles of my airways requiring me to take nebulisers twice a day permanently.<br />
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It's bizarre as I was feeling more breathless since before the Brentwood half marathon in March and even from the year prior. Not to be grim...but I was bringing up black stuff from my lungs and blowing out the same also from my nose. I did query this last year but as no changes in my lung function or changes from x -rays/tests at hospitals...nothing was done. I guess, it's get to the point when we say we know our own bodies, and I KNEW this was wrong! But, nothing was still found or the fact I was unable to give a sputum sample on demand. I did keep pushing at hospital and had a scan of my sinuses and lungs and yet nothing was found. So, technically on paper I was deemed fit and well. Yet, I knew otherwise. Finally, I managed to get a sample to my hospital and to cut a long story short was informed that I actually had two infections:- pseudomonas and candida.<br />
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I remember I was told a long time ago if I ever had pseudomonas that I would need nebs indefinitely. I guess now 8 years post transplant (July 9th this year), that I have been lucky even with my blips on/off. I was hoping it would be a short term thing - but when I was informed, it was not so. Ok, so be it was my initial reaction - not a lot I can do about it. I did start on antibiotics straight away for about 2 weeks before I started the nebulisers. It was not a smooth journey and it did cause me a lot of stress getting the right machine/drugs to go with it. And getting this agreed via my GP/Hospital a bit of a battle who was going to supply me the medications. Blah Blah........ after bursting into tears at hospital as I was showed what to do and realising wearing a mask reminding the days I needed a mask for oxygen. It initially was very overwhelming. However, I know how I roll - fall down, then bounce back up!<br />
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And I did! After getting a portable nebuliser machine and the medications and bits needed to make one of the drugs (needle/syringes) the only way was UP. It's like brushing my teeth - just an additional routine to my life now with the other aspects I need to do. Moving forward some weeks now - it's all good. It is a nuisance sometimes to do, but, if it keeps me alive longer and helps my lungs, then YES I am going to do this!!<br />
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Above a photo of the new drugs and bits needed to nebulise in the morning and night. And below a no make up selfie wearing one of the masks whilst inhaling salbutamol to open up my airways before mixing the colomycin the main drug to help my lungs.</div>
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So putting the aside my blip and now the ongoing nebs - time to relay some amazing news. My journey is always filled of gratitude daily and July this year I celebrated 8 years post my transplant! I still feel like every day is a blessing and I wish I was able to thank the man who agreed to organ donation and gave me life after his.<br />
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It was really nice to have some friends and my family at a local restaurant for good food and fun. I had arranged party bags for all the guests and a very special cake was made too. It was a shape as double lungs!<br />
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<tr><td class="tr-caption" style="text-align: center;">Let the fun begin....</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">The cake is all mine :)</td></tr>
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I wanted the lunch/afternoon to be enjoyable for one and all and as well as the party bags/fun there were hats, masks, and masks to create your own designs on. I also planned secret missions and informed people prior to my function. Thankfully my friends don't mind a giggle and all succeeded extremely well. For example one friend I asked to get up and sing a song about fish, another to say she worked in a chicken factory plucking chickens and do an impersonation of one. They were hilarious........something I guess you had to be there to see it.<br />
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<tr><td class="tr-caption" style="text-align: center;">and who is behind the masks ;)</td></tr>
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So I have updated on my health and my 8th year party - now to update with my usual fitness shenanigans. </div>
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I have maintained my fitness with the usual Essex Boot Camp and various things here and there and recently I did a challenge called, The Nuts. I initially signed up for 21k with 100 obstacles in each lap. Basically repeat the lap (7k) 3 times. However, I only wanted to do two laps but it had sold out. So went for three knowing would do two ;)</div>
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However, on the day it was more about having fun and I could have gone round a second time, but after over 3 hours I was feeling content. I didn't really want to over push and allowed myself to settle for this, then freshen up and wait for my other friends to finish.</div>
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<tr><td class="tr-caption" style="text-align: center;">Upside number - Oh dear read below.....</td></tr>
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I asked when this number transfer was being done - if it was the right way up and told yes. Urm....I felt so stupid when saw afterwards that it so wasn't! Oh well - some of the people helping/working said not to worry when I would be upside down in the mud - then I will be the correct way up. Haha!! Think I will just stay upright as much as possible ;)<br />
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Here I am with some other booties:- Rhian, Mandy, Hayley, and Carly. All clean happy and smiley.<br />
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The being clean didn't last long and I probably got the muddiest that I have ever been doing any event. I tried much before and even some water obstacles - which I normally struggle with as the coldness of the water affects my breathing. So looking like a sludge of mud and rinsing some of it away from entering the streams/rivers..the final captioned photo is here underneath. </div>
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When I got home the mud was stuck like glue to my body and hair, but probably the best facial and pampering mud treatment I've had too.</div>
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Now all that is left to mention about my final arrangements for my trip to Australia competing as an international guest in their National Transplant Games. After many car boot sales and an empty/de-cluttered flat and funds raised - I am ready for this venture. I will be competing in:- shot put, discus, 3k fast walk, lawn bowls, 100m sprint and 4 x 100m relay race. I haven't sprinted for about 3 years and a challenge to myself if I could do this again. I gave up as my breathing recovery afterwards was horrendous. I have been 50/50 about sprinting again, but my mindset is now that I am and I will! I have only practised twice doing a 100m sprint but with training building up to this again over the last 4-6 weeks. I realise it is not long but my general fitness with the bootcamp has surely helped me. And as they say, what will will be. I am by no means the fastest sprinter but even if I get a PB that is GOLD to me. Being alive is a winner too, anything else is a bonus. </div>
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This is the furthest that I have been post my transplant and with two long haul flights to get into Melbourne. The quietest my social networking will ever be ;) but when back on wi -fi ......you will hear from me.</div>
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I guess that's a wrap and my next journal will be the chapter about Australia!!! So, keep well everyone and smiling. I will also be thinking of some of my friends whose health is not the best and some needing transplants. I realise I am lucky at the moment and things could change, but, I am doing what I can to keep raising awareness of the beauty that is Organ Donation. xx</div>
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<!-- Blogger automated replacement: "https://images-blogger-opensocial.googleusercontent.com/gadgets/proxy?url=http%3A%2F%2F2.bp.blogspot.com%2F-dQPzBgOsNRE%2FVBLB3XttkNI%2FAAAAAAAAC7o%2FvnHLV900Q2A%2Fs1600%2F20140831_140352.jpg&container=blogger&gadget=a&rewriteMime=image%2F*" with "https://2.bp.blogspot.com/-dQPzBgOsNRE/VBLB3XttkNI/AAAAAAAAC7o/vnHLV900Q2A/s1600/20140831_140352.jpg" -->Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com1tag:blogger.com,1999:blog-9054641035799066265.post-25342943361368716262014-05-19T13:44:00.004-07:002014-09-04T09:15:27.206-07:0026 miles.. could I..did I?<div class="separator" style="clear: both; text-align: center;">
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<b><u>Brentwood Half Marathon March 2014 ( & Rat Race May'14)</u></b></div>
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Here the story begins of a feat overcoming 26 miles divided in half as two separate ventures/challenges. Adversity and attitude wins. The first is of a plight of a young girl that I was touched by as many others who partake in Essex Boot Camp. A young girl called Lily fighting a very rare form of cancer called, Neuroblastoma. At least, I had my childhood illness free and enjoyed life until around 21 when I was sick for around 10 years before my rare disease was diagnosed, Lymphangioleiomyomatosis (LAM).</div>
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Running is like my hate...my fear and something almost impossible for me to do. Funds were being raised for Lily and I decided to split mine between Lily's charity and LAM Action. I am happy I raised that just under £500 for each charity.</div>
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My training started last year ('13) and I was trying to build up running very slowly with walking. After about 18 years I ran my first mile non stop in November '13 at a Bentwater's all day boot camp (EBC event). It felt truly amazing!! I started to go out 2-3 times a week if I could and build up the distance.</div>
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Below is the adorable Lily that around 200 fellow Essex Boot Camp participants ran for at the Brentwood half marathon.</div>
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It seemed a miracle was unfolding in-front of my very eyes and I was overwhelmed when one day I managed 6 miles non stop. Ok, at a snails pace but a breakthrough for me. But, as in life not everything runs smoothly and I was started to feel unwell in February. I was getting more breathless on attempting to run my snails pace and not to be grim but black/flaky mucus was coming out of my nose. I knew something was wrong inside. But, I had no temperature and my lung function was not dropping. I guess, I was getting frustrated with my own situation and was barely able to do a mile without being breathless again. It's pretty standard for me to me breathless when running and I have accepted that - so I walk when I need too. I was thinking maybe my secondary condition was starting to play havoc inside, Obliterative Bronchiolitis. I have since had more regular hospital visits and just awaiting results from a scan of my lungs and sinus. So...much rest was needed and I hardly was able to train or go to many boot sessions. But, I am NOT a quitter and knew I would still turn up on the day.<br />
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All smiles here though as I am about to embark on 13 miles.<br />
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Even though I did the Brentwood half, if I'm honest I always smile in photos - but inside is a different story. I am not a runner and never will be a runner, but. my determination is such I start and I shall finish - however that may be. As, my training had reverted back to square one. I knew that for this event I would try and jog/walk as much as I could, and then simply walk the rest. I am happy I had Jade as below who stayed with me the whole duration and also my friend Tom.<br />
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Here we all go!!!!!!!!!!</div>
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I think I managed about 1.5 as a slow run with short bursts of jogging with walking. Then, I realized ok 13 miles this IS actually a huge distance and I don't want to wear myself out. So, walking it was after that.<br />
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I have to just say that I decided to actually get some before photos before we all started. In hindsight, this was a blessing as you will gather at the end nothing was left when I completed! I will explain more later.<br />
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So with all the start and finish photos captured, it was time to blend in with the crowd too with Animal and Scooby as below ;)</div>
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Here we are mile 1 - YAY! I wanted to be able to capture a photo at each mile for each as an achievement conquered. With the exception of mile 11 as it was raining and admittedly I was too exhausted to even cross the road at this point.<br />
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Come on Jade - let's keep going......<br />
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<tr><td class="tr-caption" style="text-align: center;">Woohoo :)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">all supporting Lily </td></tr>
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Yes at mile 2, just another 11 to go ;)<br />
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<tr><td class="tr-caption" style="text-align: center;">with Tom</td></tr>
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When I decided to go for a short burst of jogging, it always seemed to be on a slight gradient...madness, so I did have to stop shortly after.<br />
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Happy at mile 5<br />
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Gosh only 5 miles in and still a very long way to go. Running now or even attempting was just like a hell no as I needed too make sure I would make the finish. Time to save my energy/puff. So onwards we all trundled.<br />
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<tr><td class="tr-caption" style="text-align: center;">check this sign out ;)</td></tr>
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Oops.. apologies here as I decided wouldn't it be fun to play peep a boo behind a tree. Any excuse to add like a kid and put fun into my day :)<br />
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Can't believe I was caught red handed checking out buses ;)<br />
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Time for another zany pose as below....<br />
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Somehow I don't have a photo for mile 8 - we were all running so fast it bypassed us! Actually, I think what happened was that we didn't see it maybe we were giggling and chatting away..then was like oh we are at mile 9!!<br />
We are looking all happy and smiling - but what we couldn't capture what was an attack of hail stones just after mile 9 and it was horrendous pounding at us all. But, we kept going and thankfully it did stop!<br />
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<tr><td class="tr-caption" style="text-align: center;">time for a pint? no, photo and toilet stop on route :)</td></tr>
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I can't even remember now at what mile, but, at one point the race director came to find me as knew I was struggling. he was very kind and insisted I get in his car and he would take me to the finish line. I was adamant this was NOT going to happen, and that I was going to continue and finish. Perhaps he was shocked by my reply but then I am Justine the fighting machine. I think the race time of 3 hours was over and he was also checking on me - I reckoned I would complete the half marathon in around 4 hours.<br />
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<tr><td class="tr-caption" style="text-align: center;">are we nearly there yet....shattered!</td></tr>
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I was over the moon when both Mark and Nat came to find me and give some moral support fueled with sweeties too. It is difficult sometimes to keep going when your body is tired and exhausted. I was also thinking about Jade and Tom too as I am sure just walking 13 miles was tiring for them too. So seeing some extra people was a very happy moment, and gave me an edge to keep going.<br />
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<tr><td class="tr-caption" style="text-align: center;">with Mark and Nat</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">too tired to cross the road to be in the photo</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">well done Jade</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">I'm finished!</td></tr>
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Every step now walking felt like a chore and I was hardly able to speak now, exhaustion had got the better of me. But, I DID NOT want to quit. Only one more mile to go and I would have completed the furthest distance ever!! My mind was fighting to keep going. My legs were hurting and everything hurting inside. My face was a picture I am sure and I know both Tom and Jade were worried about me. It was also nice to see another friend, Tracey in her car drive past slowly and talk to us. I was slightly jealous when she stopped and was eating a burger...ooh....I was hungry too.<br />
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But after resting my eyes on the mile 12 sign....time to get some more smiles in and get going. I CAN do this!!!!<br />
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<tr><td class="tr-caption" style="text-align: center;">had to act a fool here ;)</td></tr>
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So approaching mile 13 and nothing was left at the end, no one was there to applaud our finish. I felt a tad deflated and was like, "Oh" and even the burger van was closing down.<br />
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The only thing left was the 13 mile sign on the floor ready to be collected and cleared away. So, I sat my bottom on the floor to capture how my day finished.<br />
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I am very grateful to Jade and Tom who stayed with me and to some other ladies part of Lily's legend who walked with us too.<br />
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It took just under 5 hours around 4 hours and 50 minutes. The duration itself totally exhausting. The last mile from 12 to 13 was a slow painful step, a pained face, and hardly any words from me. But, a sense of yes I have done it - was in my mind but after feeling deflated by the finish, I just wanted to get home to eat and collapse on my bed. I must stress that even though I say I am not a quitter....I do know if things got really bad - I definitely would have bowed out if I had too. I mean - there is only one of me and not another and especially living on spare parts.<br />
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Total exhaustion and a very naughty KFC dinner and a bed and I collapsed!<br />
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<b><u>Rat Race May 2104</u></b></div>
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Now for part two of another 13 mile venture. I have to mention after the Brentwood half it took me about a week to recover even just from walking. But, I knew in May I was about to face something I wasn't even sure was in my capabilities. An event called, Rat Race in Stamford (Lincoln). It is the world's biggest assault course being 20 miles and 200 obstacles OR 13 miles and 150 obstacles.</div>
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Do you think I was going for the 20??? Noooooo chance! In my mind, I was setting out to simply walk the 13 miles and attempt as many of the 150 obstacles as I could.</div>
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Time to get my Grrrrrr on and I decided what would be more appropriate than a photo as a before in a bath. To which afterwards I would be needing a very good clean! Most of the Essex Boot Camp peeps were camping. I did initially think I would do so too. Then realized, that as this is a major event for me, rest would be essential!! I wouldn't be able to function if my body had no sleep the whole thing would be a struggle. Food and clean hygiene also vital to me - so not at risk with any bacterias sharing port a loos or if blocked - limited time for a shower on site. In hindsight this was a great decision as some struggled with lack of sleep, cold, and water supplies running out on the grounds!</div>
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<tr><td class="tr-caption" style="text-align: center;">Grrrrrrrrr</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">some of the EBC family</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">map of the 20 miles route!</td></tr>
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A slow drive up on the Friday and helping at the grounds with people's tents, then about 5 pm I decided I needed to get some rest. I did have fun chatting with everyone the day prior and below with a couple of friends in Tracey's tent.<br />
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<tr><td class="tr-caption" style="text-align: center;">with Natalie and Tracey</td></tr>
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A good night's sleep - porridge in the room and it was time to get this thing done and dusted. Come on let's do it!</div>
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At 9am we all lined up and were ready to go with a warm up by two men dressed in yellow all in one skin outfits, it was actually quite amusing. Again as with the Brentwood half a massive turn out from EBC all raring to go. </div>
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Whoop whoop here we go!!!! Everyone ran on and I was left on my own walking and wasn't even going to try to run, to make sure enough puff for the obstacles. I got to the first event going over some small blocks to which I had help by the marshal's to get over. Then to a car which was completely gutted out to which I crawled in one side and out the other - that was fun.</div>
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I carried on walking and was approaching mile 1 and heard people from the next wave come up behind me. Some were asking as I was plodding along if I was ok and some giving encouragement as if I was already struggling. Little did they know...an idea by my friend Carrie suggested having 'double lung transplantee' on the back of my top (which I think I'm going to do). Thanks Carrie :)</div>
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At about mile 5, I thought this was going to be extremely tough on my own. I was upset and thought it's easy to just pull out. But, then, my mindset kicked in and I thought - well if this if is how it's going to be - then so be it. I will get on with it and ask for help as and when I needed. I had done so at various points until reaching mile 5.</div>
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I had bumped into 3 other girls from EBC, Carrie, Sam, and Claire to which later on actually joined forces so to speak and we all rallied around together - helping each other. This really lifted my spirits and made the remaining 8 miles so much more fun!</div>
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I remember meeting them all again just after this obstacle a very high hill. I remember looking up and perhaps saying to myself oh my and sighing. I just looked and looked and thought there is NO way I can get up there on my own. I saw a chap and told him about my situation and said I would really like to do this - please help me. He was so kind and said hold my hand tight I will get you to the top. And it seemed like seconds and we were there! He literally ran and hoisted me up with him. I was so grateful and beaming with a massive smile. The way down was slow but amusing and that is when my journey continued shortly after with the 3 lovely girls.</div>
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<tr><td class="tr-caption" style="text-align: center;">photo from rat race website</td></tr>
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The obstacles were so varied around Burghley House grounds with set themes, also lots of water obstacles - to which I needed to avoid.</div>
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Some photos below demonstrate some of the obstacles faced, just so many to try and write about about - how long have you got! ;)</div>
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<tr><td class="tr-caption" style="text-align: center;">photo from rat race website</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">photo from rat race website</td></tr>
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Thumbs up as crawling under cargo nets, I think at one point I nearly ended up coming out at one side as was not looking where I was going...drunk cargo net crawls ;)</div>
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The banter with Carrie, Sam, Claire and I was so much fun and with other people that we passed by sometimes more than once ;)</div>
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We all had our own strengths and weaknesses but as a team jelled really well.</div>
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This photo shows how all 3 girls helped me to get over these haystacks. I probably would have walked around as its tough for me to go up. But, they were determined to help me and I was so grateful as I did make it!<br />
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<tr><td class="tr-caption" style="text-align: center;">Woohoo! at the top</td></tr>
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What goes up must come down and here we all are resting on the last haystack...oh, but must we go on...yes!!<br />
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The girls left me at mile 12 for me to finish to mile 13 on my own, as they were going to finish to 20 miles and 200 obstacles. A fantastic achievement and I was so proud of Carrie, Sam and Claire continuing on. From around mile 10 things were getting tough for me and I wasn't sure how much longer I could go on. Exhausted an understatement and I had been out for so many hours. Walking being a chore almost like how I felt towards the end of the Brentwood half marathon. I was just thinking walk to the finish avoid the last items to do and finish. Keith (Carrie's husband was so supportive as were the other partners) and Keith was encouraging me to try and do the last obstacle - the wall. I really wasn't sure initially.<br />
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I did manage a few more obstacles before the wall as below, they seemed a bit of fun and not too strenuous.<br />
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<tr><td class="tr-caption" style="text-align: center;">what you looking at ;)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">In front of the wonderful grounds</td></tr>
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The photo below was the final obstacle to get over.......the wall with 3 walls. Gulp.......<br />
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<tr><td class="tr-caption" style="font-size: 12.727272033691406px;">photo from rat race website</td></tr>
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I looked again at this, as I had the mountain hill, the haystacks and was thinking, Ohhhh dear. I needed help and lots of it. Help to initially get a lift up - but then help to pull me over each ledge of the wall. I had no puff to do this myself so told people helping me - that not only would I need to be hoisted up. But, to be really helped over! This seemed to work for the first two walls. I was hurting too as my arms were pulled.<br />
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The last wall I was almost in tears as I got stuck on the edge of the wall just underneath the scar of my transplant, and I screamed out so loud :(<br />
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I have a nice yellow bruise line by my scar still healing over a week later. The last wall was excruciating - but I am smiling now as I start my descent to the finish.<br />
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Ok, so I made the finish - and was totally done in - in myself as you see me here and I thought, I just can't get down now sitting on the edge.<br />
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I managed to raise a hand and wave, as suddenly I heard my name over the loud speaker to wave. It was announced who I was and about my transplant - it was such a nice touch and it was hard not to cry.<br />
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Some people were assisting me now to make the ground.<br />
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Looking like a rat with tufty hair - I was in shock and saying. 'I've done it...I've done it'........<br />
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I crossed the finish line and burst into tears, I was so emotional to those who saw me just after. I just found a space of grass and tired, exhausted, hungry, body shaking, ate a burger and drank a hot chocolate - then time to freshen up and rest back where I was staying.<br />
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So after learning of my results as a mammoth 6 hours 20 minutes to complete 13 miles and as many of the 150 obstacles as I could. I came in 890th out of 954 entrants. For the women who competed in the 13 miles, I came in 414th out of 452 ladies. I am no longer last anymore and seeing improvements slowly but surely.<br />
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I returned back to the room sharing with my friend, Kat, and as she was on her way out to party. I crawled into bed to flake out! After some hours I managed to join all the girls who helped me and their partners, for a huge Chinese feast. Then bed it was for me!!!<br />
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<tr><td class="tr-caption" style="font-size: 12.727272033691406px;">dinner and this was just the starter!</td></tr>
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<tr><td class="tr-caption" style="font-size: 12.727272033691406px;">Yay! I did it!</td></tr>
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So there we have 26 miles and that's a wrap. I get my hospital results from my scan in May and hope all is good. Until then, I will keep smiling and doing as much as I can. xx</div>
Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com2tag:blogger.com,1999:blog-9054641035799066265.post-63421149449269179502013-12-30T12:52:00.002-08:002013-12-30T13:08:19.093-08:00ReflectionsAnd so 2013 is almost over, so I decided to reflect on my year - hence the title Reflections. It's been a roller coaster full of life in the fast lane and trying to keep well.<br />
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A year at Essex Boot Camp, and taking on many outdoor activity challenges/days out (all to which I have previous journalled about).<br />
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I have just recently over the last month started to train in running, towards my first ever half marathon in March next year. I had a breakthrough too and achieving a mile continuous in 17 minutes - it's only taken me 18.5 years to do this. This is broken down by 10 years ill on/off, 1.5 years waiting for my transplant, and 7 years post transplant building on my fitness, ongoing health issues. Running is always something I have struggled with - with my breathing. But, I am very positive and determined, and never stop trying to pursue.<br />
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Also, this year saw me return home from Durban in South Africa, from the World Transplant Games with two bronze medals.<br />
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<tr><td class="tr-caption" style="text-align: center;">photo taken by Chris Rushton Essex Chronicle photographer</td></tr>
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My goals for 2014 have already been typed up in my last blog entry - so if you fancy seeing what mischief/challenges I have set myself for next year, please do. But, no doubt this list will grow, and it has since I last wrote up this journal.<br />
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Thoughts go out to my friends who have gained their angels wings, especially to an amazing lady called, Nicola who inspired me. Nicola was 24 years post double lung and heart transplant. Below is a photo of us taken way back in 2009 at one of Harefield Hospital's fun raiser days. I have many pics, but decided to use this one.<br />
Nicola was a great help to me when I had my own struggles post transplant, as it isn't a cure and there are/can be many other medical/emotional/mental issues to deal with after surgery. I had someone to talk too who understood my complications. It was a very sad day to hear of Nicola's passing recently, and it was also a great loss to the transplant community.<br />
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Transplantation isn't a cure, but, it extends life and one that I especially do not take for granted and every day/breath I wake up to, is a bonus. I have lost many friends whose journey has ended, but, it's a lesson I say time and time again.... we all should live life for today and don't wait 5 years to do something. If you have a dream/goal/something to aspire too - try and reach out as soon as you can/feasible. Who knows what is a round the corner for any of us!<br />
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It is amazing that on July 9th 2014, I will be reaching my 8th year post double lung transplant!! Not long to go and I have a hospital check up in March ('14) aslong as all stays well prior to that.<br />
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It is almost bitter sweet, when one person looses their battle and another person lives on through consenting to be on the Organ Donor Register. But, when your body is at rest - you do not need your organs in heaven. They can save a life, like it did mine. If you still haven't become a donor please open this link <a href="https://www.organdonation.nhs.uk/how_to_become_a_donor/registration/consent.asp">How to become an Organ Donor</a><br />
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Some facts on Organ Donation (taken from NHS Organ Donation website)<br />
<ul style="background-color: white; color: #666666; font-family: Arial, Helvetica, sans-serif; font-size: 12px;">
<li style="line-height: 1.45em; margin: 0px 0px 10px; padding: 0px;">You are more likely to need a transplant than become a donor.</li>
<li style="line-height: 1.45em; margin: 0px 0px 10px; padding: 0px;">A donor can donate a heart, lungs, two kidneys, pancreas, liver and small bowel and can restore the sight of two people by donating their corneas.</li>
<li style="line-height: 1.45em; margin: 0px 0px 10px; padding: 0px;">Donors can also give bone and tissue such as skin, heart valves and tendons. Skin grafts have helped people with severe burns and bone is used in orthopaedic surgery.</li>
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<ul style="background-color: white; color: #666666; font-family: Arial, Helvetica, sans-serif; font-size: 12px;">
<li style="line-height: 1.45em; margin: 0px 0px 10px; padding: 0px;">The age of people who have donated organs after their death has changed in the past decade with more aged over 50 and fewer younger donors. Older donors are less likely to be able to donate as many of their organs as younger people, as some organs may become less suitable for transplantation as people age. But organs from people in their 70s and 80s can be transplanted successfully.</li>
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So, taking that all into account - please also express your wishes to your next of kin too, so they are aware of this. Many thanks. Ok ok no more on this passionate subject deep rooted to me.<br />
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Now......massive gratitude to all and everyone - my parents, family, friends who have continued to support me. Lots of love to my Mum and Dad, always there for me and extremely supportive.<br />
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To all at EBC, and the directors James and Glynn who have encouraged/helped me along with all the other instructors to grow and build confidence in my fitness abilities. Below, I am being awarded by James and Glynn, Most Inspirational Member (2013). Please also check their website if you live in Essex or fancy getting your corporate firm involved, and see what other services are on offer with EBC <a href="http://www.essexbootcamp.co.uk/"> Essex Boot Camp's Website</a><br />
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It has been life changing for me in many ways, and not just helping me in my health but making so many wonderful friends and EBC is like a family :)<br />
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<tr><td class="tr-caption" style="text-align: center;">James and Glynn EBC Directors</td></tr>
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<tr><td><a href="http://4.bp.blogspot.com/-Z7Xelr9zZ3M/UsG1VmWyRQI/AAAAAAAACaM/Hciw6bgX9s0/s1600/xmas+5.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="213" src="http://4.bp.blogspot.com/-Z7Xelr9zZ3M/UsG1VmWyRQI/AAAAAAAACaM/Hciw6bgX9s0/s320/xmas+5.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="font-size: 13px;">Christmas Party EBC</td></tr>
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Below now are also some of my favourite photos over the year. I have perhaps hundreds and hundreds (thousands...lol) ..so, I have tried to put some here to depict highlights for me in 2013.<br />
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-nalGYCvUSEw/UsG1fKxLoWI/AAAAAAAACag/BAbs7Lnj2V4/s1600/family+1.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="179" src="http://1.bp.blogspot.com/-nalGYCvUSEw/UsG1fKxLoWI/AAAAAAAACag/BAbs7Lnj2V4/s320/family+1.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Family shot my Birthday (February)</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-pBRH1KSPjrM/UsG00SiCtsI/AAAAAAAACYQ/Zwuae8xgoT4/s1600/IMAG1073.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://3.bp.blogspot.com/-pBRH1KSPjrM/UsG00SiCtsI/AAAAAAAACYQ/Zwuae8xgoT4/s320/IMAG1073.jpg" width="213" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">National Lottery Run:Catherine,Jo,Maureen,Lara</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-GSQiH7nhqz4/UsG04nEHEvI/AAAAAAAACYg/FCkeVWDPQ0E/s1600/IMAG1077.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://3.bp.blogspot.com/-GSQiH7nhqz4/UsG04nEHEvI/AAAAAAAACYg/FCkeVWDPQ0E/s320/IMAG1077.jpg" width="213" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">National Lottery 5mile Run</td></tr>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-yxSWAB-SL40/UsG1BU3B2rI/AAAAAAAACYw/g7k0xv9Nujk/s1600/IMGP3410.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://1.bp.blogspot.com/-yxSWAB-SL40/UsG1BU3B2rI/AAAAAAAACYw/g7k0xv9Nujk/s320/IMGP3410.JPG" width="180" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Having fun on my Birthday</td></tr>
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<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-szLi2iXBH0o/UsG1Ae781YI/AAAAAAAACYo/ChtdPMtoAMA/s1600/IMGP5149.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="298" src="http://2.bp.blogspot.com/-szLi2iXBH0o/UsG1Ae781YI/AAAAAAAACYo/ChtdPMtoAMA/s320/IMGP5149.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Celebrating 7years post transplant!</td></tr>
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<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-akyLwYKlNUU/UsG1QykF70I/AAAAAAAACZc/w0gPLX3q9Po/s1600/IMGP5168.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="185" src="http://2.bp.blogspot.com/-akyLwYKlNUU/UsG1QykF70I/AAAAAAAACZc/w0gPLX3q9Po/s320/IMGP5168.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Linda,Maria,Mum,Alison,Liz</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-b-1WC8Ngr4w/UsG1OdD2MhI/AAAAAAAACZQ/C5Z24PuDoYk/s1600/IMGP5188.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://3.bp.blogspot.com/-b-1WC8Ngr4w/UsG1OdD2MhI/AAAAAAAACZQ/C5Z24PuDoYk/s320/IMGP5188.JPG" width="180" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Natalie,Mark and I</td></tr>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-I-ULwNTR8aY/UsG1QjMWL7I/AAAAAAAACZY/XRaRWwcrxtU/s1600/lactic+2.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://1.bp.blogspot.com/-I-ULwNTR8aY/UsG1QjMWL7I/AAAAAAAACZY/XRaRWwcrxtU/s320/lactic+2.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Lactic Rush with EBC</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-PkD-1-nXnIs/UsG1SEl9FFI/AAAAAAAACZk/R1hYzBZRZ5g/s1600/pizap.com13657559733281.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://3.bp.blogspot.com/-PkD-1-nXnIs/UsG1SEl9FFI/AAAAAAAACZk/R1hYzBZRZ5g/s320/pizap.com13657559733281.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Pre-World Transplant Games promo photo</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-z0FYpaVNxIA/UsG1Smpx8-I/AAAAAAAACZs/n7JpkG3B-pQ/s1600/teletubbies.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://3.bp.blogspot.com/-z0FYpaVNxIA/UsG1Smpx8-I/AAAAAAAACZs/n7JpkG3B-pQ/s320/teletubbies.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Teletubby fun Eating Clean regime with Tracey,Jade,Janine</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-Gd6cg97-XSw/UsG1T8AgnWI/AAAAAAAACZ4/-fmJAPo_NKs/s1600/transplant+week+2.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://4.bp.blogspot.com/-Gd6cg97-XSw/UsG1T8AgnWI/AAAAAAAACZ4/-fmJAPo_NKs/s320/transplant+week+2.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">FACT !!</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-RRc3OsXfg_c/UsG1Ufm2HlI/AAAAAAAACZ8/7Z1yGhKWDVs/s1600/worlds.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://4.bp.blogspot.com/-RRc3OsXfg_c/UsG1Ufm2HlI/AAAAAAAACZ8/7Z1yGhKWDVs/s320/worlds.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">EBC sponsors at World Transplant Games,South Africa</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-IMddvHo-icM/UsG031TgbvI/AAAAAAAACYY/RQLv-0UnbD0/s1600/IMAG1237-1.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" height="320" src="http://4.bp.blogspot.com/-IMddvHo-icM/UsG031TgbvI/AAAAAAAACYY/RQLv-0UnbD0/s320/IMAG1237-1.jpg" width="249" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Capturing my moment in Durban,South Africa</td></tr>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-Tt9ZxJ6DE-k/UsG1KfgKPdI/AAAAAAAACZA/W4xGudTXNDw/s1600/ebc+collage.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://1.bp.blogspot.com/-Tt9ZxJ6DE-k/UsG1KfgKPdI/AAAAAAAACZA/W4xGudTXNDw/s320/ebc+collage.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Collage of outdoor & EBC photos</td></tr>
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<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-31fCYXEMH-U/UsG3A7tjrxI/AAAAAAAACas/661i2v9EcrQ/s1600/IMGP5789.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://2.bp.blogspot.com/-31fCYXEMH-U/UsG3A7tjrxI/AAAAAAAACas/661i2v9EcrQ/s320/IMGP5789.JPG" width="193" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Promoting the cause ;)</td></tr>
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Well, there we have it. Is this perhaps my shortest write up, with the biggest amount of going on's for 2013!? If you do prefer to read more about my year in details - then best to get a big cuppa tea/wine and a few yummy biscuits and sit back and scroll backwards to read all about it!<br />
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I wish everyone a great New Year's Eve, and a beautiful year ahead as we all approach 2014. May it bring everything and more and good health. May my friends still waiting for transplants, wait not much longer, and those poorly to get better soon.<br />
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Enjoy your life, be grateful, and live your life!! Oh and my book is still in progress - I will get there, just it's very painful re-living experiences and writing about them. I hope to either finish my book next year or get a large chunk of it finished. If anyone knows of a publisher too - please let me know. Many thanks.<br />
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Lotsa Love to you all xxxx<br />
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Always Smiling and Always Will<br />
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Justine<br />
Jussie<br />
Red :) xJustine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-22930833630233190392013-10-26T09:16:00.000-07:002013-10-27T06:12:10.589-07:00A Year at EBC<div class="separator" style="clear: both; text-align: center;">
<u><b>The New Me....</b></u></div>
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<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-LqIKwZGyqdg/UlLHp92TloI/AAAAAAAACU8/-7BzAIkMz6U/s1600/before+after.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://2.bp.blogspot.com/-LqIKwZGyqdg/UlLHp92TloI/AAAAAAAACU8/-7BzAIkMz6U/s320/before+after.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">A year at EBC, same clothes - different shape ME</td></tr>
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It has been a hard year grafting with the exercise and pursuing the fitness regime and learning through Essex Boot Camp about a new way of eating called, Paleo. My weight remains the same but my body shape has become more defined.There have been many highs and some lows (when health blips) but overall it has been a great success with amazing results. Enjoy this journal and thanks as always to all at EBC.</div>
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In the photo above it was from November 2012 when I had tea with Samantha Cameron at No:10, Downing Street, the day I became Top 5 Inspirational Woman (Daily Mail) a very humbling day/experience. </div>
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<b><u>October 2012</u></b></div>
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So, how did it all begin? I guess I was part of the...Oh I can't do bootcamp that looks too tough and how does anyone do that? Fear and angst how I would ever be able to keep up and put my body through this type of fitness. My friend Mark (Ahlin), who most people know always used to talk about EBC. Mark used to say I should try this...no...nope, never, not for me was my normal response......then the Groupon offer came out and also the opportunity to have a free trial first session. So, I thought why not try a free session and see.</div>
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My first night, the instructor, Gabs (Gabriel) had the misfortune of helping me. I could barely do anything - my puff/lungs so bad and barely able to run around a small car park. Oh, how things have changed over the year. I actually enjoyed it and decided to go for the 10 sessions and then see how I felt about continuing. I arranged a visit to meet the directors, Glynn and James and explain my health situation. As no one would know to look at me I have had a double lung transplant and can struggle with shortness of breath. It was the reassurance I needed and then the rest is history as they say.</div>
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I was a quiet and shy person at the sessions - yer right!! Soon after much banter and my character was born as Fraggle aka RED, which I am nicknamed today. Or, Laymond (from James (director)- when in trouble) and JJ from Gabs.</div>
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Before the year was over, I was being tested to see if I had a brain tumour and to my relief got the all clear. Lymphangioleiomyomatosis LAM disease which brought about my need for lungs (a rare circulatory condition affecting mainly the lungs, kidneys and in some cases the brain). To say I was overjoyed - most definitely YES!! Ok, so now I am living with a secondary lung condition called, Obliterative Bronchiolitis (which is a progressive lung disease in which the small airways are compressed and narrowed by fibrosis (scar tissue) characterized by fixed airway obstruction, resulting in shortness of breath. However, I remain positive and you will always find me smiling. </div>
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Throughout my year at EBC with a determination to keep my lungs working by exercising and maintaining a good eating regime, it has helped. The year has seen stability on my health and a slight increase in my lung function. I have to take a daily concoction of medications to help my lungs from rejecting/immune system (which also make me very tired). Now, it's time to read all about my incredible year.</div>
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Joining up just before the year end, saw me doing sessions in the snow which were fab. Who would have thought building snow balls and carrying them around would be hard work, even snow ball fights ;)</div>
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<tr><td class="tr-caption" style="text-align: center;">Winter bootcamp</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Tinsel for Christmas time</td></tr>
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<b><u>January 2013</u></b><br />
So, after a few months the year saw me challenge myself to various events - why not? I did and I guess I do still worry that I am very slow and can't keep up with everyone. But, through my determination NOT to give up and the encouragement from the directors and the people who also go to EBC saw me realise that it is finishing and not the speed. However, I am my own worst enemy and still wish I could run as fast as others or run continuously without puffing about...but, such is life. Just taking part HAS helped...<br />
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So my first event for the year was the Hylands 4k race. It was great to have Karen help me get round this woodland event and coming last was the start of the rest of coming last at all future events...hahahaha. But, at least I finished!<br />
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<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-Ss92h6qFzxM/UkwfLno5uAI/AAAAAAAACOM/mF3B9fnv7Oo/s1600/hylands+run+2013.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="213" src="http://2.bp.blogspot.com/-Ss92h6qFzxM/UkwfLno5uAI/AAAAAAAACOM/mF3B9fnv7Oo/s320/hylands+run+2013.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">With other EBC lovelies who took part</td></tr>
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<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-Zr3JUbBjnYw/UkwhP2PfJuI/AAAAAAAACUY/_Fgqwn2wlb0/s1600/tshirt.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://2.bp.blogspot.com/-Zr3JUbBjnYw/UkwhP2PfJuI/AAAAAAAACUY/_Fgqwn2wlb0/s320/tshirt.jpg" width="213" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Loud and Proud</td></tr>
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This day was quite challenging and I just kept pushing through and taking many pit stops to get air into my lungs. Tears nearly rolled down my eyes as I was approaching the finish and could see people waiting for me and cheering me on. Also, the support of the EBC members was a great encouragement. Thank you.</div>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-3gZF32w_xsE/UmVa7jtAICI/AAAAAAAACXQ/NZAiC15dA5g/s1600/hylands+3.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://4.bp.blogspot.com/-3gZF32w_xsE/UmVa7jtAICI/AAAAAAAACXQ/NZAiC15dA5g/s320/hylands+3.jpg" width="213" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">With Karen</td></tr>
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<b><u>Paleo food regime</u></b><br />
A 30 day challenge was set up to educate us on a different way of eating (which I did blog about earlier in the year). This saw fat drop off my body and be replaced with lean muscle - well - I looked slimmer, still working on the 6 pack ;)<br />
It was quite tough at first learning a new way to eat, and the key is preparation to ensure no naughty foods or convenient foods getting consumed. I followed quite religiously but admittedly did have some blips, but got back on it afterwards. The challenge was set again later in the year to which I tried again. Moving forward, I have adapted some of this lifestyle but not 100%, as I do enjoy my food. I do believe though and always have, that YOU are what YOU eat! Exercise and correct foods can and DO help health, well, it has for me.<br />
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What I like about Essex Boot camp is that it is constantly expanding, and new sites crop up. I went to my first ever launch at Wickford. The launch sites are some of the best sessions with a large turnout to support the instructor on the day. The atmosphere is electric and such a buzz. Some members also make a point of travelling from different sites in Essex and also it is a great way to meet new people too.<br />
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Wickford Launch<br />
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This was Lisa's launch site<br />
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I had so much fun taking it easy as a group dragged me up a muddy hill on the tyre, check out my cheeky smiley face. Oh but oh, it was my turn to heave ho after we reached the top......was I still smiling then ;)<br />
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<b><u>February</u></b><br />
The month of my Birthday (12th) no rest for the wicked and still in my paleo food regime for 30 days. And an all day bootcamp (Bentwaters) that I decided to go for. For anyone wishing to read about my Bentwaters Day (I have written an earlier journal if you scroll through with also the Paleo food regime containing lots of photos).<br />
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<i><u>Bentwaters</u></i><br />
WOW! What a day, challenging both the body AND mind, and we were informed that at some point in the day your body will want to give up, but, that the MIND will kick in. The mind is a powerful tool, I know that for a fact dealing with a horrific illness when it was at its worst. It is so easy to give up and let the body perish. I had to fight, fight to stay alive and fight to breathe. Not easy and through surviving my 15 lung collapses, a 3 week coma and learning to walk again...I knew I had strong mentally, but it was definitely tough and inner strength was needed.<br />
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<tr><td class="tr-caption" style="text-align: center;">With Lisa (instructor)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">The Bentwaters Group</td></tr>
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<b><u>March</u></b><br />
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<u><i>South Woodham Ferrer Launch</i></u><br />
Today was the launch for Gabriel's site, it was a very muddy and obstacle orientated one and going through lots of puddles!!<br />
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<tr><td class="tr-caption" style="text-align: center;">Gabriel's SWF Launch</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Oi pass me that tyre ;)</td></tr>
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<b><u>April</u></b><br />
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<i><u>Braintree 5 mile race</u></i><br />
Time for another challenge at the Braintree 5 mile road race. Yes, I came last - hahahaha!! But, I really had to dig deep and keep going. Sometimes a little upsetting as no one about and most had finished and most supporters who were watching had left. However, it was a route that you backed up on yourself and so you were able to see the marshals that you passed, then as returning to the finish. The marshals here were great and I had some very positive remarks as I walked (or jogged). And, to my amazement a couple who saw me at the start and read my top (which said I've had a double lung transplant) wished me luck....they waited for me to return and cheered me on and said didn't want to go until they saw me come back and took photos. Aww, how sweet and I was quite touched by this. Lovely again that the EBC'ers who also ran in this race waited for me at the end. And Mark and Nicki came to find me at the last mile and helped me to finish with a few others running with me to the finish line.<br />
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One aspect, that did stick in my mind was that I was holding up traffic and had no idea.......until it was mentioned and I turned around to see a pile up of cars behind me and a police woman on a horse to stop traffic overtaking me! Ohhhhhhhh..oops ;)<br />
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<b><u>May</u></b><br />
So, being a part of Essex Boot Camp I have decided to list what I like about it as listed below (and in no particular order) Oh, and this is not an opinion just for May, just something to add for this month - this feeling stands all year round to the present day!<br />
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<i><u>LIKES</u></i><br />
1) It's friendly and fun<br />
2) Great banter<br />
3) I have made so many new and lovely friends<br />
4) Lots social events happen outside of EBC<br />
5) The instructors are fab at what they do and work to all fitness abilities<br />
6) Love the fact people have their own goals too from weight loss, fitness etc<br />
7) The support/encouragement we all give each other<br />
8) EBC is like a family :)<br />
9) The flexibility that you can go to any site<br />
10) Sessions vary from mornings, lunch times and evenings and on every day in many places<br />
11) The fact it is outdoors and any weather sun/rain/snow it still happens<br />
12) Each session is completely different, no boring routine like being in a gym<br />
13) I also get inspired when I see people improve or loose weight<br />
14) The instructors are not bad looking (sorry that has to be said ;)<br />
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<u><i>Lactic Rush</i></u><br />
There is also a detailed write up on Lactic Rush (if you scroll through my journal from earlier in the year).<br />
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<a href="http://4.bp.blogspot.com/-99I_orwxf2A/Ukwf6JIX0AI/AAAAAAAACQo/PrOGui7yDug/s1600/IMGP3837.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="151" src="http://4.bp.blogspot.com/-99I_orwxf2A/Ukwf6JIX0AI/AAAAAAAACQo/PrOGui7yDug/s320/IMGP3837.JPG" width="320" /></a><br />
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My first ever adventure event with EBC around 7 miles and 30 obstacles (to which I did 26 obstacles)<br />
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<tr><td class="tr-caption" style="text-align: center;">Finishing!! Yay </td></tr>
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I was last even though there was a chap behind me, but he started in a different wave. I started very early and finished very late. But, was happy Mike,Judit and Rebecca and the EBC directors (Glynn and James) waited for me.<br />
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-RxEoFN9CTHI/UkwgRx4Dq3I/AAAAAAAACRQ/lnzvUWASGKg/s1600/IMGP3913.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto; text-align: center;"><img border="0" height="180" src="http://3.bp.blogspot.com/-RxEoFN9CTHI/UkwgRx4Dq3I/AAAAAAAACRQ/lnzvUWASGKg/s320/IMGP3913.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Cake from Rebecca as a reward for finishing - nom nom</td></tr>
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<b><u>June</u></b><br />
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<u><i>Cambridge Launch</i></u><br />
It was great to attend another new launch outside of Essex and for the instructor James H, to start something new and exciting. Again, a great turn out from members at various Essex sites and people from Cambridge too - to see how we roll. The day was finished by a picnic in the park :)<br />
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<tr><td class="tr-caption" style="text-align: center;">EBC Girlies</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Boomtastic</td></tr>
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I'm not sure with the photo below if it was June, but, I wanted to add this to show a photo of the marine, Glynn (director) taking on all the sites and surprising us with a marine session. We all turned up for a routine session, this was at the Braintree site and then out of nowhere, loud shouts came from the trees and there Glynn was!!! Ohhhh noooooo, but, it was so much fun even if somewhat grueling. Something different, and good how EBC likes to mix it up and have a bit of banter saying ..where will the marine turn up next!? :)<br />
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<b><u>July</u></b><br />
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<u><i>National Lottery Run - 5 miles</i></u><br />
Another day another challenge to which my parents came long to watch and enjoy the atmosphere within the Olympic Stadium. I was actually debating signing up for this as a few days later, I was flying to South Africa for the World Transplant Games. I am so glad I did! What a great day!!<br />
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For me, the best part was running towards the finish and entering a tunnel leading out onto the track in the stadium. Music was being played in here with the sounds from the audience of the Olympics day itself. Wow! What a buzz and as I entered the stadium and saw the thousands of people it was very emotional.<br />
All of my fellow EBC'ers had finished and I did hear my name being screamed and later blamed for lost voices, lol. It was hard to find where the screams initially were coming from - but focusing and seeing RED tops - yay!!<br />
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A very memorable experience and another to add to my achievements for the year so far, as jog/walk for 5 miles. Now to pack and head off to Durban, South Africa.<br />
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<u><b>July/August</b></u><br />
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<u><i>World Transplant Games</i></u><br />
I have already written a journal in full about the World Games (if you would like to read) prior to this entry.<br />
Massive thanks to Essex Boot Camp for being my sponsors, and I was very proud wearing my Team GB with EBC logos on my kit.<br />
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And here I am below with my 2 bronze medals returning back to bootcamp.<br />
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<a href="http://4.bp.blogspot.com/-YFrRu76dfFY/UkwhNKCk4mI/AAAAAAAACTo/J5IAVdqg-Do/s1600/post+SA+medals.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="http://4.bp.blogspot.com/-YFrRu76dfFY/UkwhNKCk4mI/AAAAAAAACTo/J5IAVdqg-Do/s320/post+SA+medals.jpg" width="240" /></a><br />
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<u><b>September</b></u><br />
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<u><i>EBC Olympics</i></u><br />
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My most recent event was the Olympics, a day of individual and team events. I did get lost in the endurance event and was so far behind and ended up scaling most of the forest grounds!! But, found my way back onto the road and hearing noises of people and using that as a bearing to get back to somewhere not lost! And, great that the Team Admirals went searching for me too, big smiles all round when re-united, phew.<br />
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<tr><td class="tr-caption" style="text-align: center;">Team Admirals</td></tr>
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There were sets of individual challenges and I put myself forward for 50 metres of chest to floor burpees with press ups for the whole distance. I knew it was going to be hard and hence why I choose it.<br />
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I think I held everyone up and all had finished but, I was just determined to finish. Trying to get air into my lungs doing this quite tough and using all my power with each movement. I had lots of support as you can see with the instructors below, and a lot of noise around me (I think claps and cheers but I was just trying to focus on my breathing).<br />
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What I also love is the comradery between each site - yes, perhaps we are all competitive in our own rights. But, for me it is about that and also having fun. A good buzz and fun day as usual supporting one another.<br />
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<u><b>October</b></u><br />
<u><i>My year </i></u><i><u>anniversary at Essex Boot Camp!!!!!</u></i><br />
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My journal was prompted by the fact a year has passed, and I think I have achieved so much and actually seeing it written down shocks me. I feel I can run a little further/faster (still a tortoise - but not a tortoise carrying its shell) Still breathless - but, still determined and will not stop training.<br />
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My mission to myself now is to complete all sites and meet all instructors.......<br />
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So there are 28 EBC Sites (2 extra as Corporate)<br />
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Sites I have visited over the year (12) :- Chelmsford:- Admirals Park, Beaulieu Park, Hylands Park; Billericay; South Woodham Ferrers, Great Dunmow, Rayleigh Fairview Park, Wickford, Braintree, Brentwood, Loughton; Chafford Hundred (and outside Essex - Cambridge).<br />
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Sites I have plans to visit before the year ends:- Colchester, Basildon, Southend and Grays . If I do the four listed here before the year ends - then only 12 left to do and I will complete all of the sites :)<br />
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<b><u>November/December months </u></b><br />
The next all day Bentwaters in November (Sunday 10th) - bring it on take two!!! And my last challenge/event for this year.<br />
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Then time for more sessions and keeping fit and well before the madness of Christmas and New Year, lots of socialness/parties.<br />
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<tr><td class="tr-caption" style="text-align: center;">Which instructor's leg?</td></tr>
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Everytime I was trying to do a push up (in the photo above), this instructor thought it would be funny - to push me back down - face in the mud. Little did I know at the time, he took a photo and was the laughing stock for a bit. I don't mind the banter and I can take being laughed at. But, I will get my own back on you!<br />
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This photo summaries EBC and how much I love it. I remember this day clearly, I wanted to cry and laugh at the same time. Gabs took this photo and he was telling me to stay still but I was slowly falling forward with the weight! There is no way I could move any steps like this (though some people thought I did, lol....no chance). Trying to breathe whilst pained face says it all.<br />
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<tr><td class="tr-caption" style="text-align: center;">My all time favourite photo!!!</td></tr>
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<b><u>So what does 2014 Hold?</u></b><br />
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<u><i>What are next year's challenges in the pipeline at the moment.....</i></u><br />
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March - Brentwood half marathon<br />
May - Rat Race 13miles 150 obstacles<br />
September - Great North Run 13.1 miles<br />
September/October - Australia for their National Transplant Games!!!<br />
Finishing my auto-biography........and obviously staying well.<br />
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My next hospital check up is in March aslong as all stays good until then. I'm sure it will. As you can see, I have done so much over this year and since being part of the Essex Boot Camp. I have seen changes in my fitness, body shape and abilities as to what I can do. It is a very slow process for me, but, it is happening. Appreciation to everyone's patience and understanding and letting me feel part of a very warm welcoming family no matter what my capabilities.<br />
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Thanks to all at Essex Boot Camp once again, to all instructors and EBC'ers too.<br />
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Don't say "I can't do this", if I can YOU can :)<br />
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Cheerio for now<br />
RED<br />
Jussie xxJustine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-29353604951945788612013-09-29T09:50:00.002-07:002013-09-29T09:50:29.093-07:00World Transplant Games<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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<b><u>Thursday 26th July</u></b><br />
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The time has arrived and I am about to embark on my 2nd World Transplant Games (2011 Sweden were the last games). It was a calm before the storm as one hour before I was about to depart to the airport with my parents, Dad said he received an email saying the flight was cancelled! I was like you are joking and then realised it was for real. I tried to get hold of Lisa who was flying out with me too. We decided to still make our way to the airport and my parents were put on an earlier flight. Except Lisa and I were left seat-less as no more seats left on the earlier plane. Needless to say we had to kick up a fuss as we needed to get to South Africa being part of Team GB! Amazingly, Lisa and I were put on a Virgin Atlantic flight and upgraded - bring it on!<br />
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<b><u>Friday 27th</u></b><br />
It was wierd travelling out to S.Africa and having to meet my parents in Johannesburg for the connecting flight to Durban. Drama's over and a long night flight with practically no sleep, we all finally arrived in Durban.<br />
Lisa and I also registered and now it was becoming more and more real, even collecting my athlete pass and competition number to attach to my team kit.<br />
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The evening out was experiencing our first African foods and for the duration away, I tried more foods and felt a little adventurous from consuming meats (buffalo and ostrich) to all sorts of fish!<br />
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A nice meal out experiencing the South African culture. I also collect elephants, hence why this random photo of elephants I saw. I guess, I had to capture the moment ;)<br />
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<u><b>Saturday 28th</b></u><br />
Today was a free day to walk along the beach front, and I have to say that the weather was so overwhelmingly HOT! It was also lovely to experience the African culture and walk through the stalls and see all the handmade crafts.<br />
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It felt so surreal being here, and gratitude as if it wasn't for the kindness of my donor, I would not be here. I wanted to write a message in the sand, and leave my wording for other people to see until the waves washed over......<br />
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The evening was out with all of Team GB in the most amazing restaurant and watching fantastic African dancing/music. As you can see below wearing animal print to get into the feel of the night ;)<br />
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I totally loved the music and dancing, it's so energetic and vibrant. It also brought back memories as part of my degree whereby I took a module in African dance too. Will I want to start again upon returning to the UK!?<br />
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<b><u>Sunday 29th</u></b><br />
Another chilled day to relax and shop :)<br />
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<tr><td class="tr-caption" style="text-align: center;">Yes, here I am and here it is</td></tr>
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This banner was up in our hotel as above and worthy of a photo shot as above.<br />
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Time for some facts about the World Transplant Games from 28th July - 3rd August with around 900 athletes across the globe. The list of countries (50) as listed below:-<br />
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Argentina, Australia, Austria, Belgium, Brazil, Bulgaria, Canada, China, Croatia, Cyprus, Czech Republic, Ethiopia, Finland, France, Germany, Greece, Hong Kong, Hungary, Iceland, India, Iran, Ireland, Italy, Kenya, Malaysia, Mexico, Nepal, Netherlands, New Zealand, Norway, Poland, Portugal, Romania, Singapore, Slovakia, Slovenia, South Africa, South Korea, Spain, Sudan, Sweden, Switzerland, Thailand, Tunisia, United Arab Emirates, Great Britain & Northern Ireland, United States of America, Uruguay, and Venezuela.<br />
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Each country had their own time table as did Team GB in terms of training days and competition days. Free time was allowed aslong as no other commitments interfered with any training prior to events. However, I did still have enough free to explore Durban. I guess, the only thing I never did was diving with sharks! I did want to do this and thought perhaps after the games on my travels I would do so. It just never happened - so another item to add to my 'To Do' list.<br />
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The evening was a pre - welcome meal (nibbles) before the main event for the Open Ceremony the following day. It was a great night to catch up with friends I made 2 years ago at my first World Games in Gothenberg, Sweden. Also, making new friends on the night too. My highlight was when a group of Iranian ladies shouted my name, Justine Justine Justineeeeeeeee and came running up to me for hugs. I competed against the Iranians in Sweden and chatted with them lots and even tried to speak their language. It is hard to remember names from 2 years ago, but I never forget faces. Maybe slightly embarrassing when everyone remembers my name and can find me easily (had brighter hair if that's possible back then).<br />
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<b><u>Monday 30th</u></b><br />
<i>Opening Ceremony</i><br />
This night was not the same as in Sweden, whereby we paraded through the streets - stopping traffic and had people hooting in their cars, people looking out of their houses, people cheering and clapping, before parading in one big arena. This was more of a subdued affair missing out the walks and being already in the arena and walking in country by country with our team/countries flag. The atmosphere for this was still electric with music, shouting and spectators cheering each country. I have included various photos below for you to see. It was nice also to great various images of people in the team kits. After all 50 countries had paraded and sat down, we were entertained with live music, dancing, and poignant speeches about the Games and what it represents.<br />
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Please listen to this song representing our Games <a href="http://www.youtube.com/watch?v=SnwH3qHlQBc">Our Hearts are Beating</a> which everyone in the audience sang too, it's easy to sing along and watch the You Tube video. I Love Love this tune. xx<br />
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<tr><td class="tr-caption" style="text-align: center;">Australia with Alice, Robyn and friends</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Norway my lovely friend Yina</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">USA's Howard - what a star fella :)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Sudan</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">India</td></tr>
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The whole arena had around 1,800 people and I must admit it was hard not to be teary eyed (my eyes welling up) with all the going on's, and music. It was dark so I tried to hide my tears, but, I wasn't the only one. Emotions always run high and the fact that hundred's of people's lives were saved by the gift of strangers or live donor's.<br />
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<u><b>Tuesday 30th</b></u><br />
My morning started with an interview with a South African reporter for a local paper, followed by a nice stroll on the beach front.<br />
A nice chilled day, and then dinner in a ship! Yes, a ship with sharks swimming around...just a normal day in the life of Justine ;)<br />
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<tr><td class="tr-caption" style="text-align: center;">Cargo Ship Restaurant with sharks inside!</td></tr>
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A couple of other photos below - can't remember what day from - but wanted to use.</div>
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<tr><td class="tr-caption" style="text-align: center;">Alice and Anna</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Hanging out with the dancers ;)</td></tr>
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Please except the randonmess of the two photos above being out of sync..well, I am writing this journal like over a month later from being home.<br />
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<b><u>Wednesday 31st</u></b><br />
My first day competing in the World Transplant Games, in lawn bowls and it is nice to be able to do a sport without getting breathless. I was quite surprised how popular a sport this was, and how many countries/competitors turned up today to compete. I must admit I haven't done lawn bowls before and although there is technique and people who practice religiously like any other sport, this was all new territory to me.<br />
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I thought, I would just do my best and try and have fun with it. It was quite a hot day and I tried to stay in shaded areas where possible or go indoors when not competing.<br />
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<tr><td class="tr-caption" style="text-align: center;">Yo</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Friendly rivalry</td></tr>
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Some photos below showing me in action. I tried to look and act the part even though initially I was clueless, but somehow found my shots were good and I may have a chance to do well in this. I think my parents were most surprised too as they do this back home. And said for a first timer with more training onto a winning formula :)<br />
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Games over and watching the results and seeing the winners being announced.....WOW!!!!<br />
I heard my name being called out, and I had won bronze !!! Whoop Whoop.<br />
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More photos from lawn bowls day</div>
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<tr><td class="tr-caption" style="text-align: center;">Winners - a proud moment</td></tr>
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So a champion in my first event, time to freshen up and enjoy the Cultural night ahead. This night was for each country to wear clothing representing their culture and for Team GB, we all adapted the Union Jack as a theme as below.</div>
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<tr><td class="tr-caption" style="text-align: center;">With other team GB and my Dad on the right (not the blue face) ;)</td></tr>
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Enjoy the photos from the night, not much needs to be said except that it was a lotta FUN!!!</div>
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<tr><td class="tr-caption" style="text-align: center;">with the African ladies</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Check my shoes ;)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Bulgarian transplantees</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Love this photo with one of the African girls</td></tr>
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A great night had by all, and I wanted to get an early-ish night ready for my main event of badminton ladies doubles and badminton mixed doubles the following day. Good night for now.<br />
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<b><u>Thursday 1st August</u></b><br />
Smiling at the ready!!<br />
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<tr><td class="tr-caption" style="text-align: center;">with some of the Iranian ladies and Lisa</td></tr>
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Photos done - time to get ready to compete with Lisa my badminton partner. The games played were very tough and the standard has improved so much from 2 years ago (at the last World Games). I think we gave it our best shot, but were defeated. It's a very tough game and I knew that I still had the mixed badminton doubles to play later on.<br />
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<tr><td class="tr-caption" style="text-align: center;">competing with the Japanese</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Mum and Dad posing ;)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">with Claudia from Switzerland and Miriam from Iran</td></tr>
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The next set of games where the mixed doubles, which left me feeling totally exhausted and using all my puff. It was close at times playing with Alan (in mixed doubles) but sadly pipped at the post at the last minute. My face became very red I started to shake and knew I was struggling. I had to get outside for some air and slow my breathing down.<br />
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I am pleased I competed, but, do think too much now to enter in this sport - I need less strenuous sports which uses less puff. So, I gave it my all knowing I played my best and that is still GOLD for me :) x<br />
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<tr><td class="tr-caption" style="text-align: center;">Badminton Team</td></tr>
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<b><u>Friday 2nd</u></b><br />
Today was an early start and my last competitions in shot put and discus.<br />
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<tr><td class="tr-caption" style="text-align: center;">Believe this!!! I am living proof and many others</td></tr>
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A great day and a good opportunity for some more photos are below ;)<br />
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<tr><td class="tr-caption" style="text-align: center;">with Sandra and Alice</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">with Orla</td></tr>
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The atmosphere was electric with each country displaying their countries flag and wearing their team kits as you walked round the athletics field. All countries sitting together and supporting whatever sport/athlete was competing in at the time. So many raised voices and probably a few lost voices by the end of the day. The athletics went on for two consecutive days, and lucky for me - mine were on the same day.<br />
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<tr><td class="tr-caption" style="text-align: center;">with Hilary</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">with Howard</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">with Barb and Liz</td></tr>
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So, here we go about to start in shot put. I had 3 attempts, and my last throw was my best one. However, it wasn't a PB and all my training back home was much better, than today's outcome. I guess, one never knows on the day what will happen, nerves, weather, emotions, exhaustion - just not feeling it - reality of what can happen. But, still another sport entered, tried and I was still pleased I did. I mean I can't win everything.......hahahaha....maybe just try harder next time and get the gold's. Winning is just a bonus, being alive is the real champion, anything else just a bonus. Obviously, it is great to win medal (s), but, I wouldn't beat myself up so to speak if I didn't win as reasons already mentioned here.<br />
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I think I was still exhausted from badminton yesterday, hey ho. Here I am in action giving it what I could.<br />
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With both shot put and discus you have a couple of practice throws, and then 3 main attempts. Each turn is rotated with each girl and it is not 3 consecutive throws. The rules are very strict in each sport discipline and the judges decision is final. I was now starting discus and thought I could be in with a chance watching the practices from other girls across the world.<br />
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However, I spoke too soon in my mind as my first two attempts were totally shameful and upsetting for all the work I have put in with my coach. I stepped forward outside the parameter instead of backwards, so my throw was a 'no throw', then my second shot ended up outside the throwing region! Argggghhhhhhhhh!!!! I was admittedly a bit annoyed just at myself and guess on the day you just never know what will happen (as I have already said). My practice throw was so far my best one around 17 metres but only my practice throw and doesn't count for the final competition.<br />
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No pressure, it's now all in my last go, it's now or never! I couldn't bear having 3 throws as fouls after all my hard work and with my coach's assistance over the year. I was putting a lot of pressure on myself, and now it wasn't about a medal - just getting a throw in!!!!!<br />
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<tr><td class="tr-caption" style="text-align: center;">Here I go!!</td></tr>
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YES!!!! It was in, and no foul!! Yay!!! But, was it a winning throw? Only time would tell when all the results were tallied in and names called out for the awards later on. So, deep breathe as a sigh of relief and time to eat and just enjoy/watch other athletes in their sports.<br />
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Every person you meet at these games have their own story and even the donor families who attend too. But, nothing can prepare your emotions seeing children's lives transformed by a life saving transplants too. Seeing the young kids run 50 metres and have their parents at the finish line ready to pick them up and swirl them in the air<br />
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Everyone is affected from transplantation from babies needing life saving organs to adults. It is not the age of a person donating, but the condition of organ's. With this in mind even people in their 70's for example can be donors and save lives. It is about getting a match from blood group, tissue type and many other contributing factors. Being in Durban for this week was so inspirational and joy for those embracing their second chance on life.<br />
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Award ceremony time<br />
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<tr><td class="tr-caption" style="text-align: center;">Collecting my bronze award</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Just a tad happy ;)</td></tr>
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I was so happy to achieve a bronze medal in this, and delighted after all the drama I actually got some bling!<br />
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<tr><td class="tr-caption" style="text-align: center;">Thanks to Essex Boot Camp my sponsors<br />
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Closing ceremony tonight and time to say farewell and celebrate the gift of life with everyone. Buffet foods and dancing, stage shows and more dancing. It is also common to exchange team kit on the last day, and I acquired quite a few new additions to my wardrobe. Lucky me ;)<br />
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<tr><td class="tr-caption" style="text-align: center;">With Lisa and Sophie</td></tr>
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It was a great night and left me smiling from ear to ear (if that's possible). I think I strolled into bed about 2am and proceeded to catch some flies in my sleep. Exhaustion finally catching up with me. That's it, and tomorrow my last day seeing the sights before flying into Port Elizabeth to begin part two of my trip! I was able to travel after and see many places in South Africa travelling along the garden route ending up in Cape Town. My journal is more about the Transplant Games, but, the holiday was so fantastic and many memories also I will never forget and treasure. Over 2,500 photos were taken from my time away and the holiday ones I will eventually share the 'best of' on Facebook.<br />
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So...fast forward my travels and the reality returning home with two gorgeous bronze medals as below.<br />
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Upon returning the local press were interested in updates and I found myself back in the BBC Essex Radio Studios, The Essex Chronicle Newspaper, East Anglian Daily Times and The Chelmsford Weekly News again who covered my story also prior to departure.<br />
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<tr><td class="tr-caption" style="text-align: center;">Thanks to Chris Rushton Essex Chronicle photographer for photo</td></tr>
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I will leave you all with this photo image but with me looking down into the sand. Deep breath and breathe some more........... Are you a donor?<br />
Please click here <a href="http://www.organdonation.nhs.uk/how_to_become_a_donor/">How to Become A Donor</a> Thanks x<br />
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<tr><td class="tr-caption" style="text-align: center;">This says it all. Much Love to you xxx</td></tr>
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Well, that's a wrap as they say. What's next?? See this year through, stay well and roll on 2014 with new and exciting challenges. So, watch this space. From my first half marathon to a major event covering also 13 miles with 150 obstacles (Rat Race). Continuing with my book - my life story..and much more :) xx</div>
Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-3077973921592589672013-07-22T13:48:00.003-07:002013-07-22T13:56:17.739-07:00It's TIME to FLYWell here it is.... my final journal as I depart on July 25th as part of Team GB in the WTG -World Transplant Games. After 2 flights I will arrive into Durban, South Africa on 26th July sometime in the afternoon. Jet lagged or not, let the good times roll ;)<br />
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The actual games start on 28th July until 4th August and I will be competing in ladies badminton doubles, mixed badminton doubles, shot put, discus and lawn bowls. I have been training hard in my specialist sports and lawn bowls is something different for fun yet still competitive. Aswell, as my sports I have also been boosting my fitness with EBC - Essex Boot Camp (which replaced initially the gym from late last year).<br />
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<tr><td class="tr-caption" style="text-align: center;">ready for badminton</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">shot put</td></tr>
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So major thanks to Glynn and James directors of Essex Boot Camp, <a href="http://www.essexbootcamp.co.uk/">EBC website</a> and all the instructors for helping me. My badminton coach Michael Kilbey and athletics coach Brian MacKenzie <a href="http://www.brianmac.co.uk/">Brian's website</a> - thank you all so Very Much!!!<br />
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I will update my Facebook and Twitter accounts (@lamlungartist) as and when I can with updates, and those with my contact number can text me using whatsapp if you would like to contact me this way whilst away (duration of 3 weeks in total).<br />
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Upon returns, I will also update a blog on here about my World Games venture :)<br />
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Thanks again to everyone who has donated on my justgiving link, for anyone who would like to still to donate for Transplant Sport UK whilst I am away. The link is <a href="http://www.justgiving.com/JUSTINE-LAYMOND2">JustGiving</a> here. Thanks, and as they say every little helps xxx<br />
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Also, some people already know, that these will be my last transplant games. There are a few reasons, mainly that I am tired and exhausted pushing my body sometimes training 5 times a week. I also feel that a new chapter in my life has begun, and I would like to try new and different sports/challenges. My eyes have been opened since joining Essex Boot Camp to military style outdoor training and activity days out. Also, massive thanks to EBC being my sponsors for World Tranplant Games.<br />
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I have already put myself forward for Rat Race (May 2014) which I'm doing half the course consisting of 13 miles and 150 obstacles. I know I can't run this and do the obstacles as my puff will go. So, have already said to myself I will walk 13 miles and attempt as many of the obstacles as I can. I will also be doing a 10 mile run (jog/walk) with an inspiring heart transplantee friend John Fisher who lives in Sweden. John and I will discuss later this year whether we do a 10 mile run where he lives or in the UK, again for 2014.<br />
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I have also signed up for a 6 week pole dance course in September and if I am any good will keep this going aswell at the bootcamp. I want to now enjoy exercise for keeping fit/fun. I do not want to push my body with competitive sports to an extreme and to lead a normal life exercising 2-3 times a week and not 5 or even sometimes 6!<br />
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The transplant community is still a BIG part of my life and always will be. I hope to maintain social events within the transplant games/be a spectator and carry on raising awareness on Organ Donation and LAM disease.<br />
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By having more 'me' time, I hope to finally try and resume my biography which is taking like forever as I am always SO busy!!! I also think it is about time I had time to meet someone too. My lifestyle has been that it's too manic to contemplate a boyfriend and even my social life with friends has taken a knock back as if I am training, I cancel a lot of fun times out.<br />
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This Needs to change, and after competing in UK, European and now my 2nd World Games (South Africa) - it is time to retire as an athlete, lol. Time for me to get my life back and have time for other things to pursue :)<br />
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Lastly, TNLAR - The National Lottery Annual Run which took place on Sunday 21st July, a 5 mile run ending up in the Olympic Stadium. It was a truly amazing day, and something I was urming and umming about actually doing as so close to flying to South Africa. In the end, I was like what the hell - a chance in a lifetime to end up running in the Olympic Stadium. Also, a great bunch of people from EBC going too. I was in the pink wave starting last, and was happy that I managed to changed waves to a faster group (not that I would or could be faster) hahaha. But, nice that I was able to start with most people in this wave already.<br />
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<tr><td class="tr-caption" style="text-align: center;">at start of race</td></tr>
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The first 2 miles I was all gung ho, here I go - and funny as everyone run way past me and then I saw EBC peeps the other side approaching me. I had thought just step across a cut a mile out ;) But, kept going and by the time I had been where they was and saw me. I was like, WOW, these people are fast and had done 2 miles to my almost 1 mile!<br />
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<tr><td class="tr-caption" style="text-align: center;">pit stop required mile 3 </td></tr>
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Quite apt I saw this on a wall as we were running (me walking) as in the photo below<br />
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<tr><td class="tr-caption" style="text-align: center;">running to mile 3 right, running to mile 4 on left side</td></tr>
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The atmosphere was electric and also with music/bands at various points on the circuit. When I felt a lull, the music really did lift my adrenalin and another short burst before my puff needed to be resumed.<br />
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You know I am in awe of my friends and those who can run for miles and miles and don't need to stop to breathe. What does that feel like to do this?? What does it feel like to run and run and run and keep running and not struggle? I know it's daft I'm just wanting to be able to run a mile non-stop, this still hasn't happened...I will NOT give up and keep trying. Just, I never know from one day to the next how I will be. I am NOT a quitter and will live in hope :)<br />
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There were 11,839 runners on the day......find out later where I finished any guesses?<br />
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<tr><td class="tr-caption" style="text-align: center;">go go me.....</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">whoop here I am on the finishing track</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Wow, final 100m to go!!<br />
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Approaching the stadium, all runners were lead through a tunnel and the crowd noise was played through, I think from Mo Farah's race. So, upon entering the stadium and seeing everyone was a euphoric moment. I wanted to run, yet, I also wanted to take pics on my phone!!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">at end of race</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">medal :)</td></tr>
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So.......I ended up from 11,839 runners coming in as position 11,807 being 32nd from last in 1 hour 26 minutes and 06 seconds!! I was happy with that, and it averages out as 17.2 minutes per mile. One EBC chap did his run in 33 minutes (Pete) truly amazing!!!! WOW!! A great day and thanks also to my parents being there too to watch.<br />
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Finally, I also celebrated my 7th year post double lung transplant on July 9th in National Transplant Week this year. I was busy also trying to raise awareness and I appeared in 3 newspapers (The East Anglian Daily Times, The Essex Chronicle and The Chelmsford Weekly News). It was also amazing to meet para-Olympian Danny Crates for an hour long radio interview BBC Essex Inspirational Essex show.</div>
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<tr><td class="tr-caption" style="text-align: center;">hate seeing how I used to look in the middle :(</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Today I am happy</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">special cake made for me :)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Jo and Barry Laymond, my parents</td></tr>
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To be an Organ Donor please click on this link <a href="http://www.organdonation.nhs.uk/how_to_become_a_donor/">NHS Organ Donation</a> Thanks :)</div>
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Well, from what intended to be a short update as usual has become an essay, apologies. Whatever my outcome upon returning home from South Africa - I am winner as alive, any medals just a bonus of that. Obviously, it would be a nice way to retire with a medal - otherwise I will happily accept chocolate medals from you all :) xx</div>
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Over and out gorgeous people xx</div>
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Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com1tag:blogger.com,1999:blog-9054641035799066265.post-73073835197113126692013-07-04T02:49:00.004-07:002013-07-05T04:23:45.827-07:00Lactic RushHow about a normal casual Sunday morning...waking up for a coffee and a bowl of cereal, newspapers, lazying about in bed. Having a nice chilled out day. Not Me! I was about to set upon another challenge, called, Lactic Rush - a 7 mile course with 30 obstacles. In the end, it turned out to be a distance of about 9 miles. I was totally exhausted and unable to move upon returning home.Standard for a Sunday, lol.<br />
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So, the build up to this event was seeing me trying to accustom my body to a 7 mile distance with interval training over a period of weeks leading up to Lactic in May. Thanks to all my friends who helped me out, and for the coffee/food chats after. It was not easy, and at times very frustrating and as usual wishing that I was able to run continuously without having to stop. I think the most I achieved in interval training was approx 5 miles and then having to walk the rest due to exhaustion.<br />
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The power of the mind is a great tool, and my determination always wins and sees me through. You will hear more about this, especially taking part in Lactic Rush.<br />
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I had no idea what the course route would involve except knew to expect mud and water. I have a fear of water too and know my lungs restrict (the airways close) as the cold goes into chest. But, I was still not deterred as knew I could walk round instead of entering any water obstacles.<br />
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The first part of the course I did try my interval training of jog/walk, but after so many obstacles and a constant moving into low ditches to coming out high was utilizing my energy. So, I totally gave up running and walked the whole way - if I felt a little burst - I would try for like a few seconds, lol. <br />
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<tr><td class="tr-caption" style="text-align: center;">and looks like I am stamping ants at the warm up taken by Glynn</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Here we go through the mud</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">swamp like most of the way round</td></tr>
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I have included some photos taken to show what it was like and some of the layout that followed. You will see that it was not easy and I was left behind by most, hahaha.<br />
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Scott Smith and I and below his story</div>
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<span style="font-size: x-small;">This information was taken from Scott Smith's justgiving link.....6 years ago at the age of 28 I was diagnosed with bowel cancer. After a rather large operation and 6 tough years of recovery, I am now at 34 stronger than ever!</span></div>
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<span style="font-size: x-small;">I am competing in Lactic Rush (a 7.5 mile cross country run and assault course) simply because I never thought I would ever be able to do something like this. Surviving Cancer has taught me that if you put your mind to it, you can achieve anything.</span></div>
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<span style="font-size: x-small;"> I wasn't running for a charity simply for my own sense of achievement. A few people began to say that they would like sponsor me, and couldn't think of a better charity.</span></div>
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<span style="font-size: x-small;">I was one of the lucky ones who because of these charities and all their hard work was diagnosed early. Allowing me 6 years later to do something stupid like compete in Lactic Rush! (The first of many such events I plan to complete in 2013) Unfortunatley not everyone is as lucky as I was. If you can your donations will not be to support a worthy charity but to also show my son that anything possible. It will also be a donation to honour the people close to us we have all lost to Cancer.</span></div>
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Scott and I started chatting through Facebook, and even though our journeys have been and were completely different, a sense of mind connection through the various emotions one feels experiencing a scary illness. It was great to meet Scott and I get inspired also by people and thanks Scott. Keep Rocking! :)</div>
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<tr><td class="tr-caption" style="text-align: center;">Sam and Craig who helped me towards the end of Lactic</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">See me....trying to slim down through the tyres</td></tr>
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The course was almost over, and my energy levels were totally deflated and my puff on it's last legs almost, such a long route and draining me. The marshals were amazing and kept coming round to check I was ok as I was mostly on my own and so far behind everyone else. I was being offered water and chocolate too :)<br />
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I was also being offered alternative routes to cut shorter the distance and to avoid obstacles. In the end out of 30 obstacles I only missed out 4. The main one that concerned me was going down a slide into a muddy water pond. I can't get any mud or dirty water in my lungs...so that a definite no no! There were also large mounds like little mountains and I was told to walk round them. I said no....got a few shocked looks, hahaha....and up I went.....phew...puff...gasp of breath......but I got there and went down the other side smiling :)<br />
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<tr><td class="tr-caption" style="text-align: center;">Thumbs Up on the haystack :)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">YAY! Getting to the finish line!!!!!</td></tr>
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Thanks to the other bootcamp chaps Sam and Craig (from their own bootcamp site) helping lots at the end. I guess I knew I would be on my own and had a couple of people with me at the start. But, I did say go on as I would not be able to keep up. At times, I got upset and frustrated but used that mentality to keep me pushing and get to the finish. I was over 3 hours completing this race and the slowest female (no surprises there) and lunch time had way passed. I just want to finish! I am NOT giving up!<br />
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At one point there was another group of people helping me and even waiting for me until I arrived at some obstacles to see me through. One I actually walked in the water and then turned round to walk out. I don't know who this man was...but he encouraged me to turn back around and try. It was my most fear and a river neck deep and I knew my breathing would struggle.......he knew about my transplant, and actually helped me and coached me how to breathe each time the cold got into my lungs. He could see me I guess panic or breathing go shallow and was amazing....... I actually managed to get to the other side. Even the marshal was gobsmacked.<br />
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Thanks to those who waited for me to finish. It was great to also see Glynn and James the EBC directors wave me in :) And thanks also to Mike and Judit who made sure I was ok and got me a hamburger as I hadn't eaten for a long time. Thanks :)</div>
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Also, massive thanks to Rebecca who drove me there and back and even made me the most amazing chocolate cake as you can see in the photo below!! YUM!!</div>
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It's true to say, exhaustion upon returning home and the next few days was inevitable as I had put my body through a lot. However, as usual another huge achievement ticked off!<br />
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Well, soon I depart for South Africa on July 25th to compete in the World Transplant Games as part of Team GB/NI. I will write another little journal in the next couple of weeks. If anyone would like to still donate please click on this <a href="http://www.justgiving.com/JUSTINE-LAYMOND2/eurl.axd/d713cf5489d06646b7936899b8f74faa">justgiving link</a> thanks for Transplant Sport UK.<br />
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Thanks for everyone's support and to all at Essex Boot Camp - so glad I have found this fitness group.<br />
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Over and Out lovelies<br />
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Much love as always xxxJustine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-45899754029697274792013-03-08T05:09:00.002-08:002013-03-08T07:12:51.551-08:00Survival of the Mind<div class="separator" style="clear: both; text-align: center;">
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I am not sure where to start as so much to write about this time round. From updating on my 30 day Paleo food challenge, and an All Day BootCamp I participated in, a recent hospital check up, and a fitness challenge in conjunction with the 30 days of paleo.<br />
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Phew deep breathe and let me begin.....<br />
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Me, "I wish I could be like everyone else" to Lisa (fitness instructor at EBC), "..you are, you work to your body's max ability". Just feeling a little down when partaking in a recent all day bootcamp event and seeing everyone run faster and way ahead of me, and able to breath and run continuously. On Sunday, 24th February I took part in a challenge at Bentwaters R.A.F to test my mind and fitness.<br />
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<tr><td class="tr-caption" style="text-align: center;">Essex BootCamp all Day event 9am-4pm</td></tr>
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I know, I have done many crazy things but not endured a day of full on fitness. I have been very excited leading up to the build up of this, and also anxious as to how my body will cope for the whole day. I am NOT a quitter as most people know, yet, I also need to be sensible and listen to my body when enough is enough. On the morning on arrival to say I was crapping myself an understatement! Massive thanks to Mike and Judit who collected me at 7am (there is no way I could have driven home after, due to complete exhaustion - so was very grateful). Alarm was set for 6am, but, I had little sleep and woke up to delightful bags under my eyes and continued my morning with porridge and decaf coffee (real coffee once the road trip began).<br />
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I wasn't going to pay attention to the paleo/eat clean today, as was more concerned I got enough calories in me and for my health. Thankfully, the instructors were encouraging this too, and I tasted a flapjack being passed around in the morning.</div>
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The first part of the morning was a timed mile circuit...hahahahaha...I was thinking how long have you got? When, James (EBC instructor/director) said for me to start the opposite way and as soon as I see someone to run back again. Phew. Stop start stop start, breathing, breathing, start and beamed smile of relief as I saw Mike and then turned back to finish. Followed by a minute of press ups, sit ups, and maybe something else (can't remember now), to see how many we could do in a minute. Think I did 20 press ups, and 17 sit ups in a minute - not much compared to other people - but working to my ability.</div>
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Then team tasks running up/down bunkers and doing more exercises, OMG, running hard enough for me - but even when roads steep, but, an upright bunker...........yer yer I was a red faced flushed almost tango-ed puffed up Jussie! Also adding to this, carrying logs and doing various exercises with these to.</div>
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<tr><td class="tr-caption" style="text-align: center;">running with Lisa EBC instructor</td></tr>
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Two teams were split into carrying equipment:- tyres, sandbags, heavy ruck sacks and cans weighing heaven only knows and other bits to carry a distance and assemble and fire at a landmark. Then repeat, repeat, repeat......oh lalalala. Then next task, being covered in camouflage make-up some ladies had Glynn (instructor/director) with his fingers over their faces..why not mine, hahahaha.......perhaps not me thinks ;) Then hiding in the woods and it was commented upon that I would be like a beacon, but, I wasn't found first! I laid down on the ground behind some bushes and when I was finally noticed I definitely was camouflaged up as my hair resembled a twig/leaf/nettled/leaf head which I pulled all the pieces out to become Red......<br />
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Whilst one team were finding some of us in the woods, the other group were doing a stretcher run task. Thankfully I had a couple of goes lying down whilst being transported with other people carrying me - I closed my eyes and shouted words of encouragement. RED is my nickname in bootcamp as in Red Fraggle from Fraggle Rock</div>
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Now...NO laughing with comparison please!! Hey, I said no...........damn you people, trust me to be compared to a stuffed puppet and perhaps a slightly mad one too!!</div>
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LUNCH time consisted of beef, veggies, potatoes and a little bit of apple strudel/custard with a fruit/nut bar I made added in. Being seated, I began to feel my body sink, but, still the endurance course to do. Changed my socks to seal skinz as aware we were going through a pond and will get wet!! Re-filled my water bottle, changed my top, bit of deodorant and time to rock n roll. Well, not quite.... get shouted out like in the military and line up and follow orders. I daren't be cheeky this day or speak as knew punishment would follow, it happens also at bootcamp but bit more banter at the hour long sessions. Today, was stricter for a purpose to be a mind set and keep going, not to give up, and at some point in the day the challenge will be when you want to give up - but the power of the mind keeps you going....Survival of the Mind. Boom!</div>
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The afternoon was filled with an endurance obstacle course, and initially being showed round the route. It felt like a work out to jog (in my case walk) and try a few of the obstacles, I was actually tired now and puff running on low reserves, and knew I needed stop and rest before the actual get go.</div>
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<tr><td class="tr-caption" style="text-align: center;">fell over as charged through the tyres</td></tr>
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It was a timed event, but, I cut mine short after the 'pond' scenario.......</div>
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I was amazed I was still going, albeit at my own pace, and far far behind everyone else, and taking lots deep breathes and breather breaks when required. Determination to keep going - my mind staying strong and focused. Even though, my mind IS strong - I do have to listen to my body too. </div>
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So the last challenge being walking through a chest deep ice cold pond. It was asked how I would cope if my lungs/me went into shock doing this. I said, I don't know until I try! Geesh, I am crazy - I just thought don't hesitate and I went straight in and the more I walked in and felt the cold go into my lungs..sheer horror filled me next. It is almost impossible to describe, but, I suddenly felt that I couldn't breathe as the cold tightened my lungs and unable to restrict. Panic and fear and a sense of helplessness, and hearing Glynn telling me to keep going. I knew I had to do this otherwise things would have got a lot worse. The element of the mind came in and I thought I must keep moving before collapsing or anything. The state of panic and gasping to breathe afterwards made me hysterical with tears, and trying to breathe and feeling freezing cold - not a pretty site. Thankfully, another instructor (Johnny) walked back with me the rest of the way (cutting the final distance short). I cried the whole way back and with lactic acid build up in my legs too - hobbling, crying, cold, frizzy hair - so glamorous eh ;)</div>
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BUT, I DID IT!!!!!!!!!!!!! Another achievement - thank you very much. I would perhaps consider this type of day event again, but, NO way through that pond (unless summer time). Not worth putting me at a risk again. No regrets doing it now, as I like to throw myself in at the deep end...literally! lol x</div>
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And as always a MASSIVE thanks to James and Glynn, and to all the instructors who are excellent at what they do, and supportive working with me. xx</div>
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So now an update with the Paleo food 30 day challenge which has ended now. If you are unsure what I am talking about, my previous blog mentions what this is and why etc. I am quite proud how I managed to keep this going (minus my birthday blip - but I did bootcamp 4 times the following week to make up for it). I haven't missed cheese, crisps, coleslaw, all the sauces that I added to food mayo/ketchup/mustard/pickles/salad cream - you name it - I had it and I used it. After the 30 days, I did have a binge and ate everything that I wasn't allowed during this period, and surprisingly to me, I felt like a food snob. Ohhhh, I don't like that, ewww that tastes nasty. Amazing to think how much difference there is from fresh foods to how processed/convenience foods taste. I even bought 2 packet of what used to be my favourite crisps (onion rings and kettle crisps cheddar flavour), and I couldn't be more repulsed! I am shocked if I am honest, and actually really have enjoyed the challenge. </div>
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Moving forward, I realise I will not be able to keep this up 100% but would like to try and adapt elements of this into my lifestyle. I have stocked up on coconut oil, almond nut butter and will cook more now too from scratch (time allowing).</div>
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Here are some more photos of the sort of foods I made and ate in this duration (more examples on my previous diary entry)</div>
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<tr><td class="tr-caption" style="text-align: center;">Fruit and Nut bar - no sugar </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">lamb chop, parsnip chips, spinach, guacamole</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">pork goujons coated in mixed seeds/coconut/piri piri seasoning</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">homemade burgers,sweet potato mash,beansprouts/salad</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">sweet potato rosti's with onion/red pepper, burger, egg, veggies</td></tr>
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Throughout this month, my shape has changed and an inch sometimes more have gone from various parts of my body, totally 7 inches of fat gone! WOW!</div>
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The Paleo 30 day challenge also involved a fitness test at the start of the month, and one to be completed after the duration. I am gutted, that I missed this due to my body not feeling 100%. There is NO point pushing, when simply I cannot. I do have to listen to my body and how I feel inside (lungs). I only hope that my time would have improved and that I would have been able to knock some minutes off. </div>
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And now the final part of my journal, that of my check up at the infamous Harefield Hospital (my 2nd home).</div>
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I joined Essex Boot Camp around Oct/Nov time last year, and I have really pushed beyond even my own limitations - through sheer determination and an attitude to keep going. Some sessions, I have really struggled, and even my breathing has been an issue (some tears - not in the eyes of the instructors). But, stubbornness to keep striving and keep going keeps me motivated. I would like to see improvements from my results at hospital, but, I guess if no changes, I will feel deflated - but, also I know that if this IS the case, it will NOT stop me from continuing!</div>
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But, I was amazed when all tests completed and seeing my doctor in the afternoon, to a WoW, your lung function is amazing/high...or something to that effect and a big smile on her face telling me the news. My FEV1 which measures the forced expiratory volume in the first second has been the highest ever since my transplant! It is the volume of air that can be forced out in one second after taking a breath, an important measure of pulmonary function. I am supposed to do a daily spirometry reading myself and if a 10% decrease could be signs of an infection/rejection. My FEV1 over the years has averaged at about 1.80/1.90. <b>Today it was 229!</b> Last year, there have been small increases in-between each visit 1.80, 2.04, 2.08 (November 2012). But, my Doctor couldn't believe at the increase today of about 8%! I guess the, 'wow' in respect that this is NOT common after all these years to have a significant increase from 180 to 229!</div>
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We talked about my breathing issues too, and I queried why if my lung capacity has increased why I still struggle, then OB was talked about again. A new condition I was diagnosed with, Obliterative Bronchitis which is a progressive disease and over time closes down the airways making it difficult to breathe. At the time of diagnosis, medication was discussed to slow down the progression and I didn't want to (I take enough meds as it is) and hoped exercise would help, and it has! Obviously, if it gets to the stage and I do start to notice a decline I will happily take more pills. But, I have found a remedy that works for me for the short term, to keep exercising to keep my lungs working.</div>
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Then, the question was asked....'what am I doing?' I said, 'bootcamp'. My doctor's face looked aghast and her mouth dropped, silence followed...... and I'm sure in that silence she was saying to herself, WTF, OMG, what a crazy mo - fo!!! But, no words did appear and finally nervous and approving laughter filled the room, and then she told me to keep going :)</div>
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<a href="http://3.bp.blogspot.com/-wlQibwHwz_c/UTnemSypniI/AAAAAAAABz4/3Yv_T1raDxU/s1600/IMGP3410.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://3.bp.blogspot.com/-wlQibwHwz_c/UTnemSypniI/AAAAAAAABz4/3Yv_T1raDxU/s320/IMGP3410.JPG" width="180" /></a></div>
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So there you have it!!! Finally, I celebrated my 40th Birthday in February, and above shows me acting all 'my age' ;)</div>
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Please keep smiling, and keep striving - even when you feel the odds are against you. I will never give up or quit, and always a fighter. Lots of love to you all with happy sprinkles ontop. xxx</div>
Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-1845717591055673732013-02-07T08:56:00.000-08:002013-02-07T08:56:02.313-08:00Green,Lean,Fighting Machine<span style="font-family: Georgia, Times New Roman, serif;">Hey everyone,</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Hope you are all well and groovy. Another blog of a different kind - but one to do with Food! For those who know me well and have been following my diary entries here about my life and health, and crazy challenges. Welcome to 30 days of 'Eat Clean', set up through <a href="http://www.essexbootcamp.co.uk/">Essex Boot Camp</a> that I have become somewhat obsessed with, lol.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Not only is the exercise regime great (if somewhat exhaustive on my lungs), but the instructors and people who also participate are truly fabulous. Now along with going 2-3 times a week and now my shot putt/discus training once a week and badminton training during the week too. Now......I am focusing on this food challenge which is a paleo way of eating. For those unsure the following explains what it is......</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">Information taken from <a href="http://www.practicalpaleoliving.com/what-is-paleo/">Paleo</a></span><br />
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<span style="background-color: white; color: #313131; font-family: Georgia, Times New Roman, serif; line-height: 15.59375px;">Paleo is short for Paleolithic, and the premise of a Paleo diet centers around the idea that our bodies have not adapted sufficiently to eating foods that weren’t available to us 10,000 years ago. It is thought that more than 70% of food consumed today was never available in Paleolithic times. We put so much processed food into our bodies; most which is unhealthy. The advances in agriculture and mass food production have caused us to move away from eating real food; food meant to work with our bodies for optimal health.</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;"> A Paleo diet involves eating meat and vegetables, nuts and seeds, little starch, some fruit and no sugar. It means no grains, legumes, dairy or alcohol. It means staying away from all processed foods.</span><span style="font-family: Arial, Helvetica, sans-serif; font-size: 12px;"> </span></div>
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<strong><span style="font-family: Georgia, Times New Roman, serif;">What about fat? How will I get energy? </span></strong><span style="font-family: Georgia, 'Times New Roman', serif;">Fat is a much more powerful fuel for our bodies than sugar and starch. Picture fat as the slow-burning log on the fire and sugar is like paper, which burns very quickly. Basically you can get enough of what your body needs from Paleo diet to thrive just as our ancestors did before bread, bagels, pasta and cake became part of today’s diet. </span></div>
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<strong><span style="font-family: Georgia, Times New Roman, serif;">What about Canola Oil and other Fats? </span></strong><span style="font-family: Georgia, 'Times New Roman', serif;">Canola, soy, corn and other vegetable oils are highly-processed and were not available to our Paleolithic ancestors. These monounsaturated oils are very heat sensitive and the high heat they are exposed to during the extraction process renders them toxic to the body. This leads to free-radical formation and can cause inflammation. A diet high in these oils can damage our cell membranes, which need saturated fats. In addition, when we eat healthy fats, our gallbladders send a message to our brains telling us that we’re full. People who eat low-fat foods high in vegetable oils (instead of natural, saturated fats like butter), don’t receive the critical message from the brain, “I’m full”, so they tend to overeat. Most fats consumed by people today come from these unhealthy oils, trans-fats and from omega-6 fats. </span></div>
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<span style="font-family: Georgia, Times New Roman, serif;"> Numerous studies have concluded the following results for those on a Paleo diet:</span></div>
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<li style="list-style: disc outside; margin: 0px; padding: 3px 0px;"><span style="font-family: Georgia, Times New Roman, serif;">Weight loss</span></li>
<li style="list-style: disc outside; margin: 0px; padding: 3px 0px;"><span style="font-family: Georgia, Times New Roman, serif;">Improved glucose tolerance</span></li>
<li style="list-style: disc outside; margin: 0px; padding: 3px 0px;"><span style="font-family: Georgia, Times New Roman, serif;">Lowered blood pressure</span></li>
<li style="list-style: disc outside; margin: 0px; padding: 3px 0px;"><span style="font-family: Georgia, Times New Roman, serif;">Significant reductions in total cholesterol, low-density lipoproteins (LDL) and triglycerides</span></li>
<li style="list-style: disc outside; margin: 0px; padding: 3px 0px;"><span style="font-family: Georgia, Times New Roman, serif;">Increased feeling of satiation</span></li>
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<span style="font-family: Georgia, Times New Roman, serif; line-height: 16px;">Enjoy the photos of my food shopping and some examples of paleo food meals I've done :)</span><br />
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<tr><td class="tr-caption" style="text-align: center;">gluten free oaks,coconut milk,sultanas</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">banana,protein powder pancakes,spinach,berries</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">smoked salmon salad with satsumas and seeds</td></tr>
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<span style="font-family: Georgia, Times New Roman, serif;">OK so history lesson over...... So why am I doing this too? I think if I can focus on my exercise and food combined - it will surely benefit my health. I know this is for 30 days, but, I already feel that I would like to adapt this moving forward after the 30 days.</span></div>
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<span style="font-family: Georgia, Times New Roman, serif;">How has it been so far? Well, I started a day early and now have been eating clean for 8 days. The key is preparation and lots of so you know what you are eating for all meals and even the next day. It is hard doing this and making the time, and more washing up than I've ever had before!! I do really enjoy eating fresh foods and this lifestyle. But, I would be lying if I say that I am not missing some foods - mmmm...macarooni cheese....drool. And on day 6, I was feeling like I needed a few cubes of chocolate, but, I never did. I guess having no sugar is difficult and the only sweet flavour I get is from cinnamon and coconut shavings, and a handful of sultanas. Do I write that I actually went crazy for sugar withdrawal that day on here......opening and closing cupboard doors, checking my freezer for chocs...ahhhhhhh......short of climbing walls and pulling my hair out, lol. I have since realised that sugar is a BIG addiction, and my body is trying to do without.</span><br />
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I have had great meals and also some disasters, my first attempt at making paleo pancakes was a pile of slop - but still tasted good. Also, I made 2 meals in advance turkey, sweet potatoes, vegetables (photo above as in wok) - then left pan on with the hob off, but it still cooked through (as the hob was still hot). I ended up burning the base of my pan and my food smelt burnt all the way through - and had to bin. Gutted and a waste :( This was the weekend I was going away to a Team GB training and my advancement preparations went belly up! In a panic in the morning, I opened a tin of tuna and filled a tupperware also with salad, packed avocados, fruit and ended up buying cooked chicken on the way and a bag of lettuce!</span><br />
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I think it's important to have variety too as otherwise this could get boring and motivation slowly go. I have cut out caffeine, and for this regime also no alcohol (not that that affects me - 1 shot baileys in like 2 months ..lol), no fizzy drinks (again not a bother for me), no dairy - but can have almond or coconut milk, no cereals (bye bye coco pops and chocolate milk from it, fruit and fibre etc) - but ok to eat gluten free oats (but expensive)!!</span><br />
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<span style="font-family: Georgia, Times New Roman, serif;">I have seen my friends eat chocolate, crisps, and sweets in my face and make extra loud noises with their wrappings of these sugary bad boys....</span><span style="font-family: Arial, Helvetica, sans-serif;">.It is difficult to watch and I know I have done well so far. I am having a fundraiser event this Saturday and also my 40th celebrations, and have said in advance my only sin that night will be cake...but I am prepared for any punishment at bootcamp.</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">This is not a diet, but a different food lifestyle and one I am embracing for this duration. Keep eating your naughty foods and think of me being pure and heavenly ;)</span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Thanks lovely people and I will write again perhaps at the end of the 30 days or before if I need help through my cravings. Peace, love, protein powder, green beans and I'm outa here xx</span></div>
Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-88189575945605895092013-01-17T12:36:00.001-08:002013-01-18T01:08:34.380-08:00Life Begins at 40:Time for ChangeI am beginning a new chapter in my life, turning 40 on February 12th and they say life begins at 40 or is that 50? lol. I have been thinking a lot, over many weeks, months and the last year perhaps two, about new directions and what I want from life! I am in a very happy place and just believe I can be even happier :)<br />
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My focus as most people know has been on the transplant games:- British, European and World Games; raising awareness globally on Organ Donation and LAM disease; networking with people across the globe with other illnesses/pre and post transplant; making friends, and achieving challenges (that most people fit and well wouldn't even consider). Also, to finish writing my life story - still struggling with this - one day!!<br />
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I guess, I have reached a point whereby my outlook is different now, I have focused a lot on the transplant community, which I love dearly and all the amazing/inspiring people along the way. This has been for about 6 - 7 years now. Also, doing other goals such as last year in the Clipper 11-12 Round the World Yacht Race.<br />
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I push and train my body so hard, sometimes up to 5 times a week in various sport disciplines. I am left tired and exhausted from pushing my body a lot, and sometimes suffer from this. Having gone through LAM disease and my transplant and last year some may remember I was also diagnosed with Obliterative Bronchitis (OB) which is a <span style="background-color: white; font-family: sans-serif; font-size: 13px; line-height: 19.1875px;">rare and life-threatening form of non-reversible obstructive </span><a href="http://en.wikipedia.org/wiki/Lung" style="background-color: white; background-image: none; color: #0b0080; font-family: sans-serif; font-size: 13px; line-height: 19.1875px; text-decoration: initial;" title="Lung">lung</a><span style="background-color: white; font-family: sans-serif; font-size: 13px; line-height: 19.1875px;"> disease in which the </span><a href="http://en.wikipedia.org/wiki/Bronchiole" style="background-color: white; background-image: none; color: #0b0080; font-family: sans-serif; font-size: 13px; line-height: 19.1875px; text-decoration: initial;" title="Bronchiole">bronchioles</a><span style="background-color: white; font-family: sans-serif; font-size: 13px; line-height: 19.1875px;"> (small airway branches) are compressed and narrowed by </span><a href="http://en.wikipedia.org/wiki/Fibrosis" style="background-color: white; background-image: none; color: #0b0080; font-family: sans-serif; font-size: 13px; line-height: 19.1875px; text-decoration: initial;" title="Fibrosis">fibrosis</a><span style="background-color: white; font-family: sans-serif; font-size: 13px; line-height: 19.1875px;"> (scar tissue) and/or </span><a href="http://en.wikipedia.org/wiki/Inflammation" style="background-color: white; background-image: none; color: #0b0080; font-family: sans-serif; font-size: 13px; line-height: 19.1875px; text-decoration: initial;" title="Inflammation">inflammation</a>. <span style="background-color: white; color: #323232; font-family: Arial, Helvetica, sans-serif; font-size: 13px; line-height: 20.734375px;">Some patients experience rapid loss of lung function and die in a few months. Others progress slowly, followed by prolonged stability.</span><br />
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<span style="background-color: white; color: #323232; font-family: Arial, Helvetica, sans-serif; font-size: 13px; line-height: 20.734375px;">I am lucky at the moment, as I have become stable and now know I can live for many years, and believe exercise IS helping me and my positive outlook and zest for life and living! And since, I have also met and spoken with people with OB even 20 years later on still alive! Regardless of this, transplant IS an extension NOT a cure, and I know every day, week, month, year - a real bonus. To still be breathing truly amazing! x</span><br />
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<span style="background-color: white; color: #323232; font-family: Arial, Helvetica, sans-serif; font-size: 13px; line-height: 20.734375px;">But, no one is secure - as a bus could knock me or anyone down. It's a lesson regardless really to live and enjoy life, as no one knows what is around the corner. Hence, why I also like to travel and see as much of the world as I can :)</span><br />
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<span style="background-color: white; color: #323232; font-family: Arial, Helvetica, sans-serif; font-size: 13px; line-height: 20.734375px;">Last year, about November time I joined <a href="http://www.essexbootcamp.co.uk/">Essex Boot Camp</a> and this has opened my eyes to a new form of fitness, which I am loving and getting more benefits than going to a gym or my other sports. From this, I have seen various types of other day events based on military/obstacles over a course challenging the mind and body both physically and mentally. I am excited by this, it is new to me, and I am meeting and making some lovely new friends. The transplant games I have done for so many years, and I have been thinking before bootcamp came into my life, that one day I would like to stop and try something new. </span><br />
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<span style="background-color: white; color: #323232; font-family: Arial, Helvetica, sans-serif; font-size: 13px; line-height: 20.734375px;">I am competing this year in the World Transplant Games, in South Africa, and have decided that these will be my last transplant games. It doesn't mean goodbye to the transplant community, as I love all the social aspects and the friends made through these. Just means, I am ready for something new maybe for the next couple of years. I will still go to the social events to party or maybe just watch everyone else compete at the Transplant Games, and cheer you on!! x</span><br />
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<span style="background-color: white; color: #323232; font-family: Arial, Helvetica, sans-serif; font-size: 13px; line-height: 20.734375px;">Also, being 40 soon and single, I think it's about time I found a nice boyfriend and looked at being happy with someone. The Transplant Games dominate my life so much when I do train 5 times a week, that my social life is affected and the romance side. I don't want that anymore. If I do other events just to keep fit and can have my life back, I know that will be more rewarding for me long term. I hope you are starting to understand a little bit more. As, I've said this is not a overnight rational outburst - this has been brewing inside of me for a VERY long time. And, I think going to South Africa will be truly amazing for me and a wonderful way to finish on a high and have fantastic memories. The friends made are friends for life!! And I hope those friends from abroad that we can continue to communicate and visit each other as and when possible. xx</span><br />
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<span style="background-color: white; color: #323232; font-family: Arial, Helvetica, sans-serif; font-size: 13px; line-height: 20.734375px;">So any nice man - looking for a crazy red head - holla!!! hahahahahaha xxx</span><br />
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<span style="background-color: white; color: #323232; font-family: Arial, Helvetica, sans-serif; font-size: 13px; line-height: 20.734375px;">Life is a constant learning experience and I feel like a sponge trying to take up as much as I can. I will always strive to raise awareness, that is a deep rooted passion of mine. I love my friends dearly and that will not change.</span><br />
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<span style="background-color: white; color: #323232; font-family: Arial, Helvetica, sans-serif; font-size: 13px; line-height: 20.734375px;">Being 40 means time for change, and welcome to new exciting chapters in my life. I am hungry for something new, and already know a challenge I will train up for after the world games </span><br />
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<span style="color: #323232; font-family: Arial, Helvetica, sans-serif;"><span style="line-height: 20.734375px;"><a href="http://www.youtube.com/watch?v=azQbiz2vm_Q">Tough Mudder </a></span></span><br />
<span style="background-color: white; line-height: 20.734375px;"><span style="color: #323232; font-family: Arial, Helvetica, sans-serif;"><br /></span></span><span style="background-color: white; line-height: 20.734375px;"><span style="color: #323232; font-family: Arial, Helvetica, sans-serif;">Check the link out!!</span></span><br />
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<span style="background-color: white; line-height: 20.734375px;"><span style="color: #323232; font-family: Arial, Helvetica, sans-serif;">Ok lovely people - roll on 2013 and the start of a new journey in my life - are you ready!? Because I AM!!</span></span><br />
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<span style="background-color: white; color: #323232; font-family: Arial, Helvetica, sans-serif; line-height: 20.734375px;">Much love as always xx</span>Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com1tag:blogger.com,1999:blog-9054641035799066265.post-3903344187046718332012-12-29T14:33:00.001-08:002012-12-30T04:00:49.771-08:002012 What a Year!!So the year is nearly over, and WOW what an eventful year indeed. So many achievements, awards, medals and so on. It has been worth it amongst the health blips over the year. Having a transplant is a life extender, but not a cure as it comes with it's own issues to deal with and fighting when the immune system is low. However, I would not change anything for the world - as it HAS given me life and longer days, months, and years. I still do not take anything for granted, and realise each new day IS a bonus, and one I am so grateful and appreciate my donor for this opportunity.<br />
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I decided to mention some items in the months whereby things have happened as follows, and then summarising at the end. Like Jerry Springer's final thoughts - though mine without all that drama ;)<br />
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<b><u>April</u></b><br />
Awarded as a Chelmsford Sports Ambassador 2012-2013<br />
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<b><u>June</u></b><br />
Clipper 11-12 - started my challenging round the world yacht race (leg 8) over 4,000 sea miles<br />
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<b><u>July</u></b><br />
Clipper 11-12 - completed my leg in the sailing race and making history as the 1st woman with a double lung transplant to have sailed the Atlantic Ocean.<br />
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6th Year Post Double-Lung Transplant - celebrated at sea (well, was too ill to do so, so had a welcome home sailor tea party and celebration of life back home and with thanks/memory to my donor).<br />
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<b><u>August</u></b><br />
British Transplant Games<br />
Silver Badminton Doubles<br />
Bronze in:- shot put, javelin and discus<br />
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<b><u>September</u></b><br />
Awarded the European Lung Foundation Award<br />
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<b><u>October</u></b><br />
Awarded Winner in the Active Chelmsford Sports Personality of the Year.<br />
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Awarded Winner in the Harefield Hamsters (from my hospital that specialises in transplants) Special Award for my sailing in the Clipper 11-12 race and raising Organ Donor Awareness across the globe<br />
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<b><u>November</u></b><br />
Awarded as a Runner up in Essex Chronicle Sports Star of the Year.<br />
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Awarded as Top 5 Daily Mail Inspirational Woman of the Year Award, which had over 1,000 entries. I felt very humbled to be recognised for all my achievements and to meet Samantha Cameron at No:10. My previous journal I wrote more about this amazing experience.<br />
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<b><u>Final thoughts</u></b><br />
So, as you can see it really has been quite an eventful year for me. The best news was learning that LAM disease has not spread to my brain, as initially the doctor looking into this, thought I may have a tumour or a stroke as LAM is a circulatory condition affecting various organs. All this due a regular eye test, that followed up with more investigations showing my left eye re: it's circulation had slowed in one eye and looked very different with photos taken to my right eye. Anyways, besides that and being poorly for a couple of months after my mammoth sailing experience...another lucky year for me and I'm still alive!!!!<br />
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2013, I hope will be another great year, as I look forward to the World Transplant Games, in Durban South Africa (July). I will be training very hard and even if I come home without a medal, I know I would have given it my all, and simply being there IS a winner! Also, will I finally get to complete my auto-biography that is simply taking a lifetime to complete!? fingers crossed xx<br />
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A few mini challenges no doubt throughout the year too and my 1st one being on 6th January doing a 4K run with a lady from Essex Boot Camp (EBC), called Karen. And then another event with EBC later on in the month of February. I know I wrote a little bit about EBC in my last blog (at the very end of it), but I cannot recommend how amazing this is for all round fitness and well being. Please check their website <a href="http://www.essexbootcamp.co.uk/">here</a> thanks. I wish words could thank enough all the instructors that I have met so far, and the people that go too - what a load of lovely people! Thanks again to the directors Glynn and James.<br />
Also, thanks to all the other coaches Michael Kilbey, Brian MacKenzie, and to Chelmsford Sports Athletic Centre and Riverside Ice & Leisure Centre for the use of their facilities.<br />
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Almost time to round up my final journal for 2012. I do still think about all the friends I have lost this year and over the years, never forget, but time helps heal though. I just wish more people would sign the Organ Donor Register to help lives for the future. And I wish my friends still waiting - that no matter what organ they are waiting for, the wait isn't long. xxxx<br />
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I wish everybody good health and happiness, and hope all your dreams come true. Please live life and relish each day, it truly is beautiful and I am nervous and excited knowing that July 9th 2013, will be my 7th year post double lung transplant. I hope for good health and to make another year.<br />
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Lotsa love to you all, and to all the continued support from each of you's xxx<br />
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Roll on 2013!!! xxxJustine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com1tag:blogger.com,1999:blog-9054641035799066265.post-10629358305138500272012-12-18T14:35:00.003-08:002012-12-18T14:45:39.815-08:00Inspirational Woman Finalist<div class="separator" style="clear: both; text-align: center;">
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<span style="font-family: inherit;">Well, here we go finally blogging about making Top 5 Inspirational Woman of the Year (Daily Mail) after thousands of entries. I have to thank my parents who nominated me on the closing day of the competition. Little did they realise, that my story would see me make a finalist! When they told me, I was shocked and couldn't believe it and that I would get to go to 10, Downing Street and have lunch with Samantha Cameron. To say I was humbled and very overwhelmed would be an under statement. There are many inspirational women across the UK, I still couldn't believe one of them recognised was actually me!</span></div>
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<span style="font-family: inherit;"> For 8 years I have been campaigning as most people know on Organ Donation and LAM disease, one of the world's rarest diseases that brought about my double lung transplant. I have been communicating with people all over the world through social networks sites and email/letters and so on to give hope and inspire people. My website that was set up in 2005 was for just that purpose, as I remember all those years ago when first diagnosed with LAM - full name being, </span><span style="font-family: inherit;">lymphangioleiomyomatosis, <span style="line-height: 16px;">that there is no cure and you die. I was horrified and initially set up a website to let people follow my story as I fought painfully for my life. I always believed I would survive and would get a transplant (only in my dark days after being in a coma did I actually want to give up). However, my inner strength and determination after 15 lung collapses, 3 week coma, learning to walk again did I know I HAD real FIGHT in me. The surgeon also said, technically I was dead inside as there was no lung tissue left and hundreds of cysts</span></span><span style="font-family: inherit; line-height: 16px;"> destroyed both my lungs. I set about telling my story in the local press, then became national news. My website grew across the globe and eventually having over a million hits and messages from people across the world. Suddenly, everybody knew about me. I started this blogger site as a follow on from my website, and I have been journalling on here now for many years.</span></div>
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<span style="font-family: inherit; line-height: 16px;">For the years that followed until this present day, I have continued in the media UK + Globally raising awareness, and even when on holidays find myself in newspapers/magazines/TV and so on encouraging the 'gift of life' and educating people and medical teams about the rare condition LAM. I have also raised over £10,000 for charity.</span></div>
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<span style="font-family: inherit; line-height: 16px;">I always set about a 'self' challenge each year that I am still alive to achieve a new goal. This saw me travel through Europe on my own just one year after my transplant, competing in a Bupa Great South Run, training for the British, European and World Transplant Games winning over the years :- 23 medals (gold, silver and bronzes). Learning various new sports at the Transplant Games which I've competed in from:- sprints (100m, 200m and 400m, long jump, badminton, volleyball, squash, javelin, shot put and discus).</span></div>
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<span style="font-family: inherit; line-height: 16px;">This year (2012) was my most gruelling challenge entering the Clipper 11-12 Round the World Yacht Race (leg 8) sailing over 4,000 sea miles. Also, making history as the first woman with a double-lung transplant to sail the Atlantic Ocean. In Chelmsford, Essex where I live, my achievements were recognised and I won Sports Personality of the Year.</span></div>
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<span style="font-family: inherit; line-height: 16px;">So, seeing all this in writing and having a video made of my life (I need to find out how to transfer the disc given onto You Tube - so you can watch too, which was shown to around 300 celebrities in an evening event), actually made me cry. I guess I have achieved so much and done a lot to perhaps make me an Inspirational Woman. But, I am still very humbled and just happy with the recognition and being in the newspapers again will only continue my plight on awareness for the future.</span></div>
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<tr><td class="tr-caption" style="text-align: center;">Here I am with a make - over on the day :)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Here with the other finalists left to right :- Pam, Andrea, Shelley, Andrea and Me :)</td></tr>
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It was a very early start travelling to London for the awards event on 12th November and we all were to meet at the Marriott Hotel and for an overnight stay.<br />
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I set about resting up in my room, and heard a knock on the door......wow! A box of goodies complimentary arrived for each finalist.</div>
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On arrival Sanctuary treat box</div>
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<tr><td class="tr-caption" style="text-align: center;">Oh look at all the goodies inside</td></tr>
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I was to get changed and meet all the finalists and before I knew it, we were all being whisked away in a taxi to No:10 Downing Street!!!!! It was a rainy day and a short walk to get into No:10. I couldn't believe still this was happening! After many security checks - the big black door opened and we were led up some flights of stairs and posing for a photographer with Samantha Cameron herself. A lot of photos were taken inside and none allowed to be used or published. But, I am just using the photo that was used in the Daily Mail article and taken by Murray Sanders.<br />
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Day spent at No:10<br />
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As part of being a finalist, George at Asda sponsored all our clothes - and I got a day and evening outfit all free, not bad - eh!<br />
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It was all a busy day and after returning back to the hotel, dress rehearsals were needed before the evening. Next, having our hair and make-up done, it's a hard life ;)<br />
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Make over time and I was asked what 'look' I would like, I replied dramatic and big eyes and that I am not afraid of colour and lots of glitter..such a girly girl.<br />
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Transformation in progress......<br />
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Whoop...starting to become smiley and dramatic.....<br />
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<tr><td class="tr-caption" style="text-align: center;">oh so moody look ;)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Mum and Dad</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Nearly finished....</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Eh Voila</td></tr>
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And above captures the final image :)<br />
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With all the finalists again....<br />
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The empty room being transformed ready for the night. It was amazing how many staff were running around moving tables, chairs and decorating the room for the 300 guests that would be arriving in a couple of hours!<br />
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Emma Forbes running through her presenting schedule before the evening.<br />
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Rehearsing with Emma Forbes and James Cameron<br />
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Seeing how to be when get presented with award - dress rehearsals. It was amusing as Emma Forbes did want to say the full illness' name instead of LAM and I had to help her a lot. It wasn't pitch perfect but definitely better than most people can attempt ;)<br />
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The paparazzi set up ready for all the celebrities to arrive, and I wasn't sure where everyone was so just pretended to be a photographer and hung out waiting for all the stars to arrive, lol, naughty me!<br />
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<tr><td class="tr-caption" style="text-align: center;">Loose Women TV Presenters Carol McGiffin</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Michelle Heaton Singer</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Darcey Bussell Strictly Come Dancing</td></tr>
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So after snapping many photos - ooooh what fun, My Dad rang to ask where I was!!! Oops - so I found my way to a smaller room waiting until everyone could move to the function suite. I did enjoy being paparazzi for some time, and I did take many more photos of other celebrities, but, just uploaded a selection for here.<br />
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Some information of each of the finalists left to right, firstly Shelley and her charity called Grief Encounter. Shelley became a councillor working with troubled children , helping them deal with the complex process of bereavement. In 2003, Shelley started her charity to help children deal with the loss of a parent or sibling. It now provides counselling for hundreds of children a week, supports 3,000 young people a year and offers workshops, fun days, residential camps and more. Shelley, a mother of four, has become a leading expert and author on childhood grief and works tirelessly to raise public awareness and understanding of the subject.<br />
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We were told that were all winners, but that an overall winner was needed to be named as overall, and that was Shelley as above. I was very humbled by each woman's inspirational story and well done to Shelley!<br />
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Claire was diagnosed with breast cancer aged 38 in 1993. After going a mastectomy, chemotherapy and radiotherapy the cancer went into remission. Clare then joined The Women's Environmental Network and began campaigning for the removal of harmful carcinogens from the environment to reduce cancer rates. In 2004, after her cancer returned and she needed more chemo, Clare started her own charity, Breast Cancer UK. To date, Clare has helped ban the harmful chemical BPA from babies' bottles in the EU and the pesticide Lindane, among others.<br />
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Pam helps with her care and commitment in providing holiday homes for children suffering from life threatening illnesses and their families. Pam's 10 year old daughter Hannah lost her battle with cancer and died from Hodgkin's disease. As a tribute to her brave daughter, Pam decided to continue to raise money in Hannah's name. Since then she has spent her years fundraising to open 2 holiday homes on the South Coast, called Hannah's Holiday Homes, to provide a comfortable place for families with seriously ill children to relax and break the monotony of endless hospital appointments.<br />
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Andrea set up a centre called The Drop Inn a centre to help and educate local young people. In 1999 complaints about teenage behaviour causing damage to property and upsetting the local community in Belper, Derbyshire. Andrea took matters into her own hands and asked the local gangs what would keep out of trouble. The answer came back clear: something to do and somewhere to go. Within a year, Andrea had opened The Drop Inn, a youth centre providing education, training, work experience and activities for teenagers. On the first night, 80 turned up and since then 5,000 have passed through Andrea's hands, many of whom would not have secured a first job or passed exams without her help and dedication to the project.<br />
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Each woman I met and talked with was definitely inspirational in their own way, and it was an overwhelming array of emotions listening to each story and watching their video on the night.<br />
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My video being showed on 2 large screens to an audience of over 300<br />
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<tr><td class="tr-caption" style="text-align: center;">My Mum talking about me on the film footage</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">My Dad next to me whilst laying in a hospital bed<br />
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It was a blur really when my video was being shown......I covered my face as I tried to stop myself from crying. I saw footage that I hadn't seen from taking part in the Clipper 11-12 Round the World Sailing race, whereby I finally arrived in Ireland after crossing the Atlantic Ocean and was inconsolable with tears. That part of the race was extremely tough for me and becoming ever so sick and unable to eat or drink much. I nearly wanted to give up....but fought to get to the end of this part of the race.<br />
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Then I heard my name and it was time to collect my award and to have it presented by Sarah Storey - Team GB athlete!!<br />
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<tr><td class="tr-caption" style="text-align: center;">Sarah Storey Olympic athlete</td></tr>
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I was not going to let this opportunity pass me by and whilst talking on stage, I said something along the lines of, that there are over 300 people in this room...if everyone joins the Organ Donor Register that will go to save over 2,000 lives for the future!<br />
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Phew...food all consumed, awards presented, and Shelley winning overall inspirational women of the year, it was time to see if I could get some more photos of the stars (thanks to my Dad for snapping them). There were so many celebrities and just not enough time to picture everyone, but I certainly tried my best x<br />
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<tr><td class="tr-caption" style="text-align: center;">Kristina Rihanoff from Strictly Come Dancing striking a pose with me </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Charles Worthington Hairdresser liked my hair :)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Craig Revel Horwood - Strictly Come Dancing</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Let's Dance</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Darcey Bussell with Dad and I</td></tr>
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And that's a wrap.......</div>
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<a href="https://www.organdonation.nhs.uk/how_to_become_a_donor/registration/consent.asp">To become a Donor Click Here</a></div>
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And so there we have it, an event that I will never forget and always treasure. Recognition for all I have done and continue to do, and I will never stop. The next day we were treated to a day at The Sanctuary Spa in Covent Garden, WOW, what heaven and absolute bliss! The time to return home......</div>
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I am so grateful for every day that I am still alive and now focusing on training for the World Transplant Games in South Africa (July 2013). It is going to be a tough period training, and recently I joined a bootcamp called, Essex Boot Camp to help boost my fitness and help my lungs. Thanks to the directors of the Essex Boot Camp (Glynn and James) for their support. I have done many challenging things as you can see - and it doesn't get any easier for me, I have to keep pushing and persevering and remembering to breathe as I push my lungs to the max with about 60% lung function. </div>
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I wish everyone a Happy Christmas and Happy festivities, and I hope to journal one more time before the year ends. Much love to you all in the meantime and stay smiley :) xx</div>
<span id="goog_2032594428"></span><span id="goog_2032594429"></span>Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com1tag:blogger.com,1999:blog-9054641035799066265.post-23491879587639441442012-10-22T13:09:00.002-07:002012-10-22T13:27:17.167-07:00Final Leg & Reflections on Sailing Part World<div class="separator" style="clear: both; text-align: center;">
<b><u>Home Sweet Home :)</u></b></div>
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It is about time I finally write up the last journey from leg 8 in the Clipper 11-12 race from Den Helder, Netherlands back to Southampton, UK. It was a short race and one I anticipated no sea sickness, and even if I did - that an end in sight would see me through...as homeward I was! </div>
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However, before that......time to learn about my fun time in the Netherlands and being a tourist. I also met up with a friend I once met at the European Heart and Lung Transplant Games, named, Joachim. It was lovely to see Joachim again and it is great to be able to connect with friends made here, as we all are like family.</div>
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I did all the usual tourist things seeing any sights and a day trip to Amsterdam and some cheese as a yummy reminder to take home. When all the Clipper yachts did arrive from Ireland to Netherlands, the most fantastic party day/night was put on for all of us. The Dutch DO know how to throw a party and brought along a fab DJ that rocked the afternoon! I could have danced all day! </div>
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All kinds of entertainment was provided from artists, stilt artists, stalls, foods, music, dance and much more!<br />
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And here we all our in our sexy kilts - the crew of Edinburgh Inspiring Capital<br />
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Enjoying a drink with Sir Robin Knox -Johnston, the first person to sail single handed and non - stop around the world between 14/6/1968 - 22/4/1969.</div>
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It is strange trying to write up memories - which is what it is from almost 4 months ago now. I had intended to finish a last blog soon after returning home. But, so much happened and also 2 months of being very unwell, and hoping that I would be able to train for the British Transplant Games soon after to compete in. My previous blog to this IS about the Games - So, I did get to go, and had the all clear just one week before it was due to start! But, better late than never :)</div>
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<span style="text-align: start;">One last group shot before we all wave (below) and know this IS it - time to return back to England! As in one of my earlier blog's I mentioned I was ill on the journey to Ireland, and really hoped this journey would not be the case.</span></div>
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It was only a few days at sea 3 or 4, I can't remember now and we were all due to sail around the top of Scotland and informed heavy seas. Oh dear, I knew what that meant. This time prepared with a bucket, water, and wet wipes. So after my sea sickness passed - it was time to gather all happiness as almost time to be properly re - united with my parents, family and friends.</div>
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The atmosphere returning back into Southampton waters was truly electric! So many boats, supporters waving the Clipper crew back home. The water was a buzz of noise, shouts, giggles, press going crazy trying to capture the moment and take what seemed like a zillion photos! Here we are about to moor up and see the first sight of the Clipper Management/Press.</div>
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WOW!!!! I AM HOME!!!!!! There were thousands and thousands of people and I had no idea how I would find my parents. Apparently - they were near the front and made a fuss to see me - but initially not possible as we were all ushered to the main stage. However, I saw my mum and Dad and other people waiting behind a partitioned area. My Mum came out to me in tears and gave me the biggest hug ever! I know my parents have been so worried about me (and me about me too,lol). And the tears just said it all - relief to have me home finally!<br />
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I took some photos whilst on stage, and as you can see it is wall to wall with people like sardines and apparently 100,000 people at the race finish. It is impossible to really explain how this day felt - but perhaps one of an overwhelming emotion - one of tears, happiness, reflections, joy at knowing home life can resume. Time to catch up with friends - eat, drink, sleep and be 'normal' again. No more life on the high seas...no more sea sickness...hahahahaha!!!!<br />
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I was truly exhausted it is fair to say, and the last hours were spent saying farewell to people and then back to a hotel for a shower (luxury) and a meal out. We all went out for an Indian, and I think my eyes were bigger than my belly as I couldn't eat as much as I normally do. Or was that the portion of chips I ate not so long before the meal ;)<br />
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<b><u>Reflections</u></b><br />
I guess it would take me time to adjust back into my way of life. As I have already mentioned many months have passed now, and lots has happened. It took me weeks to get life back on track - with sorting out my flat, paperwork, seeing friends, training again for transplant games, re-covering from a scary bout of illness and being left underweight from my sailing venture. I guess I could see how the trip left me very exhausted and totally pushed my body to the max. It is surreal knowing I nearly quit twice due to being so unwell and unable to keep my immuno-suppressants down. I have re-read my blogs over the trip and it seems that my experience was perhaps not negative but that of a challenge I wanted to achieve, and that IT was! It seems I had a lot of lows, and yes I did. I did have many highlights too - but I think it came across more that my sailing experience was of more lows than highs. On reflection maybe so, but the highs certainly kept me going and kept me strong. The Clipper is about sailing, but it has other challenges besides the physical and incorporates mental and inner strengths. Being with so many people with various personalities, having no privacy, no space and nowhere to 'escape'. Being sleep deprived, hungry, and many other emotions that one possibly never knew existed. Time to think/reflect on life.....no quiet as constant noise even when 'off watch'. So regardless, whether I never worked night shifts - sleep was almost a no go with noise of sea/sail changes/weather/crew talking/moving sail bags from where the bunks were....and everything and anything!<br />
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The people I have met from this experience are totally amazing and made it all worthwhile. Never in any other circumstance would I have bonded with people across the world interested in sailing unless being part of Clipper. I have made some great friends across the UK and across the world. Some of my crew members on EIC were also truly supportive and helping me through my tough times to finish my challenge. Even, credit to the skipper Piers - who made it possible by helping adjusting my shifts - so that my lungs would not hurt and suffer the cold during the night times. Maybe their were one or two or even maybe more (on the EIC yacht) who didn't get me or understand my health situation and on the Atlantic Ocean journal I went into more details about this. However, in life - people will not always 'get' you and you can walk away - on the yacht you cannot, lol. So, learning to deal with uncomfortable situations and get on with it. My overview from this, is that - I will be in touch with those I like and made great bonds and that is how life is. You can work in your daily job and connect better with some people and some not at all. For the sake of work you all get on and do what you have to do. Then after hours - see other people you want to get to know more. I think you all know what I mean, and in your own way can relate to this (as it happens to us all).<br />
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It also made me proud that I DID accomplish my challenge, and I DID raise lots of Organ Donor Awareness across the globe, and made history as the first double-lung transplantee to sail the Atlantic Ocean. I know that when I die, I would have inspired many people and saved life's for the future by completing in the Clipper 11-12 Race (leg 8). So, that is PEACE for me :) xx<br />
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I have been asked. 'Will I sail again', to which normally I laugh a lot! Yes....I will, but not as an ocean racer sailor. Sailing is fun and I do enjoy it - but, I think calmer seas - and sailing around hot climates a preference to me. I would like to get back on the water, and see many of the friends I have made again.<br />
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I would recommend people to partake in Clipper, it is something that you can learn a new sport, make many friends, and overcome challenges and become a better person from it too. To gain an appreciation for life, food, sleep, and much more. I did actually enjoy being 'basic' such as no time for hair, make up/glamour. Being on land - when arriving in various ports across the world - was like, 'wow' a bed, quiet, calm and enjoying tea and take-aways. How I missed a curry and a burger! ;)<br />
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I think that summarises my time and lots of amazing things have happened to me...but, think that will be written up in another blog. Lets just say recognition for my sailing and all my other achievements over the years......<br />
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For now, I just to keep well and so excited to be part of Team GB in the World Transplant Games in South Africa (July 2013). I am fundraising - pretty please if you can...click on link highlighted and donate anything you can please, to further help with my awareness campaign raising Organ Donation. Thank you xx<br />
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<a href="http://www.justgiving.com/justine-laymond2">Fundraising for Transplant Sport UK World Transplant Games</a><br />
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That's a wrap for now. Check out my cake made for my welcome home and belated 6th year Transplant Anniversary celebrations :)<br />
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Much love to you all, and thanks again for all support, messages, cards, over my duration sailing - love you all xxJustine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-15686751766088548952012-09-12T13:34:00.001-07:002012-09-12T13:55:12.686-07:00Transplant Games 2012<div class="separator" style="clear: both; text-align: center;">
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<b> <u>Wednesday 22nd August</u></b><br />
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Welcome to Westfield Health British Transplant Games, taking place this year 2012 in Medway (Kent). I arrived the night before, as was due to rehearse at Dicken's World with Jamie (another transplantee) for a magic performance on the Friday night. It was fuelled with a milkshake at a local American Diner next door. So, rehearsals done and now time for a meal out in the complex, and a quick meeting with a friend from Twitter, Graham who also supported the event and took some great photos. Then, time to return back to the student accommodations whereby most of the Harefield team were staying.<br />
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<b><u>Thursday 23rd Opening Ceremony</u></b></div>
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My day began early setting off into Gillingham - for a wonder in the town and always time to check out a few shops ;) Then back on a local bus to get ready for the Opening Parade.</div>
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<span style="font-size: small;">Well here we all are about to parade and very proud from our hospitals , competitors from the ages of 2-82 and 600 athletes partaking in this year's Westfield Health British Transplant Games 2012.</span><br />
<span style="font-size: small;">There was also the 'donor families' parading with us with a banner at the end of the line, and much respect for those who were there. I was lucky to be able to be able to speak with a lovely lady named, Claire who lost her mother, Linda to a sudden brain aneurysm almost a year ago. It was quite emotional to hear of Claire's experience of this and one that after our conversation made me feel very reflective, and think again of the man who gave me his lungs. Her mother sadly passed away aged 59 and Claire informed me that she was with a friend, and then suddenly she stopped talking mid conversation, and had a stroke. Then Linda was unable to talk, walk, function and the stroke further caused a heart attack which put her into cardiac arrest. Her mother was now also paralyzed and when in hospital was induced into a coma. This was to be a precautionary measure to reduce swelling, but during the night she suffered a second bleed. As Claire went on telling me her story it was hard not to be moved and hear the emotion the way Claire spoke to me. Everyone has their own story and it is sad to loose someone, but amazing to think that part of her mother lives on. It was always known what her wishes were and her views on organ donation. From this, Claire has also built up a good friendship with the Transplant Co-Ordinator at the hospital where her mother went on to give life after life</span>.<br />
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<span style="font-size: small;">Her mother Linda, went on to help 6 people and both her kidneys, liver, both corneas, and vessels from eyes/behind the eyes were used to help recipients. Claire has received one letter from one kidney recipient. Our system has a lot of elements being anonymous and not revealing too much about the donor and recipient. I was told how old my donor was and the gender. He was a man and aged 42, and although I have written 3 letters, I have never heard back. I must admit for me personally, I find this one of my hardest struggles not knowing anything else about this man (and I may never ever find out). I had in my mind that I would hear back and maybe meet the person's wife/brother/mum or someone related to him. Sadly, this was never to be and part of my journey I need to still adjust too. For Claire, she expressed that it would be nice to hear back again from the first person who contacted her and hear from the other recipients. I guess though, everyone has various opinions and different ways to cope with loss or receiving an organ. Also, for us recipients whether we do write to our donor family or not. It is a very individual experience. After speaking to Claire, it has made me feel I want to write one more time, and if then I don't hear back....perhaps I need to heal and accept this. There isn't a day that goes by whereby I don't think of the man who lungs I breathe with and how he saved my life. I am breathing and living for him. I would like to thank Claire very much for her time talking to me over this sensitive issue, and Claire also expressed that she would be happy to talk to other people who have gone through similar <span style="text-align: center;">experiences. Please get in contact with me, and I can pass your details on. Thanks</span></span></div>
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It was great to see friends again and meet 'newbie's' (newly transplanted people attending the games) and walking proud with our hospital banners towards Rochester Cathedral.<br />
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<span style="font-size: small;">Each hospital was introduced as we entered the stunning cathedral, and extra mentions of people who done perhaps something great/extra-ordinary last year/this year. As our team entered and sat down, I heard my name and my sailing venture through the microphone followed by some 'woo's' of friends sitting behind me. A variety of displays were put on for us including:- a male choir, dance shows, speeches, and a very special performance (song/piano) by Peter Murray - as mentioned below.</span></td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Inside Rochester Cathedral welcoming all the athletes<br />
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<b><i>Some information about Peter Murray </i></b><br />
<span style="font-size: small;"> </span><span style="font-size: x-small;">Now aged 20, transplanted 17 years ago 23rd May 1995, and was born with congenital nephrotic syndrome where protein, vitamins and minerals etc leak into the urine so you lose so much of what you need and start holding toxins in the body.</span><br />
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<span style="font-size: x-small;">Peter wrote a song, called 'Standing Tall' and told me that he has been playing piano since he was 9 and writing his own songs on and off since 14 years of age. The inspiration for his song came about because he wanted to write a song which really understood the depth of the difficult experiences that transplant patients go through. Also, the scale of the gratitude/regard that we all have for our donor families. Peter wanted members of the public to be able relate to his song/lyrics and connect with the importance of organ donation.<br />
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It was truly amazing, and I was really impressed and it definitely needs a mention - hence why blogging about about it. Please listen to his song here <a href="http://soundcloud.com/petermurray-2/standing-tall">Standing Tall</a>. Thanks x</span></div>
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<b><u>Friday 24th - Party and Magic</u></b></div>
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How about a nice chilled day for me...hmm me thinks not. Well, I did want to make sure I got plenty of rest so was able to give 110% for a magic performance later this night, and still to have energy to party after. I have been brought up from a world of magic due to my parents being magicians for over 20 years and touring the globe with various illusion shows, and my father a children's entertainer and also specialising in children's magic. A friend Jamie Jessop has been performing magic from a young age and a status update saying he was going to a magic convention - sparked me saying something like...'Oh my parents did those and I used to go to many as a child....' and someone said why don't we do a double act.</div>
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And....the idea was sparked!!!! It even escalated that Jamie had been buying books from my dad and then the penny dropped..is your Dad????...Hahaha...Yes I told Jamie. To now cut a long story short we decided to think of a modern show with illusions and call ourselves, 'Spare Parts'. We had maybe 5 months to make a new show from scratch and be ready by June as then I was going to be away sailing. Upon my returns, it would be just a case of final rehearsals - so, with little time and as many weekends as we could attend, the show developed! And the rest they say is history ;)</div>
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That night we saw the venue fill up with about 150 people at, Dicken's World. We had an introduction and then our music started to play from the centre's sound system. Star Wars dance music filled the darkened area and any nerves now gone, we rocked it! Jamie and I both really enjoyed performing and had some very good feedback afterwards. Feeling on a high, it was now time to pack up and let the night continue.......</div>
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<span style="font-size: x-small;"><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; line-height: 14px; text-align: left;">A little bit more information about Jamie and why he needed a kidney transplant, now 23 years old and his transplant was brought about from having </span><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; line-height: 14px;">kidney dysplasia. This is where the internal structures of one or both of the baby’s kidneys do not develop normally. Fluid-filled sacs called cysts replace normal kidney tissue. Kidney dysplasia usually happens in only one kidney. A baby with one working kidney can grow normally and has few, if any, health problems. Babies with kidney dysplasia affecting both kidneys generally do not survive pregnancy, and those who do survive need dialysis and kidney transplant very early in life.</span></span></div>
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So after the magic packed away, a quick microwave meal and costume change number two......the night then turned into 'Army and Navy' theme disco, and it was great to see many people as the party atmosphere filled up with camouflage and officer uniforms.</div>
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It was a fun night and music that suited the theme of the disco. Time for sleep as an early start needed for badminton and ready to feel energised again.</div>
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<b><u>Saturday 25th - Badminton and Team Meal </u></b></div>
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Nevermind all the athletes competing at the Transplant Games, sometimes we may require the assistance of physio's and let me introduce Alison and Sheila.</div>
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<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: x-small; line-height: 14px; text-align: left;">I asked some questions to both physio's and Alison went on to tell me that her involvement with Transplant Sport started in 2001 when she had an unexpected phone call from a girl, (Sandy) who had worked with her at Physio Practice, then left to emigrate to New Zealand. Her sister was a member of the British Transplant Games team and so Sandy had agreed to go with the team to Japan for the World Games in 2001, but couldn't go due to her new work commitments in NZ so she rang and asked if Alison would take her place. After being interviewed with Christine Evans who was a Team Doctor at that time, Alison then signed up - not knowing what she was getting into. In order to meet up with the Team, Alison went to her first British Games which were in Leeds and was overwhelmed by the nature of the event and also shocked that there was no Physio support to any of the athletes at the Games. Alison's first Games with the Team in Kobe, Japan, was a revelation and a life-changing event - and she became hooked. The next year at the British Games, Alison turned up with a couch and some tape and started to provide a limited service which over the next few years turned into providing a team of people and a more comprehensive Physio service. It was her idea to provide for the transplant athletes the same level of support that any national level athletes could expect, and in the last few years with Physio volunteer teams of up to 20 Physios/Sports Masseurs. The service is now an integral part of the planning and provision for the Games, and is both expected and well received by the athletes. </span><br />
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<span style="font-size: x-small;"><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; line-height: 14px; text-align: left;">As the understanding of the role of Physio increased within the Team and the size of the British Team grew it became necessary to have two Physios accompanying the British Team and so this has been the case since 2007. Alison went on to tell me, that she, 'considers it to be an honour and a privilege to accompany the Team to the World Games and to manage the Team of volunteers, all of whom must pay their own way to work at the British Games. So many of the volunteers do become hooked on the experience as I did, and so I have no trouble finding people to volunteer these days! </span><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; line-height: 14px; text-align: left;">The Games and the athletes inspire me enormously and I cannot imagine life without them or without the numerous wonderful friends that I have made. It can be hard work but is always worth it! I am looking forward to Durban with the Team and the planning starts now towards Sheffield 2013!'</span></span></div>
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<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; line-height: 14px; text-align: left;"><span style="font-size: x-small;">And now also some news on Sheila, another physio at the Transplant Games - who started when the games came to Coventry and has been every year since, and really appreciated assisting at the world games in Sweden with Alison. </span></span></div>
<span style="font-size: x-small;"><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; text-align: left;"><span style="line-height: 14px;">Sheila's association with TSUK has changed her as a person and has given her an opportunity to be part of a very special community of people. Sheila explains this being like, 'my extended family, and that it was so easy to fall in love with everyone.' And, 't</span></span><span style="background-color: white;"><span style="color: #333333; font-family: lucida grande, tahoma, verdana, arial, sans-serif;"><span style="line-height: 14px;">hey are highly competitive and deeply care about each other which is very unusual in sport. I have worked at children's games, school games olympic and about to do the para olympics. I have worked with teams and individual both local national and international level. I have enjoyed all of these things but my heart belongs to the TSUK. A very special team - and we are very lucky to have Alison lead us all to maintain a professional and very high standard of physiotherapy.'</span></span></span></span><br />
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<tr><td class="tr-caption" style="text-align: center;">Shelia on left in middle with volunteers and Alison far right</td></tr>
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So there we have some information about the lovely ladies, who as you can see play a vital role to us athletes competing at any of the Transplant Games. Often people are not aware of what happens during these events, and hence why I wanted to inform people that out games ARE just the same as any other Olympics or Para-Olympics. Thanks to both Alison and Sheila for all that they do, and to the volunteers who help too.</div>
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So, now onto badminton competition day with an early start to register for 9am and a good healthy breakfast to start my morning. I was competing with Lisa in Badminton Doubles and the first time we have partnered up together as a double.</div>
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Lucky us we both won silver!</td></tr>
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<span style="font-size: small;">The evening was a group meal at 'hollywood Bowl', and I was very good avoiding a burger for salmon. But, it all failed after we shared a dessert with ice-cream, cream, sweets, meringue and lots of naughtiness. Bed by 11.50pm.</span><br />
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<span style="font-size: small;">Well, take note of this photo below...and...'just do it'. Thank you and goodnight xx</span><br />
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<tr><td class="tr-caption" style="text-align: center;">Just Do It</td></tr>
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<b><u>Sunday 26th - Athletics and Gala Evening</u></b></div>
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Hello and good morning from the track and it was a busy morning for me with 3 events back to back. Javelin from 9-10am; Discus from 10-11am and Shotput from 11-12noon.</div>
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<tr><td class="tr-caption" style="text-align: center;">With Simon - free chips for a photo ;)</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-Gs8jTHAnjfc/UD8cfh2aIrI/AAAAAAAABOw/eLtM5WmiTiE/s1600/bolt.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://4.bp.blogspot.com/-Gs8jTHAnjfc/UD8cfh2aIrI/AAAAAAAABOw/eLtM5WmiTiE/s320/bolt.jpg" width="213" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jussie Bolt</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Getting ready to throw the Javelin</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Discus action</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-3qw5rzLBZew/UD8cyX035KI/AAAAAAAABPI/QoM4yyKSaTo/s1600/IMGP1277.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://3.bp.blogspot.com/-3qw5rzLBZew/UD8cyX035KI/AAAAAAAABPI/QoM4yyKSaTo/s320/IMGP1277.JPG" width="180" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Ready to shot putt</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">The Bling: 1 Silver and 3 Bronze's</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Being filmed for British Heart Foundation</td></tr>
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A day over and clinging back to the room staying in for mini rest and again a quick turnaround for the last night of the long weekend. The Gala night is whereby everyone comes together for a meal, final awards/presentations/speeches, and a chance to have a good boogie celebrating us being together and life.</div>
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<b><i>Sunday Closing Ceremony</i></b></div>
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<tr><td class="tr-caption" style="text-align: center;">Closing Ceremony was once the Badminton Courts ;)</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-sy3YwwiXGk4/UD8bg27DAtI/AAAAAAAABOM/SeUHVKh-VZQ/s1600/IMGP1328.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://3.bp.blogspot.com/-sy3YwwiXGk4/UD8bg27DAtI/AAAAAAAABOM/SeUHVKh-VZQ/s320/IMGP1328.JPG" width="180" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">With Richard also an Olympic Torch Bearer</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-491ETJVXOu0/UD8bmpuh4EI/AAAAAAAABOU/ZLvpetAhSKA/s1600/IMGP1357.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="180" src="http://3.bp.blogspot.com/-491ETJVXOu0/UD8bmpuh4EI/AAAAAAAABOU/ZLvpetAhSKA/s320/IMGP1357.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Party Party</td></tr>
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I would like to add a quote from Lynne Holt, an incredible woman who not only is a Clinical Transplant Co-Ordinator, but also the UK Team Manager.<br />
<span style="background-color: white; color: #131373; font-family: Arial, sans-serif; font-size: 15px;">Lynne Holt, from TSUK, 'We are really looking forward to this year’s Transplant Games. Olympic fever has really gripped the nation. We will be selecting our Team to represent the UK at next year’s World Transplant Games, to be held in Durban. Our transplant athletes are the best in the world, running the 100m in 11.16secs and swimming 50m Freestyle in .26secs. However, all our athletes are gold medallists, in that they have all won their race for life!'</span><br />
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So there you have it! An insight to the Transplant Games, please pass this link on to help inform people and let's spread awareness of Organ Donation and how important it is that we too get more media to promote the goodness that there is life after life - gives hope to so many waiting for a life saving transplant.<br />
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Happy smiles to each of you. Thanks for your time reading my journal. xx<br />
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<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-Q3ran3LGFmg/UD8boKdUMfI/AAAAAAAABOY/YeAMvcx7nZc/s1600/disco.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://2.bp.blogspot.com/-Q3ran3LGFmg/UD8boKdUMfI/AAAAAAAABOY/YeAMvcx7nZc/s320/disco.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Living it Up, because I can now xx</td></tr>
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<br />Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-25162399828598018352012-08-01T11:46:00.001-07:002012-08-01T11:46:30.465-07:00Journals I wrote for Clipper Website - For Your Eyes :)<div class="separator" style="clear: both; text-align: center;">
<a href="http://3.bp.blogspot.com/-jdrI3xQdjqE/UBl3X_eKTPI/AAAAAAAABN0/Fj2zyaDLoiA/s1600/me+halifax.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="http://3.bp.blogspot.com/-jdrI3xQdjqE/UBl3X_eKTPI/AAAAAAAABN0/Fj2zyaDLoiA/s320/me+halifax.jpg" width="320" /></a></div>
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Hi everyone - these were two blogs I wrote onboard the EIC yacht whilst sailing around part of the world, and may not have been seen by people (from the <a href="http://www.clipperroundtheworld.com/">Clipper website</a>) - so decided to publish on my site too. I have a poem still to upload, then also to write about the last part of the race from Netherlands back to Southampton, and the race finish day itself!! And lots more photos (took over 1,300+) but, will only upload some on here. If anyone wanted to donate still, my <a href="http://www.justgiving.com/JUSTINE-LAYMOND1">Just Giving Link</a> is still running - if you would like too. Happy reading lovelies in the meantime. xx (Oh...I am glad to be home - hell yes!!) hahahahahaha<br />
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<strong><u>RACE 14 - DAY 3 - by Justine Laymond (Edinburgh Inspiring Capital)</u></strong><br />
I was hoping to blog on my sixth Transplant Anniversary (July 9th) – but I had better things to do. Spending the last two days bed bound with a private butler bringing me food in bed. Champagne and salmon en croute and a non-stop supply of my favourite mocha cookie crunch frappucinos... Hold up....as if – was a dose of sea sickness instead. Ironic really, as I was hoping to have no more encounters as per crossing the Atlantic Ocean.<br />
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I reckon there is nothing worse, when you haven't been able to eat or barely drink, and your stomach still has that throwing up motion with nothing to say hello too into a bucket. Needless to say, it's a horrible feeling and a few others suffered too. Think I was champion over these days with most amount of reaching and making some horrific noises from reaching and my stomach being tumbled dried inside and out. To my surprise no one heard.....or maybe being polite. If I'm honest, I was worried about my medications not being able to stay down and missed some dosages that my body requires to keep me alive (in basic terms). I lay in my bunk very tearful and could not see a light at the end of a tunnel.<br />
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However, I do remember a night torch being shone in my face as Piers our skipper tried to reassure me the rough seas would change in 2,3,4,5,then 6 hours – did he realise he did a number increase, perhaps he should have started from 6 deducting instead..lol. But, I said get plans in motion to get me off the boat. At this moment I thought, yes, now I am in game over and had had enough and was not happy and couldn't bear at all how I was feeling. I guess I am a fighter and just tried to continue...<br />
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The next day, out of my bed, smoother sea and a big happy Jussie smile re-lit my rosy cheeked face. It's difficult to eat when no food is consumed over 2 days as the stomach shrinks. But...when the appetite does come back...Woohoo! Happy Days!<br />
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I had written a poem to read that day in respect of my donor, never had the opportunity. But here it is for everyone to read.<br />
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<u><b>Gratitude</b></u></div>
<div style="font-size: 0.9em; padding: 12px 0px 13px;">
Thank you for life<br />
Waking up smiley<br />
No worries no strife<br />
I think of you highly<br />
Placed into my body -<br />
By a surgeon's knife.<br />
We are as one<br />
Unified as whole<br />
One aim – one common goal<br />
Ambitions, drive, challenging roles<br />
Enjoying life whilst can<br />
It isn't forever -<br />
So you gave me a plan....<br />
And I do all and<br />
As much as I can<br />
Breathing for you<br />
Living for you<br />
Loving life for you<br />
Your an amazing man<br />
You've extended my life<br />
I want to carry on with colourful hair<br />
Be the longest living blue rinse – Granny Lungs Yer Yer, you heard it here first ;) xx</div>
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<strong style="font-size: 12px;"><u>RACE 13 - DAY 5 - by Justine Laymond (Edinburgh Inspiring Capital)</u></strong><br />
<span style="font-size: 12px;">Wow! Where do I start? It certainly has been a roller-coaster for me and perhaps for the other leggers who joined Leg 8. The first part of the race from New York to Halifax was like a smooth introduction to get back into the swing of things. Weather and sea like a dream. But, I guess good things don't last forever.</span><br />
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<span style="font-size: 12px;">We all only had a few days to enjoy Halifax and I saved one day to combine Media/PR worked I had organised. Not realising I would make front page news of their National newspaper, and appearing on two TV shows. It was great fun and definitely raised the profile of Organ Donation, LAM disease (the rare condition I have) and naturally for the Clipper race itself. I was quite overwhelmed on race departure, as a lady came to see me to say her husband died and she consented for his organs to save the lives of others, and wanted to meet me, as a recipient of donation. Needless to say we both cried -it was very moving. Even on a day out to Peggy’s Cove, I had people coming up to talk to me – you are the lady on the newspaper....I saw you on TV etc... And lots of people wished me luck. I am grateful for all this as my nerves for a two week journey sailing across the Atlantic fills me fear, and all I want is to keep well. So, with that in mind...Goodbye Halifax and welcome the Atlantic Ocean.</span><br />
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<span style="font-size: 12px;">So here we go.....woohoo! All wearing our sexy kilts with underwear (was a tad windy) ;)</span><br />
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<span style="font-size: 12px;">I seemed OK up until eating dinner, then oh dear running for the heads and vomiting like crazy. The next two days I was so poorly & bed bound unable to eat, drink and lost my appetite for three days. True to say, I felt crap and really hoped I would pass this corner and get better. Thankfully, I had Darius (transplant surgeon) and Niamh (Paramedic) keeping tabs on me. Well – what an intro to the rough seas ahead. But, I am a fighter and wanted to get through this and make land! (Just a lot of days still to go).</span><br />
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<span style="font-size: 12px;">Hurray...mmmmm...food! Finally, I felt able to eat again and stuffed a delicious lunch and dinner cooked by Paul and Martyn. Jussie is BACK!! It is quite difficult adjusting to the watch systems, lack of sleep, and if I'm honest I am feeling quite drained and exhausted (and it really does take it of me and my body). But, I am also lucky that my crew are very supportive. On some occasions I have found myself out of breath (hard to explain for people who don't what it is like to have a lung condition).</span><br />
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<span style="font-size: 12px;">But, again, I am stubborn and continue forward and want it all to be rock and roll!! So watch this space.....come on Ireland – I am ready for YOU!</span><br />
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<span style="font-size: 12px;">Being ill again is NOT an option...so with all my Grrrrrrrr...I WILL complete this part of the race and make Ireland bouncing around with my usual smiles. Xx</span></div>Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-73365801427058961502012-07-25T01:02:00.002-07:002012-07-25T01:13:44.124-07:00Sailing Memories on the Longest Day in June<a href="http://2.bp.blogspot.com/-I0d0mu6JlbQ/UA-lEx-jU3I/AAAAAAAABNo/EO1Tz6D5on4/s1600/IMGP0306.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="180" src="http://2.bp.blogspot.com/-I0d0mu6JlbQ/UA-lEx-jU3I/AAAAAAAABNo/EO1Tz6D5on4/s320/IMGP0306.JPG" width="320" /></a><br />
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<pre style="color: #2a2a2a; font-size: 13px; line-height: 17px; white-space: normal;"><span style="background-color: white;"><pre style="display: inline !important; white-space: normal;"><span style="background-color: white;"><pre style="display: inline !important; white-space: normal;"><span style="background-color: white;"><pre style="display: inline !important; white-space: normal;"><span style="background-color: white;"><span style="font-family: inherit;">Imagine an image that never ends, open waters, rehydrated</span></span></pre>
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<span style="font-family: inherit;">food for crew that survive on this for days on end. This is not the never ending story but in fact the longest day in June (on a repeat button). A team of
strangers trained to operate a 68 foot yacht, live without glamour or
luxuries. A far cry away from any TV, radio, or social networking sites
for days, weeks and a crammed solace to eat,live, and sail.Our day
consists on a shift pattern of on/off watches, mothering duties
(food); engineering (cleaning out bilges,maintenance of yacht); sailing on
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<a href="http://4.bp.blogspot.com/-nu8WSmB1rwg/UA-hmWXt37I/AAAAAAAABNU/Y3dnrIiHSnc/s1600/IMGP1051.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><b><img border="0" height="180" src="http://4.bp.blogspot.com/-nu8WSmB1rwg/UA-hmWXt37I/AAAAAAAABNU/Y3dnrIiHSnc/s320/IMGP1051.JPG" width="320" /></b></a></div>
<pre style="color: #2a2a2a; font-size: 13px; line-height: 17px; white-space: normal;"><b style="background-color: white;"><span style="font-family: inherit;">Where could you envisage a day watching the earth's natural habitat of life in real motion time. Seeing sunrise and sunset crossing the Atlantic Ocean. A time to experience all weather elements and nowhere to hide. No
shelter and just to embrace the rain and waves crashing down on our
foulies – the splashes hitting our eyes (the only visible space showing).
Looking out onto the sea, and having the most gorgeous dolphins squeaking
and swimming with us as our yacht pounds through the water. I step forward
to the bow and see the dolphins doing their little 'chase me' dance as
they pop out of the water showing off one by one, then a few together. </span></b></pre>
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<pre style="color: #2a2a2a; font-size: 13px; line-height: 17px; white-space: normal;"><pre style="white-space: normal;"><span style="font-family: inherit;"><b>How lucky are we to be in nature's world and not watching a wildlife program on TV. This beats any show, then also to witness whales too – wow! A vision of pure beauty up close and personal. Have no fear, because the sea
around has life and is watching us to! Curious as to what immense form
speeds readily through their territory. </b></span></pre>
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<pre style="white-space: normal;"><span style="font-family: inherit;"><b>Even birds fly around and occasionally come on-board to say hello and fly in/around our sails/deck area where we chat and sometimes slurp on a much needed hot tea.</b></span></pre>
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<pre style="white-space: normal;"><b style="background-color: white; font-family: inherit;">The day is a routine but with variety:- new conversations, wondering what</b></pre>
<pre style="white-space: normal;"><span style="font-family: inherit;"><b>food we will be eating; by adding water or from tins. Lack of sleep,
trying to get ready/dressed, even going to the toilet is a challenge when
the yacht is on an angle – hold on tight, its a a 45' angle!</b></span></pre>
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<pre style="white-space: normal;"><span style="font-family: inherit;"><b>Can you hear us laughing echoing out into the wide Ocean hoping for a glimmer of land, but knowing maybe another 8 days yet for such luck. Our sounds like baby
whispers dissolving into the air, hear us then with a flash as the wind
forces us forward...that chapter lost forever (except in our memories).
I for one feel very lucky to be writing this blog on the longest day of
the year, as my life has been extended thanks to a double-lung transplant
in 2006. I appreciate every day, like it's my last and absorb every sight,
sound, smell, image around me. Today is no ordinary day, but one of pure
beauty and challenge as I breathe in fresh sea air. My emotions sometimes
getting the better of me without the crew knowing I am wondering/hoping
that I get to face another day/ live to tell the tale for next year's
longest day of the year.</b></span></pre>
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<pre style="white-space: normal;"><span style="font-family: inherit;"><b>Live and cherish every day, don't take things for granted, and try and live your dreams. Love those around you and be kind – enjoy, smile, and bring laughter into your life. Today may be the longest day of the year, use it in reaching for your goals/ambitions. Time for me to get back on deck parade a smile to my crew, hope for a good last hour before I settle in another dosage of galley goodness and a few hours sleep, ready to get going and say. YES, I AM still ALIVE for today!</b></span></pre>
</pre>Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-60131233758106324652012-07-18T06:24:00.000-07:002012-07-25T00:16:13.028-07:00I'm 6, Alive & Coming Home #clipperrace<div>
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<span style="font-size: small; line-height: normal;">So ...waving cheering smiling at the thousands of people supporting the Clipper yachts as one by one we depart. The Edinburgh inspiring Capital yacht I'm on with a crew wearing tartan kilts and the men with knee high socks too (very appealing and easy on the eyes ;) we shout back all enthused by the rapturous send off. Apparently, the best farewell response in all of the race departures so far (rumoured by most of the crew). It certainly was awe inspiring for me to witness and I was buzzing with excitement! Whoop whoop!</span></div>
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<span style="font-size: small; line-height: normal;">The buzz kinda stopped when watch systems kicked in & time to wear our sailing clothing instead of tartan fashions. Go!!!!!!!! The race HAS started!</span></div>
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<span style="font-size: small; line-height: normal;">I finished my duties <a href="http://www.blogger.com/blogger.g?blogID=9054641035799066265" style="color: #0068cf; cursor: pointer; line-height: 20px;" target="_blank">at 6pm</a> and went to sleep about <a href="http://www.blogger.com/blogger.g?blogID=9054641035799066265" style="color: #0068cf; cursor: pointer; line-height: 20px;" target="_blank">8-8.30pm</a> - normal sleeping time now for me (since the <a href="http://www.blogger.com/blogger.g?blogID=9054641035799066265" style="color: #0068cf; cursor: pointer; line-height: 20px;" target="_blank">6am - 6pm</a> watch introduced) requiring <a href="http://www.blogger.com/blogger.g?blogID=9054641035799066265" style="color: #0068cf; cursor: pointer; line-height: 20px;" target="_blank">a 5.20 am</a> wake up every day for breakfast & time to get dressed accordingly with life jacket + harness. Eek ooooh dear, feeling sick I rushed to get on deck without my foulie jacket & surprised by many as so early. Best wear my jacket as its cold I was told.....no chance if I go back below deck I knew I would be throwing up. My jacket was given to me & I sat in the cock pit taking off my life jacket, jacket on, life jacket back on.....harness...moving to low side and YES being sick overboard! so, best I get back below on my bunk lie vertical and wait for the feeling to pass. </span></div>
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<span style="font-size: small; line-height: normal;">Roll on 48 hours later, throwing up over myself, in the bucket by my bunk, infront of Piers (skipper). Making horrible reaching noises trying to empty my guts when there is nothing inside & bile/foam inside. Perhaps I was a rabies case foaming at the mouth....lol....not how I intended my 6 years and I'm alive transplant anniversary was supposed to pan out. At my lowest , asking now for plans to get me off the yacht, so near to Netherlands, yet any longer for me simply agony. </span></div>
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<span style="font-size: small; line-height: normal;">I really don't know how I master through, like other people with sea sickness. For those not having or knowing how it feels. Slight extreme, but imagine your guts being twisted & spun like in a washing machine. Your head like helicopter blades going at 100 miles per hour. Desperate to go to the toilet - but your body paralysed and too weak to move. Trying to take sips of water and knowing another washing machine motion & reach for the bucket shortly after. </span></div>
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<span style="font-size: small; line-height: normal;">Ok, you get the picture, and having experienced this already across the Atlantic Ocean.... It's true to say I'd had enough! GAME is OVER. The worry also missing taking my medications & throwing them back up. The immuno suppressants needed to protect my lungs - now further weakened as no protection around them. Susceptible to infections....</span></div>
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<span style="font-size: small; line-height: normal;">BUT....I did it....I managed to drag myself out of the lower hospital bunk and have some crew sing 'Happy Birthday' (lungs) and I managed a smile :) Jussie was turning that corner, a few more days to Holland and I WAS going to make it!!! Other crew saying 'Happy Anniversary'. Yay.... I can do this.</span></div>
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<span style="font-size: small; line-height: normal;">The next few days, I bounced back again - started to try and eat. It is difficult surprisingly - but, eventually the appetite does return and then like some more!!</span></div>
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<span style="font-size: small; line-height: normal;">Well hellooooo Netherlands and am I glad to be here. My time here has been fantastic seeing:- Amsterdam, Volendam, Alkmaar and Den Helder where staying. I spent time with Joachim who I met at the World Transplant Games (Sweden '11) - which was great. And I also met some other transplantees joining for a corporate sail the following day.</span></div>
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<span style="font-size: small; line-height: normal;">The hospitality, food, ambience has been fantastic!</span></div>
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<span style="font-size: small; line-height: normal;">Believe it or not - I have done no media as such here, just a photo shoot with the transplantees which no doubt will be used for some article (s). Actually nice to have more time for me, rest & exploration of holland. I have bought plenty food & Dutch cheese to take home :)</span></div>
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<span style="font-size: small; line-height: normal;">Well, I leave tomorrow and arrive back to Southampton on Sunday. I am ready to come home after 2 months away challenging myself and beating odds that almost ended my venture. Just a few more days to go. I guess I feel slightly anxious as know the weather/sea will be bad again for a short time. I don't want to be sea sick on the returns - but, it seems I struggle when it is like this. The only part of the race I've been well was the actual first part from New York to Halifax (calm seas and blissful sunshine). Well if I am, I will get through it as I always seem to do & regardless I'm coming home...so, that is MY light at the end of the tunnel.</span></div>
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<span style="font-size: small; line-height: normal;">I still have many more blogs to write up, obviously this last part of race....maybe a reflective/overview of the whole race, copy & paste blogs I wrote up on the Clipper website and a blog I wrote re: when it was the longest day (June or July I can't remember now)..lol, for some other website.</span></div>
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<span style="font-size: small; line-height: normal;">For now, I am sitting in a Dutch cafe with a cappuccino and slowly consuming a fresh cream cake with a banana flavour iced coating. For any weight I've lost, I've gained back on land very quickly ;) I am looking forward to the foods I eat and enjoy (that of a healthier one). Consume more fresh foods, salads, fruits, jacket potatoes...fish etc. I am done with overdoses of carbs, bread, tinned, space food, cakes & junk food throughout my 7 weeks. However, I wish I could say I was done with crisps...pah ;)</span></div>
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<span class="ecxApple-style-span" style="line-height: 24px;"><span style="font-family: 'Trebuchet MS', sans-serif; font-size: small; line-height: normal;"><b>I do also still have to resume training for the British Transplant Games 4 weeks upon returning & rehearsing for a magic performance doing at the TX Games as well. I need rest, but that will be in another month. And next week, I'm back at hospital for a major check up of my lungs, heart, kidneys etc and I really hope all is well after my time away & how/what I've pushed/put my body through.</b></span></span></div>
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<span style="font-size: small; line-height: normal;"><span class="ecxApple-style-span" style="font-family: 'Trebuchet MS', sans-serif; line-height: 24px;"><b>Hmmm....cake plate is now almost empty & one more cappuccino slurp left. Right folks best I stop writing and enjoy my last rest, packing, meal out & setting sail in the morning. </b></span></span></div>
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Lots of love & I'm 6 with my lungs....I just hope I get more multiples of 6 still xx and I hope my donor is proud of me xx</div>
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</div>Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-29764553092025217972012-07-06T12:51:00.001-07:002012-07-06T12:51:46.227-07:00Atlantic Ocean blog #Clipperrace History made + 6years celebration<div dir='ltr'> <span style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; ">Tears running down my face as I step onto LondonDerry's pontoon in Ireland. I've done it! About 15-16 days crossing the Atlantic Ocean, an achievement that over a week into the venture - I was unsure I could actually complete. History made, as the 1st double-lung transplantee in the world to have sailed the Atlantic Ocean.</span><br><div><div dir="ltr"><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><br></div><div><font face="Noteworthy" size="4"><span style="line-height: 24px; "><b>Cameras and all the media in my face filming my watery eyes, when all I wanted was me time alone to cry by myself and enjoy a bottle of Pepsi given to us in a complimentary goodie bag given (for every crew member by Sainsbury) and to savor the taste of fizzy pop.</b></span></font></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><br></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; ">So many memories:- highlights, highs, lows..... Where to start? What to say first? Maybe, this blog will be jumping about as I try to recall excerpts from my memory on this voyage of challenges.</div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><br></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; ">I guess, part of the clipper venture is not just the sailing, but the mental aspect cooped up like hens in a cage & if you don't get on with someone - you still have to live and breathe in that tiny space. Learn to deal with it and carry on in a harmonious environment for the sake of the crew. It's true to say, you see different sides to people's personalities when stressed, hungry, or even sleep deprived. Also, all the crew were fabulous and understanding to my condition and my struggles became evident after departing from Nova Scotia.</div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span"><br></span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; ">The first part of the race from New York to Nova Scotia as I've said in a previous blog, was<span class="ecxApple-style-span"> sun and calm seas. Now this was not to be the same course on the books. The few days starting across the Atlantic were of sea sickness and about 3 days of no eating. Then that awful feeling of trying to throw up and as no food/fluids consumed, the constant reaching and stomach pains. A worry that my immuno suppressants were not staying down and some dosages being missed. So, early into the journey and I was already unwell. I did turn that corner and began the strenuous watch systems again and throughout the night too. Initially all seemed ok, then I realised on top of being sleep deprived, my body was really starting to struggle and I felt as every shift/day passed I was getting weaker and weaker. One night watch sitting in the cold, my lungs felt tight and hurt, and my bones were literally shaking with cold. I knew this was no good for me and would see me get very unwell with chest infections/further lung complications and I was so upset and tearful with no one seeing. I knew then that I was going to keep struggling and be unable to keep this up. I emailed my parents saying, 'this is killing me' and thought game over and I would need fly home to recuperate/recover.</span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; ">I did confide in someone, who said I should speak to our skipper. An alternative shift was created just for me to work from 6am-12noon on the first watch and then <a target="_blank">12-6 pm</a> on the second watch with breaks in between. Hurray! What a god send. Time to let my body repair and sleep. I tried to explain to Piers (our skipper) that if my body can't repair, I cannot function/improve. No night watch systems, and a chance to try and sleep through the night.</div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><br></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; ">Being questioned onboard by Della filming for the Clipper series and media upon arrival...I was asked if everyone was supportive, I said yes. Sadly, that wasn't true - only one person confronted me with their opinion who basically said I had no right to be on the boat and other stuff. Again, this experience challenges you mentally how to deal with issues like this, confront and talk about them. I went back on deck and was so hurt cried my eyes out. Then put my smiley face back on and carried on. Everyone IS entitled to their opinion, that is fair to say. My opinion is that I have every right to be onboard regardless of how much I can do with any strengths/weaknesses. Also, knowing this person is older than me and has lived life - an opportunity I know will never happen. My lungs are rejecting and every day for me is a bonus, and I DESERVE the chance to achieve whatever I can whilst I can. Rant over, sorry. However, I have learnt one other person feels the same way too. So, in life not every one will get you/understand you/situation/health etc and that is another challenge to deal with and carry on.</div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><br></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; ">Onwards and upwards, days and days of sea and nothing but waves, reefs in/out, sails up/down. Sitting on the high side, days withs lots of chatter and laughter. Then times getting soaked on shift as waves crash over, little or no conversation just wishing the shift to be over or consume lunch/dinner and sleep. Moments eating whatever you can - time has no function and days get lost. Eating biscuits <a target="_blank">at 9.30am</a> or <a target="_blank">4am</a>, crisps, sweets at any hour - overdosing on sugary boosts to keep you going. Excitement when dolphins swim by and chase with us as we pound through the water. Or, the occasional whale spotting! Nature at its best and raw habitat, stunning and awe inspiring. Even seeing birds sweep across the waves like surfing and chasing the ocean at a speed only one can imagine. Beauty. Life. It's happening right in front of my eyes and that feeling of deja voux as it repeats itself again and again.</div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><br></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; ">Capturing every moment before my eyes, like a camera...click... click. I have taken many photos and something to organise when back in the UK and put some on here too! Savouring every breathe, deep breaths in and smiling :)</div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><br></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; ">On one occasion, Doris (Lesley) was on the helm, and the yacht came to an almighty halt for precisely 1 second. Doris hit a whale, or the whale swam passed us at the bow as untimely and unlucky. Woooooo surreal and shaky experience, still intact the wind in the sails moving us through the sea. </div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><br></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; ">So, what about the food - you may query? Well, fresh meals and fruit/vegetables are for the taking until supplies run out. Then tinned food, noodle sachets, and space food (boil hot water into food and leave for few minutes) and then options such as:- lasagne, chicken teraki, sweet & sour pork, sweet & sour chicken, and so on. Generally, not too bad - but, it gets to a point whereby burgers, steak, chips, bacon, fresh veggies/salad, and all other delights become far fetched imaginations and cravings that are still like weeks away. My body was craving real food, but, consumption is <span class="ecxApple-style-span">that mostly of carbs, bread made daily,</span><span class="ecxApple-style-span">cakes/crisps/biscuits and sweets</span><span class="ecxApple-style-span">. For some reason leaving Halifax (Nova Scotia), the water tanks filled had a heavy influence of chlorophyll added - the taste making me sick and reaching every time. I asked my parents for any bottles of water as a slight taste before departure (I noticed this twang). These few bottles became my lifeline crossing the Atlantic and tiny sips rationed as best as I could. I was dehydrated at times and didn't drink enough - only when the water cooler tank was turned on and fresh water was being filtered. Eventually, lemon and ginger tea was my only option for little sips somewhat disguising that awful taste. Other crew members also felt the same, but managed to drink it. I guess my body is very sensitive and it just said, NO! Sometimes, when we were having tinned fruit as dessert, it was like I was begging for any syrup juice left (even if 1/4 cup) to try and rehydrate my body!</span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span"><br></span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span">I also started to become very homesick. I'm so glad I set up satellite email and was also able to have updates done for me on Facebook + Twitter. Thank you to all those who tweeted/replied and messaged me back whether emails or via Facebook . My PA's ...hahaha..(one of my brothers, Gavin and friend, Andy - have been superstars in orchestrating the delivery of these. In my low times, these gave me strength to continue and I am extremely grateful :) </span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span"><br></span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span">So, as you can see the Atlantic became a struggle for me with good and bad days, determination to keep going and hope and pray for land soon. It wasn't happening fast enough...and I really had to dig deep. It was hard for most of the other crew too at times and pulling together as best as possible is necessary. We even went through a storm, an experience that filled me with fear and relief when it was over. The last couple days were of rain and stormy seas until land came in view. WOW! LAND! Smiles all around, joy, amazement that we - I had done it...........and as we pulled up onto the pontoon I became overwhelmed, and that is when the tears started. I stepped off the yacht and burst into tears. Cameras, filming, media...all a buzz among my teary face and stuttered words of OMG I've done it.</span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span"><br></span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span">Justine Laymond has sailed across the Atlantic Ocean...anyone contacting the Guinness Book of Records please for me! Giving up almost an option - became NOT an option!</span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span"><br></span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span">I have spent some time now in LondonDerry and a day in Belfast, making many new friends also from this Clipper trip. More media buzz from Irish TV, radio, Scottish newspapers, CNN news, ITV news, and apparently newspapers back home - that I didn't even know had been done. I am trying to get as many links from whatever articles possible and will publish once home on my blog or as and when I can. Amazement from recognition again being out and about having people approach me like in Nova Scotia. Also, for other crew on Clipper yachts talking to me, and for me saying oh I'm Justine......"we all know who you are" was the regular reply.</span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span"><br></span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span">One day was spent doing a corporate sail this week in Ireland with breathing support groups, (British Lung Foundation and Breathe Easy) and the NHS UK Blood and Transplant Group, and a couple people also joined with lung conditions. It was a great day out and more photos done and further media articles to follow up (again to which I have asked for any links). I also met another lady who had a double lung and heart transplant of almost 8 years, needless to say we got on very well! It was an inspiring day for me too, and I have been asked to visit and do a talk for these groups sometime. </span></div><div style="font-family: Noteworthy; font-size: 18px; font-weight: bold; line-height: 24px; "><span class="ecxApple-style-span"><br></span></div><div><span class="ecxApple-style-span"><font face="Noteworthy" size="4"><span style="line-height: 24px; "><b>My blog is jumping from topic to topic as I remember things, but time to call it a night, as I'm departing again to sail to Netherlands 5-8 days at sea. I hope it goes well and I'm not sea sick or feeling unwell. I have had early nights most nights and socialized to a minimum to get much needed rest still for the next voyage. </b></span></font></span></div><div><span class="ecxApple-style-span"><font face="Noteworthy" size="4"><span style="line-height: 24px; "><b><br></b></span></font></span></div><div><span class="ecxApple-style-span"><font face="Noteworthy" size="4"><span style="line-height: 24px; "><b>We depart 7th July, and on Monday 9th July at sea, it will be my 6th double lung transplant anniversary. Thanks to my donor letting me breathe and relish every new day. Breathing for you, I hope you are proud of me. </b></span></font></span></div><div><span class="ecxApple-style-span"><font face="Noteworthy" size="4"><span style="line-height: 24px; "><b><br></b></span></font></span></div><div><span class="ecxApple-style-span"><font face="Noteworthy" size="4"><span style="line-height: 24px; "><b>Lotsa love everyone xx</b></span></font></span></div></div></div> </div>Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com2tag:blogger.com,1999:blog-9054641035799066265.post-67018420118823532612012-06-14T12:22:00.001-07:002012-06-14T12:22:27.875-07:00Goodbye Canada time to sail #Atlantic ocean<div dir='ltr'> <span style="font-size: 10pt; ">Well I made it from New York to Halifax in Nova Scotia! And tomorrow I sail across the Atlantic Ocean to Ireland!!</span><br><div dir="ltr"><div><br></div><div><span style="font-size:10pt">My first 5 days of sailing from New York - after an emotional farewell & lots of tears, time to face my reality ahead and no going back. I guess I was lucky that the sea and weather was quite calm, and no scary moments. It was good to bring me back into the sailor way of life. ..watch systems, mother/engineer roles, lack of sleep and refreshing sailing actions. I did find the watch systems through the night extremely exhausting on my body and after 2 nights of this, shattered! It was a struggle and hard to stay awake, but somehow I did.</span></div><div><span style="font-size:10pt"><br></span></div><div><span style="font-size:10pt">The crew are fabulous and some/most I have met before at training or other events, and even the skipper for this leg 8 (Piers) is very understanding, a good leader and a people's person. Piers' gives good guidance and knows how to work/build us all as a team to get optimum performance. It was such a close race, and we came 4th with 13seconds to the yacht taking 5th position. Talk about nail biting and extreme cheers and shouts as we learned of our position. An amazing introduction to my first part of the race within this leg. I only had one night, the night before we arrived, whereby I felt unwell - but saw it through and the next day, was back ON IT! :)</span></div><div><span style="font-size:10pt"><br></span></div><div><span style="font-size:10pt">So much has happened, and I'm trying to remember all - but just writing snip bits for now. I have taken many photos and a blog when I'm back in the UK will be written up and YES lots of photos then. But, for now - you will have to just feel for what/how it is like through my writing.</span></div><div><span style="font-size:10pt"><br></span></div><div><span style="font-size:10pt">I did enjoy my time in New York, seeing great people, sightseeing, shopping, over eating - think I should stop this though ;)</span></div><div><span style="font-size:10pt"><br></span></div><div><font size="2">On arrival in Halifax, Nova Scotia - and mooring up, I saw my parents walking on the pontoon!!?? I remember seeing them last in New York and saying see you back in England. But, this was a </font>surprise<font size="2"> they had planned - and WOW, I was gobsmacked and totally delighted. Just means, they will say farewell again when I depart from Halifax to get to Ireland. I did ask if they were going to surprise me there, and the answer was no..lol x</font></div><div><font size="2"><br></font></div><div><font size="2">My first night was spent in a hotel - room service for food and then sleep!! I totally wiped out - my body was craving sleep time and lots of it!!! Lovely to have a warm shower too, and some luxuries unlike any of which are on board the yacht.</font></div><div><font size="2"><br></font></div><div><font size="2">I only have had a few days in Nova Scotia, and not much time for exploring - more for rest time and media work. On 13th June was spent with interviews from 2 TV shows (CTV Morning Live; CBC Radio; Chronicle Herald newspaper, all being aired/published 14/6/12). Then a final drive to the CTV Studios for the show 'Live at 5', which was a great experience. All the production team/anchor men/women were very friendly and in awe of my story. It was nothing like I expected - comfy chairs and a 1-2-1 with Bruce Frisko (Anchor) and somewhat relaxed like being interviewed as if a celebrity. At the end, Bruce said 'you didn't need me' and how well I did. I really hope all this media helps the continued awareness campaign on Organ Donation (as well as LAM disease and for the Clipper race itself).</font></div><div><font size="2"><br></font></div><div><font size="2">Also, whilst in New York, I did do a Skype interview for a National USA Yachting Magazine (which should be published in August) and was requesedt for a follow up story upon my returns to the UK. And, I still need to do another write up (my column for Yachting World - UK online website). Busy busy!!!! Not forgetting all the PR I did before leaving the UK (local newspapers, radio, magazines in Essex and Herts; and specialist sailing magazines/websites).</font></div><div><font size="2"><br></font></div><div><font size="2">I spent my last day in Nova Scotia exploring Peggy's Cove - stunning! And I was quite overwhelmed by people recognizing me from being on the TV/in the newspaper and coming up to talk to me, and wish me luck - it was lovely. And continuing with my awareness campaign. I made front page of the national paper - which I never expected (link below)</font></div><div><font size="2"><br></font></div><div><a href="http://thechronicleherald.ca/novascotia/107016-so-i-m-living-for-today">http://thechronicleherald.ca/novascotia/107016-so-i-m-living-for-today</a> </div><div><font size="2"><br></font></div><div><font size="2">I guess I am overwhelmed still with everything and appreciate all the love and support from all and everyone. My love and gratitude back to each of you. I am so thrilled to have set up satellite communication on board the yacht, and is wonderful to hear from people. My brother, Gavin is controlling this for me and collecting messages in one email and if I send an email back forwarding to those on my list. Also, Gavin is kindly updating my Twitter account if I send updates via satellite and then passing this onto my friend Andy (who is updating my Facebook). </font></div><div><font size="2"><br></font></div><div><font size="2">Well, I reckon my next blog update will be when in Ireland after an epic journey crossing the Atlantic Ocean. I am anxious, and feeling every emotion possible to any human being. I just hope to be able to do this, and stay well. And that the sea/weather is kind to me and the rest of the crew/skipper on EIC (Edinburgh Inspiring Capital).</font></div><div><font size="2"><br></font></div><div><font size="2">This is my biggest part of my journey and I need all the luck in the world for this, and for my crew too x</font></div><div><font size="2"><br></font></div><div><font size="2">Lots of love to you all</font></div><div><font size="2"><br></font></div><div><font size="2">xxx</font></div><div><span style="font-size:10pt"><br></span></div><div><span style="font-size:10pt"><br></span></div><div><br></div> </div> </div>Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-21457708239244516952012-06-03T02:01:00.001-07:002012-06-03T02:01:25.912-07:00Fun times with #LAM sisters & DuckyA busy day in Times Square - Wow! Mega!!! Like London but on a much bigger scale & everything over the top.
<br>I'm starting to relax & enjoy my time here before the sailing part starts. Feel the lifestyle here & food :)
<br>
<br>It was so hot yesterday too! Saw some Clipper friends, met my skipper, chatted with Clipper management ...., it's all go go!!
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<br>Also before I left England, I had arranged to meet some of my LAM sisters at a famous cheesecake restaurant called, Juniors. What a wonderful time & meeting those chatted with over the years. A day I will never forget! In the UK, there are about 120 women with LAM disease & here in USA about 1,200.
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<br>Also, my lovely friend, Kate joined us too (Ducky). Too much food & lots of chat + giggles :)
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<br>By 8pm I was exhausted & needed to chill.
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<br>Today I am meeting my friend, Emily from Washington & first stop is Ground Zero. Time to pay my respects after 9/11 tragedy xx
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<br>Breathing happy :) xx
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<br>Sent from my iPodJustine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-9471993651876385892012-06-02T02:16:00.001-07:002012-06-02T02:16:11.192-07:00Day 1 in #NewYorkIt's 5am & I'm lying in bed with tears rolling down my face. I don't expect people to really understand how overwhelmed I'm feeling by everything .
<br>
<br>My last couple days before leaving the UK were quite stressful, ensuring my life was sorted for the next 2 months. Also, confirming media work for NYC & Nova Scotia. I'm very excited for Nova Scotia as I have lined up breakfast TV , 5 live news, radio & a major newspaper . I'm going to be busy promoting organ donation & the rest.
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<br>It has been wonderful to re-unite with friends again from the Clipper crew for drinks & food.
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<br>Later today, I'm meeting my LAM ladies & Kate 'Ducky' & maybe some sightseeing.
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<br>Jussie xx
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<br>Sent from my iPodJustine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-42234944338254855482012-05-30T09:45:00.001-07:002012-05-30T09:45:11.778-07:00Goodbye England - Hello World #last blog on UK soil<div dir='ltr'> <div><div dir="ltr"><div><span style="font-size:10pt">Can't believe the time is now! My time has come, and double-lungs will soon be sailing around part of the world.</span><br><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><br><div dir="ltr"><div>I fly to New York 1st June, and start from 4th helping on the yacht and then set sail on 7th June.</div><div><br></div><div>It's amazing how much organisation has been required, making sure all relevant paperwork sorted, tablets (over 1,200), clothing and packing done effectively. It's true to say I have been feeling a tad overwhelmed by all of this, and at times stressed. My little lounge has been hit by an attack on the lets create havoc and chaos....arghhhhhh!!!! Over and over again. And my system of organising clothing in freezer days, then dry bags - failed at the last hurdle. All the bags within the dry bags took up too much room in my holdall. So, after removing all freezer bags - then vacuum packing, I can close the waterproof bag! Just means, I will need to sort in New York instead.</div><div><br></div><div>This is probably a small process to a part of the bigger process. Someone did make me chuckle when I mentioned how difficult sorting all my medications was.....'you haven't sailed the Atlantic Ocean yet' Oh yer..lol..that's true ;)</div><div><br></div><div>Everyone has been brilliant with constant support and it really helps. I hope doing this is not only a challenge for me, but also that it does raise awareness on Organ Donation and Lam Disease, aswell for the Clipper race itself. My Just Giving link will be ongoing for the duration I'm away</div><div><br></div><div><a href="http://www.justgiving.com/JUSTINE-LAYMOND1" target="_blank">http://www.justgiving.com/JUSTINE-LAYMOND1</a> </div><div><br></div><div><br></div><div>And whilst you are having your daily day to day regime, please think of me working through all weather/sea conditions and digging deep when times are hard. So, any donation will be gratefully appreciated :) Thank you xx</div><div><br></div><div>My emotions have still been all over the place......but now I am starting to unwind and I'm sure when I arrive in New York for the first time, I will feel like doing cartwheels whilst having every yummy flavour ice-cream in the biggest cone. Followed by a burger with every topping and see the sights for a couple days before I help on Edinburgh Inspiring Capital (yacht I'm sailing on). I am also excited to see existing Clipper crew/supporters that I have made friends with.</div><div><br></div><div>I have been organising/liaising with friends via social network sites who I have been in contact with to meet whilst in NY. I am very excited to meet my 'Lam Sisters' (which is a term we all call ourselves with Lam disease, as not many of us, and we are like family - no matter where in the world). These lam ladies I haven't actually met and will be wonderful to chat and give each other support and they see me as some kind of role model as always fighting and surviving.</div><div><br></div><div>I will be meeting a couple other friends also, who I have met before when they came to the UK, and now will meet again in their homeland, Kate' Ducky' and Emily.</div><div><br></div><div>Not sure what else to say - please keep well everyone. And to my friends still waiting for transplants, I hope you don't wait much longer!</div><div>I could just continue to waffle, but, I think I have said enough. And 1 more day to finalise last bits to do.</div><div><br></div><div>So farewell everyone - lotsa love to you all's</div><div><br></div><div>And I leave you again with my motto I stand by..."always smiling and always will"</div><div><br></div><div>xx</div> </div> </div></div> </div></div> </div></div> </div></div> </div>Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0tag:blogger.com,1999:blog-9054641035799066265.post-82698014978374090482012-05-19T02:03:00.001-07:002012-05-19T02:03:22.891-07:00All systems a Go Go!! #clipperrace #doublelungs<div dir='ltr'> <div><span style="font-size: 10pt; "><u>Countdown to Clipper 11-12</u></span></div><div><span style="font-size: 10pt; "><br></span></div><div><span style="font-size: 10pt; ">Well it has certainly been a roller-coaster towards the build up of my departure. I had intended the last month to be actively training in my specific sports entering in the British Transplant Games on my returns (and keep training 5 x week). However, a virus and then an infection wiped out all my energies and I was very unwell, so it forced me to rest and take things easy. Then, a scare that I may have a problem with my left eye and it required me to be referred to see an eye specialist. Initially the word cataract was mentioned as my drugs can cause this as a side effect. However, someone must be on my side as whatever the problem was has rectified itself and I need to go back again in 4 months for a check up. My lungs/health check up went well this week too, and my Doctor said see you after your sailing :)</span><br><div dir="ltr"><div dir="ltr"><div><div dir="ltr"><div><div dir="ltr"><div><br></div><div>I have been unhappy I guess with how things have panned out, but as many people said - it's better now than whilst at sea, to which I totally agree with! I know being immuno-suppressed makes it harder to fight and guess wiped me more than I thought. However, the good news is I am feeling better and just making sure I do take it easy and no point now resuming my 5 x week training. </div><div><br></div><div>I know doing this is to raise awareness as a Transplant Ambassador, and I have been lucky to feature in local newspapers, radio, sailing magazines, sailing websites and even an Italian newspaper! I've yet still to do more PR work in New York and hopefully the other countries my sailing trip takes me too. My story is spreading and not only raising awareness on Organ Donation, but also for LAM disease and of the Clipper 11-12 Race itself. This is also as a personal goal/challenge for me to achieve and the most difficult one since my transplant. My emotions have been all over the place and I have gone through the whole spectrum from excitement to the absolute fear of being petrified as know at times it will not be easy at all!<br><div><br></div><div>My condition that brought about my transplant, <span style="background-color:rgb(255, 255, 255);font-size:12px;line-height:15px">Lymphangioleiomyomatosis, is a truly horrific disease and I am trying to raise funds to help research into finding a cure to helps others for the future. </span><span style="font-size:10pt">I have set up a Just Giving Link if anyone would like to donate please on. Thanks.</span></div><div><br></div><div><a href="http://www.justgiving.com/JUSTINE-LAYMOND1" target="_blank">http://www.justgiving.com/JUSTINE-LAYMOND1</a> <br><div><br></div><div>So...what's left? I am now in the process of packing and re-packing, it's not easy, and everything is in zip freezer bags in dry bags. Then, my 2 months worth of pills which have been organised and removed from their boxes and further organised into daily and weekly bags.</div><div><br></div><div>So much organisation is required and careful planning, also, making sure all relevant paperwork is printed and taken with me.</div><div><br></div><div>I will miss so much about my life here, and know when I DO finally return home it will be the most incredible feeling and I have already shed some tears. I will be at sea on July 9th, to which will be my 6th anniversary post my double-lung transplant, and it will be an emotional time thinking of my donor. I do think of my donor daily and know without his kindness signing the organ donor register and/or making his wishes known to be one - I wouldn't be alive.</div><div><br></div><div><span style="font-size:10pt">I will have satellite email - and just trying to finalise these plans and if anyone wants to contact me - please let me know ASAP. For updates on this venture, if you scroll down a couple of blog entries I have already typed up all this information for anyone still wanting to know. As for my returns to the UK, there is a group already wanting to be there for me - if you also would like to be included, please HOLLA quick and I will pass your email to my Dad who will be finalising the plans. But don't delay as I leave June 1st!!!!!</span></div><div><span style="font-size:10pt"><br></span></div><div><span style="font-size:10pt">I would like to thank again everyone who has helped me in whatever way, whether with sponsorship to help with funds needed that my initial sponsorship didn't cover, items purchased on my Amazon wish list, and for just all the constant love and support. Sending my gratitude right back at you!</span></div><div><span style="font-size:10pt"><br></span></div><div><span style="font-size:10pt">That's all for now.....I may get to write another blog before I go - but if not...please wish me luck please. Thanks :)</span></div><div><span style="font-size:10pt"><br></span></div><div><span style="font-size:10pt">And so I leave you all with my motto I made up and live by "Always Smiling and Always Will" xx</span></div><div> <style><!-- .ExternalClass .ecxhmmessage P {padding:0px;} .ExternalClass body.ecxhmmessage {font-size:10pt;font-family:Tahoma;} --></style> <div dir="ltr"><br></div></div></div></div> </div></div> </div></div> </div> </div></div> </div>Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com2tag:blogger.com,1999:blog-9054641035799066265.post-81421801740900371712012-05-01T09:21:00.001-07:002012-05-02T00:04:47.169-07:004 weeks to go #Goodbyes & #Hellos - What to Expect From my #Sailing<div dir="ltr">
So it's the 4 week countdown to #sailing around part of the world in the #Clipperrace.<br />
<br />
<strong><u>Goodbye to:-</u></strong><br />
<br />
comfort<br />
luxury<br />
roast dinners<br />
fresh fruit/vegetables<br />
nice clothes<br />
glamour<br />
makeup<br />
nice curly hair<br />
showers/baths<br />
warmth<br />
heating<br />
comfy double bed<br />
friends<br />
family<br />
part time work<br />
badminton<br />
shot putt<br />
discuss<br />
gym<br />
lazying about my flat<br />
sleeping when I want/need too<br />
my own tea/coffee<br />
Starbucks! decaf skinny lattes and frappucinos<br />
Indian & Chinese takeways<br />
daily newspapers<br />
hearing the birds sing<br />
shopping<br />
TV<br />
cinema<br />
going for a walk ;)<br />
facebook + twitter :(<br />
<br />
and the list goes on and on!!!!!!<br />
<br />
<strong><u>Hello to:-</u></strong><br />
no luxury<br />
sailing clothes<br />
waterproofs and base layers<br />
no makeup/no glamour/no nice clothes<br />
frizzy/knotty hair<br />
back to basics<br />
wet wipes instead of showering!<br />
no privacy<br />
cold<br />
my Gauss sleeping bag and small bunk space<br />
getting to know the crew more and skipper<br />
work as a watch system - 4 hours on/off<br />
sailing regime as exercise<br />
no lazying about unless quiet watch<br />
sleeping when dictated to (4 hrs)<br />
tea/coffee onboard yacht - no way Starbucks or home quality<br />
pasta, rice, carb meals - no healthy foods - just carb/energy foods<br />
tinned/packet foods<br />
news - just satelitte/radar watch news<br />
seeing dolphins/sharks<br />
no TV/cinema..lol<br />
elements of the sea/weather<br />
mental and physical challenges<br />
sleep deprivation<br />
mood challenges if tired/hungry<br />
bruises from working on deck<br />
excitement<br />
fear/scaryness when weather/sea very bad<br />
swimming in the ocean ;)<br />
<br />
and this list goes on and on!!!!! I'm sure there is lots more to add, but it will give you a feel of what life will be like for my duration. No way easy and something I am ready to face! Goodbye the Jussie who likes to doll up - time to dress down and work hard as part of a team.<br />
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I am looking forward to seeing different countries and making new friends. I fly out with my friend, Wend also in the race on another yacht and we will enjoy sightseeing, and eating LOTS before setting sail. I have also been in contact with other ladies with LAM and hope to meet them in New York too (and some other friends). So, it will be all good vibes and fuelled up with burgers/waffles/cheesecake as a nice energy fat layer.<br />
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Am I mad?? Yes...... xx<br />
<br /></div>Justine - LamLassLovingLungshttp://www.blogger.com/profile/13874231633604371337noreply@blogger.com0